One year after RCVS-PRES — could my poor mental state still be related
Hi everyone,
I’m a 54-year-old woman and a year ago I experienced a severe neurological event. I was diagnosed with Reversible Cerebral Vasoconstriction Syndrome (RCVS) and Posterior Reversible Encephalopathy Syndrome (PRES), following a thunderclap headache that occurred during exertion.
My MRI at the time showed:
Cortical subarachnoid hemorrhage (cSAH) in the left frontal region
Hemorrhage in the left basal ganglia
Vasogenic edema in frontal and occipital lobes (consistent with PRES)
Multiple arterial narrowings in the cerebral vessels
Since then, I’ve recovered physically and have no headaches or neurological deficits. However, one year later I continue to struggle with severe anxiety, emotional instability, and depressive symptoms.
I’m under psychiatric care and currently on medication, but unfortunately the treatment hasn’t improved my mental state so far.
I’m wondering if these ongoing symptoms could still be related to the brain areas that were affected — especially the frontal lobe and basal ganglia — or if they’re more likely psychological consequences of the trauma itself.
Has anyone else experienced long-lasting emotional or cognitive changes after RCVS or PRES? I’d really appreciate any insights or similar experiences.
Thank you so much.
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