newly diagnosed prostate cancer and nonsurgical treatment options
Recently diagnosed with prostate cancer with biopsy Gleason 6, psa less than 4 and positive MRI. Exploring treatment options that are effective and planning on getting second opinion and options. Very concerned about side effects and looking for anyone who has been treated with non surgical options and their outcomes so far. Looking to explore treatment options including trials at the Mayo clinic. I am very active, still employed and 72 years old. Also interested in limited proton therapy, FICU and want to know how to get started.
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You do not want to be over treated. A Gleason Six does not call for treatment, It calls for active surveillance.
Things have changed a lot and doctors have been real upset about people being over treat with a Gleason six.
Here is a video with Dr. Laurence Klotz, one of the experts on active surveillance. He can give you answers as to why you would or would not be a good candidate for active surveillance.
Here is a video by Dr. Epstein discussing active surveillance and more
Please research Tulsa Pro and Nanoknife. I’m all about preserving sexual function and IF my situation worsens, I’ll definitely go that route. Leaning toward Nanoknife, but so hard to find a doc with enough experience in the U.S.
@nalubabuji2002
I believe you asked feedback from those who did not have surgical option done. I can give you my experience with that.
First your Gleason score is low. If you are not familiar with Gleason scores look them up. A 3+3=6 is saying the cells look like regular cells. The Gleason score is subjective though so make sure you are going to a expeirenced medical facility.
A PSA below 4 (mine was below 4 and I was diagnosed by biopsies as having prostate cancer) is consider normal number. But that means nothing per my urologist and PCP it is the rising numbers over time. I low PSA does not mean you don't have cancer (mine was 3.75 when diagnosed). Nor does a high PSA mean you have cancer.
You mentioned positive MRI. What does that mean. An MRI can show suspicious areas is that what you mean by positive but conflicts with your Gleason Score. Now I mentioned Gleason Score again. From my experience a Gleason Score only reflects the biopsies taken by your urologist. It does not reflect all the areas of prostate. So getting a 3+3=6 does not mean you don't have prostate cancer cells in othere areas of prostate.
Has your PSA been rising over time? You mentioned exploring treatment options. Did your urologist say you had prostate cancer? You mentioned Mayo. I went to Mayo for my diagnosis, Decipher, bone scan, and first consultation with R/O.
If I was you based on my personal expereience with this is to get a second opinion (I did to confirm diagnoses and treatment options). Again confusing here for me based on my personal experience with this about the 3+3=6 and a postive MRI. Again did your urologist say you had prostate cancer?
You mentioned proton radiation. I am not sure which Mayo you were considering but FYI Mayo Jacksonville does not have proton radiation. If you are in Jacksonville area I would say check with UFHPTI. They have a world reknown Proton Radiation Treatment Medical Facility since 2006. That is where I got my proton radiation treatments and I am also an abassator for them. They could also be used for second opinions.
If I was you since the information you posted seems to conflict (are you sure of your Gleason Score) with the numbers I would get a second opinion on your diagnosis and treatment options. If your cancer has been confirmed consider getting a Decipher test and PSMA. I got both of those test so coming from my experience. My Decipher reduced my original risk level of my cancer and my PSMA came back negative.
I did Tulsa Pro at Mayo Rochester for my 4+3. At one year I am cancer free. I have had zero side effects and the procedure was remarkably easy. You can see my entire story if you click on my profile You will likely just go on active surveillance for your Gleason 6.
With Gleason 3+3, I did active surveillance for seven years before reaching 3+4. At that time I had SBRT radiation instead of surgery. There's no apparent rush for you to do anything but watch it. With active surveillance, you have to be diligent and follow the testing guidelines.
Thank you, Kevin, for exceptional videos, both of which provided me with tremendous invaluable information.
Relax, 3+3 is in the active surveillance ('AS') range. PSA 2-3x year and mpMRI annually.