Joanne, have you seen the webinar we did last year called "What Women Need to Know about Ovarian Cancer"? You can view it here: https://connect.mayoclinic.org/discussion/interactive-webinar-what-women-need-to-know-about-ovarian-cancer/
In the webinar Mayo Clinic gynecologic cancer specialists Jamie N. Bakkum-Gamez, M.D. and John Weroha, M.D., Ph.D. discuss the signs and symptoms women should be aware of for detection of ovarian cancer, understanding treatment options, and the importance of new clinical trials. Beside the webinar is a discussion between people who attended the webinar, which may also interest you. Note: The discussion thread beside the webinar is in reverse chronological order.
@joannedb Hi Joanne: Welcome to Mayo Connect. I connected with Mayo Connect this spring after my third diagnosis of a rare type of malignancy, neuroendocrine tumors. Even though, my experience is different from your ovarian cancer, I do understand how disconcerting reoccurrences can be. I know that you will find many on this online network who will share with you from their experiences and who will offer you encouragement and suggestions based on their experiences. I've certainly found that to be so in my case. Best wishes to you as you navigate through health care providers and seek the right plan of treatment for your cancer. Keep us informed as to how you are doing. This is a group that cares! Teresa
Hi Colleen,
I was diagnosed February of 2014. I'm currently on Avastin for maintainence but my CA125 has been increasing over the past 3 months. I completed my 1st recurrance chemo last September. My last CT was clear except for a small amount of fluid in my lungs, which could be the culprit. My next scan is in a few weeks. I suspect I'll be back on chemo soon. Wondering about treatments and /or clinical trials that others with 2nd recurrance are I in and how they are doing. I'm NOT BRACA positive and guess I could be platinum resistant as my numbers started to increase after just 6 months. I'm feeling good. I have a good support system and a positive attitude. Enjoying life one day at a time.
Colleen Young, Connect Director | @colleenyoung | Jul 1, 2016
Hi @joannedb and welcome to Connect.
We have a small group of women sharing about ovarian cancer on Connect. Allow me to introduce you to @mfell@gill@jfc4@libbysmom and @mohavegal. I'm also including @hopeful33250 in this discussion. While she doesn't have ovarian cancer, she is one of our mentors in the Cancer group and a great support.
When were you diagnosed with cancer Joanne? How are you doing today?
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Good to get to know a little more about you @joannedb. @hopeful33250 @cynthiawick and @sue_in_delaware know about enjoying life one day at a time and the importance of a good support system.
Joanne, have you seen the webinar we did last year called "What Women Need to Know about Ovarian Cancer"? You can view it here: https://connect.mayoclinic.org/discussion/interactive-webinar-what-women-need-to-know-about-ovarian-cancer/
In the webinar Mayo Clinic gynecologic cancer specialists Jamie N. Bakkum-Gamez, M.D. and John Weroha, M.D., Ph.D. discuss the signs and symptoms women should be aware of for detection of ovarian cancer, understanding treatment options, and the importance of new clinical trials. Beside the webinar is a discussion between people who attended the webinar, which may also interest you. Note: The discussion thread beside the webinar is in reverse chronological order.
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1 Reaction@joannedb Hi Joanne: Welcome to Mayo Connect. I connected with Mayo Connect this spring after my third diagnosis of a rare type of malignancy, neuroendocrine tumors. Even though, my experience is different from your ovarian cancer, I do understand how disconcerting reoccurrences can be. I know that you will find many on this online network who will share with you from their experiences and who will offer you encouragement and suggestions based on their experiences. I've certainly found that to be so in my case. Best wishes to you as you navigate through health care providers and seek the right plan of treatment for your cancer. Keep us informed as to how you are doing. This is a group that cares! Teresa
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Hug
2 ReactionsHi Colleen,
I was diagnosed February of 2014. I'm currently on Avastin for maintainence but my CA125 has been increasing over the past 3 months. I completed my 1st recurrance chemo last September. My last CT was clear except for a small amount of fluid in my lungs, which could be the culprit. My next scan is in a few weeks. I suspect I'll be back on chemo soon. Wondering about treatments and /or clinical trials that others with 2nd recurrance are I in and how they are doing. I'm NOT BRACA positive and guess I could be platinum resistant as my numbers started to increase after just 6 months. I'm feeling good. I have a good support system and a positive attitude. Enjoying life one day at a time.
Appreciate any and all input. Thanks, Joanne
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4 ReactionsHi @joannedb and welcome to Connect.
We have a small group of women sharing about ovarian cancer on Connect. Allow me to introduce you to @mfell @gill @jfc4 @libbysmom and @mohavegal. I'm also including @hopeful33250 in this discussion. While she doesn't have ovarian cancer, she is one of our mentors in the Cancer group and a great support.
When were you diagnosed with cancer Joanne? How are you doing today?