Hello @jazzel and welcome to Mayo Clinic Connect. Being scared is very understandable, and a great reason to reach out to others for support. Glad you've joined.
Members such as @cbaird and @hoffie have shared there experience with ovarian cancer and may be able to share more with you on their respective symptoms.
Have a pretty big mass on my ovary, getting referred to NMC to get an MRI done, went to get blood drawn for CA125 test. I’m really scared it could be ovarian cancer (Surgeon who referred me thinks it’s ovarian cancer) I’m really bloated, have abdominal discomfort as well as nausea. I would appreciate it if Anyone with ovarian cancer could share their symptoms/diagnosis/treatment. I’m really scared
Hello @jazzel and welcome to Mayo Clinic Connect. Being scared is very understandable, and a great reason to reach out to others for support. Glad you've joined.
Members such as @cbaird and @hoffie have shared there experience with ovarian cancer and may be able to share more with you on their respective symptoms.
Have a pretty big mass on my ovary, getting referred to NMC to get an MRI done, went to get blood drawn for CA125 test. I’m really scared it could be ovarian cancer (Surgeon who referred me thinks it’s ovarian cancer) I’m really bloated, have abdominal discomfort as well as nausea. I would appreciate it if Anyone with ovarian cancer could share their symptoms/diagnosis/treatment. I’m really scared
No, not that I know of. I was just making a comparison to a complete mastectomy for possible breast cancer to removing ovaries for possible ovarian cancer.
A best friend of mine, passed after a horrific fight with ovarian cancer. Both of us took clomid during our fertility work ups and I took perganol with an unsuccessful IVF in the 1980's. Like the women with the braca gene, afraid of getting cancer and having a complete mastectomy, I wonder if I should have my ovaries removed, due to the overstimulation of my ovaries, through in my early thirties. Perhaps, I should just live by faith alone.
While we wait for others to return to the discussion, we look forward to getting to know more about you. Are you looking for information about ovarian cancer for yourself or for someone you care for?
A best friend of mine, passed after a horrific fight with ovarian cancer. Both of us took clomid during our fertility work ups and I took perganol with an unsuccessful IVF in the 1980's. Like the women with the braca gene, afraid of getting cancer and having a complete mastectomy, I wonder if I should have my ovaries removed, due to the overstimulation of my ovaries, through in my early thirties. Perhaps, I should just live by faith alone.
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
@m1b1r9, I agree with Odette that you may wish to contact Mayo Clinic again to get an explanation as to why you were declined an appointment. I believe you mentioned that you were receiving treatment at MD Anderson. It is possible that reviewing your case, the physicians assessed that the care and treatments you are receiving is what they would recommend and didn't want you to incur additional costs for evaluation or travel. Or perhaps it was a capacity issue at the Arizona location. If travel is not an issue, you may inquire about an appointment the Florida or Minnesota locations.
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
I am very surprised that the Mayo Clinic did not set up an appointment for you. Perhaps you should contact them again. I was diagnosed with ovarian clear cell two and a half years ago which is obviously different than the uterine form. Were you exposed to DES? For those of us with OCCC, most of us had endometriosis. As a physician, I would think they would recognize your desire to inquire about alternative treatments that might be available.
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!
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Hello @jazzel and welcome to Mayo Clinic Connect. Being scared is very understandable, and a great reason to reach out to others for support. Glad you've joined.
Members such as @cbaird and @hoffie have shared there experience with ovarian cancer and may be able to share more with you on their respective symptoms.
When is your MRI scheduled for?
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1 ReactionHave a pretty big mass on my ovary, getting referred to NMC to get an MRI done, went to get blood drawn for CA125 test. I’m really scared it could be ovarian cancer (Surgeon who referred me thinks it’s ovarian cancer) I’m really bloated, have abdominal discomfort as well as nausea. I would appreciate it if Anyone with ovarian cancer could share their symptoms/diagnosis/treatment. I’m really scared
No, not that I know of. I was just making a comparison to a complete mastectomy for possible breast cancer to removing ovaries for possible ovarian cancer.
@cbaird, do you have the BRCA gene?
A best friend of mine, passed after a horrific fight with ovarian cancer. Both of us took clomid during our fertility work ups and I took perganol with an unsuccessful IVF in the 1980's. Like the women with the braca gene, afraid of getting cancer and having a complete mastectomy, I wonder if I should have my ovaries removed, due to the overstimulation of my ovaries, through in my early thirties. Perhaps, I should just live by faith alone.
@m1b1r9, how are you doing?
@m1b1r9, I agree with Odette that you may wish to contact Mayo Clinic again to get an explanation as to why you were declined an appointment. I believe you mentioned that you were receiving treatment at MD Anderson. It is possible that reviewing your case, the physicians assessed that the care and treatments you are receiving is what they would recommend and didn't want you to incur additional costs for evaluation or travel. Or perhaps it was a capacity issue at the Arizona location. If travel is not an issue, you may inquire about an appointment the Florida or Minnesota locations.
Here is some further information about HIPEC from Mayo Clinic proceedings written for medical professionals that may interest you:
- Cytoreductive surgery and HIPEC offers effective treatment for selected patients with peritoneal carcinomatosis https://www.mayoclinic.org/medical-professionals/cancer/news/cytoreductive-surgery-and-hipec-offers-effective-treatment-for-selected-patients-with-peritoneal-carcinomatosis/mac-20429726
What treatment are you currently getting?
I am very surprised that the Mayo Clinic did not set up an appointment for you. Perhaps you should contact them again. I was diagnosed with ovarian clear cell two and a half years ago which is obviously different than the uterine form. Were you exposed to DES? For those of us with OCCC, most of us had endometriosis. As a physician, I would think they would recognize your desire to inquire about alternative treatments that might be available.
Hello to all,
I had asked for an appointment at Mayo clinic in AZ, but they have declined to give me an appointment. I have metastatic serous/clear cell carcinoma in my abdomen, from a primary in the uterus which was surgically removed in Nov 2017. I do not understand why they refuse to give an appointment. I was given no explanation, I am a physician
and have good insurance.
Puzzled!