Osteoporosis medications and neuropathy

Posted by detc @detc, Feb 19 7:34am

Has anyone developed neuropathy after taking Actonel or other osteoporosis medications? I was diagnosed with Covid vaccine induced neuropathy and I’m wondering if my robust, over active immune system may respond in the same way to osteoporosis medications.

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I'm not on any osteoporosis medications but I do have neuropathy. Hopefully others with experience can share it with you. This research from a clinical study shows "28,600 people reported to have side effects when taking Actonel. Among them, 24 people (0.08%) have Peripheral neuropathy."
--- Actonel and Peripheral neuropathy - a phase IV clinical study of FDA data: https://www.ehealthme.com/ds/actonel/peripheral-neuropathy/

I wasn't aware that there is a way to tell if your neuropathy was caused by Covid. Do you mind sharing how they diagnosed you with Covid vaccine induced neuropathy?

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When I got diagnosed with PN, I went off all my OTC meds. This included calcium for osteoporosis, B vitamin and then cholesterol medication. The symptoms got better for a while, but now are back and I didn't go on any of these meds again. Don't know what to try next. Good luck on finding an answer.

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@johnbishop

I'm not on any osteoporosis medications but I do have neuropathy. Hopefully others with experience can share it with you. This research from a clinical study shows "28,600 people reported to have side effects when taking Actonel. Among them, 24 people (0.08%) have Peripheral neuropathy."
--- Actonel and Peripheral neuropathy - a phase IV clinical study of FDA data: https://www.ehealthme.com/ds/actonel/peripheral-neuropathy/

I wasn't aware that there is a way to tell if your neuropathy was caused by Covid. Do you mind sharing how they diagnosed you with Covid vaccine induced neuropathy?

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Thank you for your input and the link you provided. I looked at the study and there is some wording that makes me think that neuropathy could possibly be a side effect.
My diagnosis was “highly suspicious of vaccine induced neuropathy”. This occurred after my first Covid booster. Originally, I had a very extreme rash response to the first Covid shot. After the booster, neuropathy symptoms began to appear. Because of my particular health history which was excellent, the robust reaction to the first shot, the timing after the booster and the fact that other patients had been coming in and presenting just as I had, my neurologist felt that there was reason to believe that the neuropathy was related to the vaccine. She predicted that if that were the case, there was a chance of a full recovery. Thankfully, after months of difficulty walking, I did completely heal.
I’m sorry for your situation and wish you the best.

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@daisy22

When I got diagnosed with PN, I went off all my OTC meds. This included calcium for osteoporosis, B vitamin and then cholesterol medication. The symptoms got better for a while, but now are back and I didn't go on any of these meds again. Don't know what to try next. Good luck on finding an answer.

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Thank you for responding. I’m sorry that your symptoms have worsened. I will continue to do as much research as I can and seek other’s experiences. Good luck.

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@detc

Thank you for your input and the link you provided. I looked at the study and there is some wording that makes me think that neuropathy could possibly be a side effect.
My diagnosis was “highly suspicious of vaccine induced neuropathy”. This occurred after my first Covid booster. Originally, I had a very extreme rash response to the first Covid shot. After the booster, neuropathy symptoms began to appear. Because of my particular health history which was excellent, the robust reaction to the first shot, the timing after the booster and the fact that other patients had been coming in and presenting just as I had, my neurologist felt that there was reason to believe that the neuropathy was related to the vaccine. She predicted that if that were the case, there was a chance of a full recovery. Thankfully, after months of difficulty walking, I did completely heal.
I’m sorry for your situation and wish you the best.

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How did you heal?

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Interested because I am starting Gapapentin for neuropathy as well as Boniva for osteoporosis at the same time.

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I don't know if osteoporosis med can cause neuropathy but I do know it has some very nasty side effects including bone pain, brittle bones, and sudden femur breaks. I refused these med. I am small framed and bone density often looks bad on small framed persons and I am 71 very active and never broke a bone

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@pah17

Interested because I am starting Gapapentin for neuropathy as well as Boniva for osteoporosis at the same time.

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There are many side effects of Boniva. Be sure to look into that as you make your decision regarding the benefits.

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@pah17

How did you heal?

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It took many months for complete healing. I took various doses of Gabapentin throughout, based on the level of pain. Perhaps the reason that I healed was because my neurologist believed that the damage was actually to the Myelin sheath (the insulation) around the nerves as opposed to the nerves themselves. When I had an EMG test after healing, my nerves were very healthy. I was extremely fortunate to return to normal.

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@bb0753

I don't know if osteoporosis med can cause neuropathy but I do know it has some very nasty side effects including bone pain, brittle bones, and sudden femur breaks. I refused these med. I am small framed and bone density often looks bad on small framed persons and I am 71 very active and never broke a bone

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Thank you very much for your input. I’m trying to put off taking the osteoporosis meds for as long as possible, hoping to find non-prescription alternatives.

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