Newly Diagnosed: FIGO 2 Uterine Cancer: What does this mean?

Good for you. The stress part of the equation is usually the hardest part to control.

Thank You, I’m just starting my journey had radical hysterectomy in Oct 2024 had first of 4 internal radiation treatments. I’m trying to eliminate sugar, I don’t eat highly processed foods and I do exercise. I’m trying to adjust my lifestyle to eliminate a reoccurrence. Thank You for your suggestions.

I’ve improved my diet (cut out sugar. Processed foods etc) and increased exercise Trying to keep stress under control not always successfully but everytime I read about someone years out from diagnosis it helps so much!

@red053 that’s wonderful!!! Are you doing anything special (diet, exercise etc.) to stay healthy?
Thank You

Thank you for this encouragement! I’m 1 1/2 years in remission from stage 3. Had surgery and external and internal radiation. Hoping I’m as fortunate as you!

I had stage three cancer, which means regional. It was in my pelvic lymph nodes and had not spread any further. I'm still here 11 years later so the therapy worked.

I didn't refuse radiation therapy, but I wish I had. I've had so much pain to my intestinal track, which is affixed and angulated in several places. With the nerves (I'll say dangling down) exposed. I have trouble one hour after I eat until the end of the digestive tract. Therefore, I have to be on pain medication 24 seven and when the "opioid crisis" came about, I had to be tapered from opioids and was given gabapentin to help. It did help but now what I'm hearing about patience coming off of gabapentin is terrifying. It appears that gabapentin is a harder withdrawal than opioids, at least that's what I'm hearing. Does anybody else have this problem or are using another therapy?

Hi. I believe there isn’t much difference between the pre-5 year mark and the after period in terms of the details of the surveillance. I am not a doc but suspect the 5-yr mark is a bit of an arbitrary benchmark. There is more concern around symptoms soon after the treatment protocols are given as it may not be clear whether they have worked or more is needed.

I'm a few years away from this active surveillance schedule I have after a recurrence in 2021. When I get near to the end of the 5 years of active surveillance without, hopefully, another recurrence or new cancer, I'm going to talk with my cancer care team about still returning on a regular basis for what? Passive surveillance?

Hi. My experience is with MD Anderson where a family member was treated for a reoccurrence (we actually think not all of it was caught the first time). I have met a few former patients who continue to check in years after their treatments. One lady who had breast cancer and has been free from it for 21 years told me she had a superstition that if she ever stopped going back, she would likely have a reoccurrence. Obviously, there is no connection. However, this belief probably enhanced the power of her positive thinking, which in many ways is a great support to good health. Trust your instincts and do what you need to alleviate your anxiety.