Endometrial Cancer: Noticing my blessings every day

Posted by Helen, Volunteer Mentor @naturegirl5, Aug 20, 2019

I was diagnosed with Endometrial Cancer, FIGO Grade 1 in late July. I live in the Upper Peninsula of Michigan and asked for a referral to Mayo. A few days after the referral, I met with my GYN-Oncology team, and a few days after that I had a radical hysterectomy at Methodist Hospital. The surgery was two weeks ago today. I am grateful that I had the means to go to Mayo Clinic, for my surgeon and her incredible team, and that I am now back home on this gorgeous day surrounded by support and love from my family and friends. (The cancer was staged Ia - caught very early and no other treatment is recommended). My life is a gift for which I am very grateful.

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I didn't have many symptoms: twinges in my ovaries as if I was getting ready for a period, though I was well past that. One dark discharge. Because I didn't feel right, I made an appointment with a Mayo nurse practitioner. She believed me, ordered tests, and they pointed to a diagnosis of endometrial cancer. This diagnosis was confirmed at the beginning of surgery and I had a hysterectomy. Later, my primary care physician said it was a good thing I listened to my body, otherwise the outcome would have been different.

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Profile picture for Harriet Hodgson @harriethodgson1

I had endometrial cancer, stage one, almost three years ago. Mayo checks me yearly and I am doing well. To have diagnosed the cancer early is a blessing.

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How wonderful that you discovered the cancer at such an early stage! Were there any symptoms that you might pass on to others? It goes without saying that you received the best care possible, at Mayo, as did I also.

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I had endometrial cancer, stage one, almost three years ago. Mayo checks me yearly and I am doing well. To have diagnosed the cancer early is a blessing.

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that is what makes it such a troubling decision there is an 80% chance it wont come back.

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Profile picture for mindyg @mindyg

I had no spread everything was clear 14%invasion into my myometrial wall nothing even in the wash out. 20% chance of reoccurance with no treatment 10% with treatment. Its a tough decision

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@mindyg, it certainly is a tough decision and ultimately a decision only you and your family can answer. Along with weighing the chance of recurrence, you may also want to consider your age and other underlying conditions. Are you young and/or in good health otherwise to manage chemo and radiation well? Do you have underlying conditions that might make further treatment more difficult and compromise quality of life?

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I had chemo and radiation for 4 mos and no bad affects. Had radiation every day for 1 hour over the lower half of my body and a chemo port for 24/7 chemo and I went to work everyday. That was 12 years ago and it's back so do everything you can!

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I had no spread everything was clear 14%invasion into my myometrial wall nothing even in the wash out. 20% chance of reoccurance with no treatment 10% with treatment. Its a tough decision

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The chemo is not bad. I have not had any nausea, only weakness for a few days after the chemo treatment. If I were you, I would do the chemo and radiation. I think it gives you the best chance to beat this cancer stparker54

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Profile picture for stparker54 @stparker54

I have clear cell cancer of the uterus (endometrium). I had a hysterectomy and I just got the pathology report. My cancer spread from my lower uterine segment to my cervical stroma, which makes it FIGO Stage II. There was some myometrial invasion (40%); pelvis lymph nodes were negative. I have to have six sessions of chemotherapy now (one session every three weeks), which will be followed by external and internal radiation. After I go through all of this, the cancer may return. I feel like I've just received a death sentence. Susan54

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I had the exact same diagnosis and it only penetrated my myometrial 14% I am trying to decide if I want to do the chemo and radiation since the chance of it coming back with nothing is only 20%. How bad is that chemo I hear its bad

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Profile picture for stparker54 @stparker54

This is an unrelated question. I heard you mention HE4,S before. Should I ask my doc to do this test? If so, why? What would it tell me? I'm already getting the CA-125 test.

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My oncologist at Mayo thinks the HE4,S is more indicative of cancer than CA125. Both are good. The more intel we have, the better to make the right decisions.

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