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Newly diagnosed with prostate cancer and still gathering information
I was just diagnosed within the last two weeks. My PSA is 4.1 which I’m thinking isn’t that bad. I was not prepared for the results of the biopsy. Gleason 4+3 intermediate unfavorable. 13 of 15 cores positive. The urologist is favoring surgery. Second opinion also surgery but wants a Pet scan which is in the process of being scheduled. I am in Alabama and expect to be treated here. I am still in the asking questions and doing research stage, at this point I don’t know until after the pet scan if I have any options. The information on the post operative effects ofsurgery goes from mild to wild, I’m concerned. Anyone who can share their experiences would be appreciated.
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Hello! I have a psa of 5.7, I had the biopsy test and 2 out of 10 cores came back positive. The 1st visit to discuss the results were let’s just monitor. He said men live a long time with this type of score. My Gleason 3+3=6 and the Dr sent the results in for a decipher test. The decipher came back at 51% and he stated that it would be best to remove the gland. At my age 56, he said it would be better to remove. He said that treatment can work and my take care of the cancer but if it comes back in years to come then surgery may not be an option. I’m stuck between a rock and a hard to make this decision. My next appointment is 5/8 and I have questions for my Dr.
Take a look at the TULSA PRO procedure. Less invasive, and you may well be a candidate for it. Go to tulsaprocedure.com and click on find a center. I did TULSA this February, whole gland ablation, got all the cancer, no ED, no incontinence, no pain.
Am not on anything. My urologist believes with my PSA being undetectable, that no other treatment is needed at this time. I have also consulted with my new regular doctor, who also has expertise in prostate care, and he agrees. It has been a year and a half so far. I’d be lying if I told you I don’t worry about this from time to time. But so far doing fine. Best to you as well.
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1 ReactionAre you on ADT? With a Gleason nine there is a chance of this coming back aggressively. Are you still working with a urologist Or have you moved on to an oncologist?
As I’ve mentioned before, some people I’ve known with a Gleason nine are still around 30 years later.
I wish you the best of luck in the future.
Good morning. After two MRIs and a biopsy that were negative, my second biopsy showed two cores of cancer, one at 3+4. I decided on surgery. My surgery went fine with NO incontinence issues, which I attribute to religiously doing Kegel exercises and an excellent surgeon. My surgeon told me I am one of the 10% who have no issues after surgery. However, my pathology report showed my cancer was actually 4+5 with clear margins and no spreading to lymph nodes. Since then, I have had 5 PSA tests which have all come back at < 0.01 undetectable. Always hoping and praying for more of this in the future. My advice to is: do as much as you can to get accurate cancer scores; and at least from my perspective, the surgery was my best option. All the Best!
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5 ReactionsIt’s ORGOVYX - not new in the US. I never had Lupron so I cannot compare SE’s.
But my experience was not bad and more annoying than life-ruining. Others were not so lucky. Best,
Phil
glennh23, It seems to be more effective than lupron without flares and a quicker return of testosterone after treatment. While it was approved here in 2021, it has been a slow pickup.
Not exactly fun, though. It has a higher patient rating than lupron, meaning the side effects weren't as bad.
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1 ReactionHi @glennh23 The word "new" is relative. What is new in UK is not as new in USA. Or in Canada. In this support group, there have been several posts about the new drug's effectiveness. But thanks for your post.b
Hi guys, this is a new drug. What’s just been released in the UK have a look and see what you think.It’s Relugolix. It comes in tablet form looks quite promising.
Robert, when you say ‘something precise enough’ are you talking about focal therapies such as HIFU or TulsaPro?
Phil