1. < Gynecologic Cancers

I have ovarian cancer

Posted by joannedb @joannedb, Jul 1, 2016

Hi I'm Joanne. New to this group and I have Ovarian Cancer. Looking to connect with others with OVC.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Aug 12, 2016
In reply to @caf132 "Hi All- I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal..." + (show)
@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

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@rena42 Hi Rena: Let me add my welcome to you as well. Mayo Connect is a great way to share our journeys with cancer and other chronic illnesses. I joined Mayo Connect this spring right after I was diagnosed with my third recurrence of a rare malignancy, neuroendocrine tumor. I know that a cancer diagnosis can really take the "wind out of your sails" for a while, but once you find sure footing again you will find hope. Please feel free to share as much of your story as you wish, we would love to get to know you better. In the meantime, best wishes as you continue on your healing journey.

REPLY
rena42 | @rena42 | Aug 12, 2016
In reply to @caf132 "Hi All- I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal..." + (show)
@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

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Thank you will check inspire
Are you in chemo? Know anything about avastin

REPLY
joannedb | @joannedb | Aug 12, 2016
In reply to @caf132 "Hi All- I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal..." + (show)
@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

Jump to this post

Hi Rena, welcome to group. I also have stage four OVC. Was diagnosed two years ago. Wishing you the best. Another group you might want to check out is OCRFA.org. You can join their inspire group for women with OVC. Lots of members and good conversations. Keep in touch.

REPLY
Dawn, Alumni Mentor | @dawn_giacabazi | Aug 11, 2016

A Big Hello, @rena42!!
Welcome to connect. When you feel like it, we would love to learn alittle more about you.

Thanks
Dawn 🙂

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 11, 2016

Welcome to Connect @rena42. Thanks for joining our group talking about ovarian cancer. Please meet @caf132 @joannedb. I also hope @mfell @gill @jfc4 @libbysmom and @mohavegal will join us.

We look forward to getting to know you. Is this a new diagnosis for you Rena or a recurrence?

REPLY
rena42 | @rena42 | Aug 11, 2016
In reply to @caf132 "Hi All- I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal..." + (show)
@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

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I have ovarian cancer stage4
Love to talk to others

REPLY
joannedb | @joannedb | Jul 20, 2016
In reply to @caf132 "Hi All- I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal..." + (show)
@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

Jump to this post

Go to the OCRFA web site. They sponsor the Inspire community. You can join the Ovarian cancer group and any others you are interested in. You can also "friend" specific people once you are a member. Some of these ladies are very knowledgable but like all sites, sometimes info that might not be completely accurate is posted. Just run everything by your doc. Be sure to read Friday's posts by Rabbitgal. She is a hoot!

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 20, 2016
In reply to @caf132 "Hi All- I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal..." + (show)
@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

Jump to this post

@caf132 Welcome to Mayo Connect. I'm so glad that you found us! While I don't have ovarian cancer, I too have a rare form of malignancy, NET, and it certainly is disconcerting. I like what you say about staying strong and positive! Best wishes you connect and seek support. Keep us posted as to how you are doing and best wishes, Teresa

REPLY
caf132 | @caf132 | Jul 20, 2016
In reply to @caf132 "Hi All- I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal..." + (show)
@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

Jump to this post

Hi Joanne-
Nice to meet you. I will defiantly check out Inspire. Is that through this group or how do I access that groupo?
Best of luck in your continued stability.
Carol

REPLY
joannedb | @joannedb | Jul 19, 2016
In reply to @caf132 "Hi All- I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal..." + (show)
@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

Jump to this post

Hi Carole,<br>I also have OVC. I'm two and one half years out from my diagnosis and am stable. It is a diagnosis that is scary and as you said we need to be tough to deal with it, but we can live a full life. I wish you the best. If you are interested in connecting with other with OVC there is another online community I would recommend called Inspire. Joanne<br><br><br><br>

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