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Endometrial Cancer: Noticing my blessings every day
I was diagnosed with Endometrial Cancer, FIGO Grade 1 in late July. I live in the Upper Peninsula of Michigan and asked for a referral to Mayo. A few days after the referral, I met with my GYN-Oncology team, and a few days after that I had a radical hysterectomy at Methodist Hospital. The surgery was two weeks ago today. I am grateful that I had the means to go to Mayo Clinic, for my surgeon and her incredible team, and that I am now back home on this gorgeous day surrounded by support and love from my family and friends. (The cancer was staged Ia - caught very early and no other treatment is recommended). My life is a gift for which I am very grateful.
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I had no spread everything was clear 14%invasion into my myometrial wall nothing even in the wash out. 20% chance of reoccurance with no treatment 10% with treatment. Its a tough decision
The chemo is not bad. I have not had any nausea, only weakness for a few days after the chemo treatment. If I were you, I would do the chemo and radiation. I think it gives you the best chance to beat this cancer stparker54
I had the exact same diagnosis and it only penetrated my myometrial 14% I am trying to decide if I want to do the chemo and radiation since the chance of it coming back with nothing is only 20%. How bad is that chemo I hear its bad
My oncologist at Mayo thinks the HE4,S is more indicative of cancer than CA125. Both are good. The more intel we have, the better to make the right decisions.
When I'm done with chemo and radiation, I'm going to have to have the tests done regularly.
When I'm done with chemo and radiation
I get a blood draw every two weeks, measuring CA125 and HE4,S, as well as the general stuff, blood count, etc.
How often do you get the CA-125 test? That's a high probability of recurrence. I was told that if my cancer - clear cell endometrial cancer - were to recur, it would happen within the first 2 years.
Great news on the CA125. CHEMO IS WORKING! My port was put in ( in the hospital) to enable the chemo treatments, as well as the blood draws! Maybe you donot mind the arm stabs but I did. They had trouble locating my veins. Remember to keep getting blood draws (CA125) even after you have recovered. They told me to expect a recurrence of cancer after my chemo was done. 75-90% probability, but maybe that was for ovarian cancer in the late stages only.
I mentioned the He4S test to my doctor's nurse today. She was unfamiliar with it. I don't have a port. They said I didn't need one. They said I would have had to enter the hospital to have the port done. I've been to the hospital enough this year so I was glad. Some good news today: My CA-125 tumor marker has fallen to 24.8 from 38.7.