I have ovarian cancer

Posted by joannedb @joannedb, Jul 1, 2016

Hi I'm Joanne. New to this group and I have Ovarian Cancer. Looking to connect with others with OVC.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@colleenyoung

Welcome to Connect @pauldale4! I moved your message to this discussion about ovarian cancer so that you can meet members @rena42 @caf132 @hopeful33250 and others.

Wow, you sure were diagnosed quickly after experiencing noticeable symptoms. How often do you have chemo, Pauldale?

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Hi Pauldale. Welcome to the group. How are things going for you? Joanne

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Welcome to Connect @pauldale4! I moved your message to this discussion about ovarian cancer so that you can meet members @rena42 @caf132 @hopeful33250 and others.

Wow, you sure were diagnosed quickly after experiencing noticeable symptoms. How often do you have chemo, Pauldale?

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My name is Dale, I was diagnosed 6-16-16. I have ovarian cancer, peritoneal carcinomatosis and high grade carcinoma. I was a healthy 64 year old and I did not have any symptoms until the day before I was diagnosed, sore stomach then abdominal swelling and 6 pound weight gain in one day. Had to have 3 paracentesis performed in a 2 week period removing 6 liters of fluid, 2 liters then 4 liters. Once my chemo started that went away. (yesterday was my 5th treatment). I am tolerating the chemo well, no nausea. Thank God!! My plan is 9 weeks of chemo, surgery then 9 more weeks of chemo. I live in the Charlotte area so I go to Levine Cancer Institute.

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@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

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Thank you

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@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

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I completed chemo in September. Had carbo, taxol and avastin. Have continued with the avastin every three weeks. I believe it is keeping me in remission, along with lots of prayer. It's been eleven months and I'm feeling great. There are some side effects which do cause more problems for some the longer your on the drug. I started with a lot of joint pain when I was on all three drugs. Have some continued discomfort but can tolerate it just fine. The one thing that it does have a big impact on is my blood pressure. I'm now on three medications for HBP because of the avastin. Your doc ahould monitor that closely. At WI in RI they will stop avastin if pressure goes over 150. Overall I think it's a great drug. Joanne

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@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

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@rena42 Hi Rena: Let me add my welcome to you as well. Mayo Connect is a great way to share our journeys with cancer and other chronic illnesses. I joined Mayo Connect this spring right after I was diagnosed with my third recurrence of a rare malignancy, neuroendocrine tumor. I know that a cancer diagnosis can really take the "wind out of your sails" for a while, but once you find sure footing again you will find hope. Please feel free to share as much of your story as you wish, we would love to get to know you better. In the meantime, best wishes as you continue on your healing journey.

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@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

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Thank you will check inspire
Are you in chemo? Know anything about avastin

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@caf132

Hi All-
I was just diagnosed with Ovarian Cancer-a rare tumor type MMMT. Had Radical Abdominal Hysterectomy, removed appendix, omentum, a few lymph nodes. It was considered optimal debulking. Now on my third round of Taxol/Carboplatin with just a few bumps in the road. Would love to share info with other Ovarian Cancer women. Cancer is not for the weak. Stay strong and positive.
Carol

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Hi Rena, welcome to group. I also have stage four OVC. Was diagnosed two years ago. Wishing you the best. Another group you might want to check out is OCRFA.org. You can join their inspire group for women with OVC. Lots of members and good conversations. Keep in touch.

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A Big Hello, @rena42!!
Welcome to connect. When you feel like it, we would love to learn alittle more about you.

Thanks
Dawn 🙂

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Welcome to Connect @rena42. Thanks for joining our group talking about ovarian cancer. Please meet @caf132 @joannedb. I also hope @mfell @gill @jfc4 @libbysmom and @mohavegal will join us.

We look forward to getting to know you. Is this a new diagnosis for you Rena or a recurrence?

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