Endometrial Cancer: Noticing my blessings every day

Posted by Helen, Volunteer Mentor @naturegirl5, Aug 20, 2019

I was diagnosed with Endometrial Cancer, FIGO Grade 1 in late July. I live in the Upper Peninsula of Michigan and asked for a referral to Mayo. A few days after the referral, I met with my GYN-Oncology team, and a few days after that I had a radical hysterectomy at Methodist Hospital. The surgery was two weeks ago today. I am grateful that I had the means to go to Mayo Clinic, for my surgeon and her incredible team, and that I am now back home on this gorgeous day surrounded by support and love from my family and friends. (The cancer was staged Ia - caught very early and no other treatment is recommended). My life is a gift for which I am very grateful.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Profile picture for starko @starko

My Mayo oncologist is very much into nutrition as a treatment. He also recommends fasting 5 days a week, eat breakfast & lunch, skip dinner. I fasted for 36 hours prior to chemo. Since the chemo was looking for cancer to attack, it is better to have an empty stomach rather then having food absorb the chemo.

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I'm sure your oncologist took into account the type of chemo you were to be given in recommending fasting. I was treated with Carboplatin and Taxol and was instructed to eat an early breakfast before each treatment to help coat my stomach or my body would not be able to tolerate the treatments.

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Profile picture for starko @starko

3.8 - 11.2 10(9)/L is normal & safe. There is a medication whose name I can not recall that will up your white blood count if it dips too low.

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@starko, was the medication Neulasta (pegfilgrastim) or Neupogen (filgrastim)? Both made of a natural protein known as granulocyte-colony stimulating factor (or G-CSF) and help boost the production of white blood cells.

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Profile picture for miriam57 @miriam57

Thankyou
What is too low and what do they do for it.

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3.8 - 11.2 10(9)/L is normal & safe. There is a medication whose name I can not recall that will up your white blood count if it dips too low.

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Profile picture for starko @starko

Just be especially aware of your white blood counts, to be sure they do not fall too low as that makes you more susceptible to infections.

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Thankyou
What is too low and what do they do for it.

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Profile picture for miriam57 @miriam57

Thankyou for sharing. I wondered how it gets with each treatment. Just worried about blood counts dropping. Going to have 3 rd round on Feb. 23, 2021

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Just be especially aware of your white blood counts, to be sure they do not fall too low as that makes you more susceptible to infections.

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Profile picture for Fluffy06 @cichocki06

I am curious how did you know to fast before Chemo?

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My Mayo oncologist is very much into nutrition as a treatment. He also recommends fasting 5 days a week, eat breakfast & lunch, skip dinner. I fasted for 36 hours prior to chemo. Since the chemo was looking for cancer to attack, it is better to have an empty stomach rather then having food absorb the chemo.

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Profile picture for starko @starko

Hi. I survived multiple chemo treatments. What really helped was when I felt the worst I got on the treadmill for at least half an hour. It is amazing how that helped ease the discomfort. Also, I lost my appetite. Best to regain energy by eating protein, absolutely no sugar, avoid carbs and red meat, stick to healthy vegetables and fruits. One year later I am having a problem keeping my weight down and have a vigorous appetite. The first treatment is the worst! You will get used to it and you will survive! It will all become a memory in no time at all!

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Thankyou for sharing. I wondered how it gets with each treatment. Just worried about blood counts dropping. Going to have 3 rd round on Feb. 23, 2021

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Profile picture for starko @starko

Glad to hear of the treadmill! Take it slow at first, then speed up with time. I have a smoothie every morning, almond milk, banana, blueberries, strawberries, raspberries, and most important to settle your stomach, Greek, no fat yogurt! Then a whole wheat English muffin. Not sure if you know this but I fasted for 24 hours prior to each chemo session. Apparently, it helps the chemo get directly to the cancer without being partially absorbed by food particles. We want to kill the cancer and this happens faster! Every chemo session will become easier than the last. Hang in... it will soon be all over when you become well again!

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I am curious how did you know to fast before Chemo?

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Hi All.
I was diagnosed with endometrial cancer and had a total hysterectomy in May , 2020. Stage 1A. Peritoneal washing’s were clear, etc. scan in July, and a PET scan in July nothing showed in pelvic area. However last week the CT scan showed 3 masses and 3 lymph nodes.
Waiting for appt Jan 4, 2021 to see what is next. If anyone has had any experience with this , or even Keytruda vs chemo.
I am interested in hearing

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I do not want to alarm anyone but I had endometrial cancer in 2009. I went for my regular checkups in Texas and everything was great. In 2013 we move to California I wanted to resume my check ups so I made an appointment with a gynecologist oncologist, I was surprised he did not use a speculum and mentioned it he said that is because there is only a 1% chance it will return. Three more oncologists in 2 years no one used a speculum so I had my GP do one. I still continued to find an oncologist who would use one. Finally I found an oncologist who said she would do it but doubted she would find anything. Well! I had recurrence in my vagina cuff, 30 radiation treatments later and 4 brachytherapy at Stanford something I would not recommend. Be vigilant girls and make sure your doctor uses a speculum. Just want to add that originally I was told no radiation was needed, my surgeon took out over 26 lymph nodes all negative but years later I now have lymphedema no one mentions that either?

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