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ok just took on Nubeqa after 2 months Orgovyx
so far so good- the Orgovyx had become pretty effortless, save for unpredictable hot flashes, which last a minute or two..now adding Nubeqa..so far so good ?! anything I should expect ?? I can tell I am bit shaky but otherwise, nothing major..starting 4 th day. ( PSA was 78 and dropped to .05 with just Orgovyx in 7 1/2 weeks)
Starting 9/29, 1st day of radiation..about 40 sessions scheduled...feeling almost hopeful I can beat this stuff..and live to ride a few more waves and ski a bit more...!
One last question: had Barrigel spacer installed 9/17..one of favorite things is cycling but even tho instructions say resume normal activities after 3 days, I am reluctant to cycle..anyone with exp on this topic ?
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I’ve been on ADT for nine years. Switched to Orgovyx About two years ago. It did cause me a lot of hot flashes and then I found out that taking Prilosec within six hours of Orgovyx Would make the side effects worse. Switched my Orgovyx To the evening and my Hot flashes have greatly reduced. Proton pump inhibitor drugs don’t work well with Orgovyx.
I’ve been on Nubeqa For about two years. I’ve been undetectable for the last 22 months after 15 years of prostate cancer And four reoccurrences. I have noticed no side effects from adding Nubeqa. I’ve actually been able to reduce the amount of blood pressure medicine I’m taking, Caused by Zytiga.
I know a lot of people that come to the weekly advanced prostate cancer meetings at ancan.org that have switched to Nubeqa and are really pleased with it. Some of them are taking it as their own drug, No more ADT, Since Nubeqa Works well, even with testosterone in your system, Many of the people are in their 80s.
No, riding a bike is generally not recommended immediately after Barrigel placement or prostate radiation therapy due to the potential for increased pressure on the prostate area. Most recommendations suggest avoiding activities that put pressure on the groin, such as cycling, for several days to weeks after treatment until tenderness has resolved. You should wait to resume cycling until your healthcare provider advises it is safe, and consider making adjustments to your bike, like tilting the seat, to reduce pressure on your perineum when you do return to riding.
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2 Reactionsthank you Jeff !! I get way more good info here than from the oncologist group..( for the most part)...
Prilosec ! well I had an awful exp with that stuff yrs ago..wont go into the details but suffice to say the prescription strength caused me great distress/ depression.. doc said I should keep on taking it even after my heartburn went away..anyway, after 2 1/2 months I stopped..slowly the depression and weird feeling went away ( that took 2 more months)
so I will try Nubeqa morning and Nubeqa /Orgovyx early eve then...
I decided not to cycle for now..prob wait until late Nov or early Dec to start back...not worth having radiation burns forever just because I couldnt stay off the bike...I dont see how cycling could be good for you even after spacer gel hardens because of the pressure the seat puts on that area...
You are taking the Prilosec first thing in the morning and not eating anything for half an hour.
I probably been taking it for five or six years and I have never noticed any side effects from it.
I dont remember exactly what time of day I took Prilosec- it was prescription stength..I had a bout of food poisoning and heartburn- it resovled that in a week or so but doc said keep taking it..so I did..but it did not agree with me..luckily I stopped before I killed myself..but if it works for you, go for it..