Connect
Orgovyx before surgery
I am scheduled for RARP 4/3/2025. I am on Orgovyx for 3 months prior to this as a way to "shrink the tumor." The ca involves the external sphincter and the surgeon believes this is the best approach to have a shot at not being incontinent.
I'm wondering if anyone else has tried this approach and what you can share about the treatment plan. Thanks.
Steve
Gleason (4+4) 8.
Bone and PSMA PET CT show no mets, including no lymph node involvement.
LOCAL STAGING:
Capsule: Positive for capsular penetration. Extraprostatic tumor extension at the base.
Neurovascular bundle invasion: Absent
Seminal vesicles invasion: Positive bilaterally
Other organ invasion: Invasion to external urinary sphincter
LYMPH NODES: Negative for suspicious lymph node (s).
BONES: Negative for suspicious bone lesion (s). L5-S1 degenerative disk disease.
OTHER FINDINGS: None.
Like
Helpful
HugInterested in more discussions like this? Go to the Prostate Cancer Support Group.
Connect
Gleason 9 locally spread, had surgery 3years ago and 6 months prior and post I had ADT and erleada to shrink the cancer and give the surgeon a better chance of getting it all etc. I have been and still is event free for 3.5 years. I think that this was a good move for me Good luck
-
Like -
Helpful -
Hug
5 ReactionsBecause of the below statement you want to make sure that there are clear margins in your surgery, if not, you will probably need radiation after. Because the cancer has gotten outside of the prostate, it can spread faster so it’s good thing you’re on ADT. I had surgery and the biggest issue, after surgery was the lack of being able to get an erection. You want to ask your doctor if they can do nerve sparing surgery, That way you have a chance of not having an ED problem
“Extraprostatic tumor extension at the base" refers to a situation where prostate cancer has grown beyond the boundaries of the prostate gland, specifically at the base of the prostate, extending into the surrounding soft tissue, indicating a more advanced stage of the disease with potentially poorer prognosis; this is often called "extraprostatic extension (EPE)" in medical terms.
Other than that issue Your cancer is very treatable and with the right treatments and Drugs, you should have many years with few problems from your chronic diseases, like most of us.
Did you ever speak to a radiation oncologist? With radiation they might be able to get everything all at once, But you can always do radiation after surgery.
-
Like -
Helpful -
Hug
2 ReactionsI'm kind of planning on salvage radiation after surgery. I have a consult at Mayo (JAX) end of this month to discuss. One thing with these Centers of Excellence, you have to plan in advance. The wait times are long. PET CTs at Mayo were 6-8 weeks out while the private sector (US) can have you in in a week or two. That doesn't make a ton of sense to me.
That happened to me as well with Sloan - their PET schedule was backed up for a month so I had to go to private center.
The isotopes decay fast so they can only get 2 or 3 per day at these large centers. Smaller facilities don’t do as many so they can “ a la carte” you more easily.
-
Like -
Helpful -
Hug
1 Reaction