Newly Diagnosed: FIGO 2 Uterine Cancer: What does this mean?

Thank you.

@angierivas1
I agree! I told my gynecological oncologist that those visits never get easier. He said I know! At my last visit earlier this week he told me that if all is well in December, then I will only need checkups every 6 months. I see him every other visit and PA on the next. I like them all and they each seem to be very thorough. The thoughts of changing the frequency is scary too! I guess we just need to be vigilant and super mindful of our bodies. He told me before the biggest clues of a reoccurance would be bleeding and or unexplained pain.

I am sorry to hear about your recurrence.
Check ups are usually scary. Mine is coming up in two weeks. Originally, my oncologist surgeon had me on 3 month checkups but placed me with his assistant. She’s a PA. So I decided to move to a more renown cancer center. This new oncologist wants to see me every six months. So I’m following her recommendation.

Re. FIGO staging
Read this https://obgyn.onlinelibrary.wiley.com/doi/10.1002/ijgo.14923

@bangs
Hi. I was being seen by my gynecological oncologist every 3 months. On my 6 month checkup following my hysterectomy he found what he thought was some scar tissue. A kind that would potentially cause bleeding, so he removed it. He felt it was nothing more than scar tissue, but as a precaution it was biopsied and found to be the exact same adenocarcinoma that was found during my hysterectomy. I did have a tiny bit of spotting a few days prior to the exam, but I had moved some furniture and blamed it on lifting.

Hi. Could you please tell me how your reoccurrence was found?

Thank you.

@tjohnson2130, I just found your response to @naturegirl5 in a newly started discussion and moved it here so she, @val64, @angierivas1, and others could find it and continue to offer experiences, information and support.

I understand that "elevated serum testosterone level has been associated with an increased endometrial cancer risk in postmenopausal women." https://link.springer.com/article/10.1007/s40618-022-01916-1

@tjohnson2130, was the testosterone test ordered after your diagnosis of endometrial cancer? Did your oncologist explain why it was ordered? How are you doing?

Endometriosis cancer being confirmed by Lab test
Hi I started bleeding in march and finally got into doctor on Monday May 22nd, doctor immediately after the Pap smear said I have endometriosis cancer, I did blood work on Tuesday a complete CBC, CA 125, Thyroid panal and this morning a new test showed up on my labatory pending list called a testosterone, free and total (MS). Can anyone tell me just what the testosterone test is about?

@tjohnson2130 Something happened yesterday that was very frightening for you. Can you tell me what happened at the gynecologist's office yesterday? You wrote that you will start testing tomorrow. Is your doctor planning to do a endometrial biopsy because of the bleeding? Without a biopsy that the doctor sends to pathology to examine it's very early to think or know what is going on.

What did your doctor tell you?

@angierivas1 That's so much to deal with. I learned about Lynch syndrome the year I was diagnosed with endometrial cancer. I can see why you are so anxious about your appointment next Tuesday. Yes, how to deal with the symptoms you have after your hysterectomy considering there may be some contraindications. I hope that your oncologist spend the time with you that you need to figure out what options are available to you. This is not a 15 minute visit. Interestingly one time when I saw my primary care physician she told me that if I feel I need more time with her I should tell the scheduler I need a 30 minute visit and that will be scheduled. I didn't know that but it was much appreciated.

I will come back and check in with you next week. Will you take a close friend, spouse, or family member with you to your appointment?