I have stage 4 ovarian cancer. Was diagnosed 19 months ago and completed 16 Taxol/Carboplatin treatments in Jan. Scans were clear then numbers started climbing and new scans revealed new tumors. Started Gemzar/Avastin treatments in August. One of my biggest problems now is night sweats, have to get up and change night cloths from 1 to 3 times a night. Anyone have any ideas for relief?
Hi @pat417, sounds like a hormonal reaction. If I remember correctly you had a hysterectomy. Did the night sweats only start since going on the gemcitabine and bevacizumab (Gemzar/Avastin) combination treatment or did they just get worse with the treatment? It must be so disruptive to have to change 1-3 times a night.
I have stage 4 ovarian cancer. Was diagnosed 19 months ago and completed 16 Taxol/Carboplatin treatments in Jan. Scans were clear then numbers started climbing and new scans revealed new tumors. Started Gemzar/Avastin treatments in August. One of my biggest problems now is night sweats, have to get up and change night cloths from 1 to 3 times a night. Anyone have any ideas for relief?
Yes,I relate to your problems! But I am 77 live on the opposite coast to my children and grandkids and they (after 2 years) of hearing my fatigue and complaints of not being able to even walk without lack of balance,are settling in to the new grandma. My husband (retired) is doing a lot of caregiving. I am depressed,though,at age,condition and fatigue. Beginning,though,to assert my new reality so that others can see it. I am planning to enter a “Live Strong” program at the Y to assess my strength capabilities and meet other survivors. You have had a lot. Be sure to let your friends/family know how you feel.They have to accept what is. Be good to yourself!
Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
Hi Susu2, I was diagnosed with stage 1 ovarian cancer in March of 2015. I was so excited to hit my 2 years NED in July, but was diagnosed with stage 2 breast cancer in August. And, I am BRCA negative. I had lumpectomy, getting ready for radiology and have started an aromatase inhibitor. ER/PR pos, HER neg. Worried about effect of more drugs. I have severe neuropathy from the chemo for the Ovarian cancer and on way too many meds for that. The fatigue, memory loss, and anxiety are at times overwhelming. Trying to balance pain management with fatigue mgmt is a problm...it changes day to day. I am 61, I am frustrated that I can no longer do what I used to, and no one, especially not my family members understand my limitations. They expect me to do all the things I used to do. Until now my OC number have been very good, I have my next follow up in November.
Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
@susu2, I'd like to introduce you to @chowmama2 who is an ovarian cancer survivor and just recently was also diagnosed with breast cancer. As an ovarian and breast cancer survivor yourself, I thought it would be good for you to meet.
Susu, you mention staying away from letrazole. Has your primary cancer doctor suggested using another aromatase inhibitor (AI) or is the risk of side effects higher than the treatment benefit of all AIs in your case?
I recently did a story on my friend Michelle who is living with stage four ovarian cancer for the past 5 years. She is a story of HOPE & inspiration and has received care from both Mayo Clinic and Mayo Clinic Health System. I wish you well. https://youtu.be/LTC05JDMpWM
Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
I recently did a story on my friend Michelle who is living with stage four ovarian cancer for the past 5 years. She is a story of HOPE & inspiration and has received care from both Mayo Clinic and Mayo Clinic Health System. I wish you well. https://youtu.be/LTC05JDMpWM
Brca neg. two year NED ovarian cancer survivor just diagnosed with stage two breast cancer. I have severe neuropathy following chemo which may be worse due to my autoimmune diseases. Is there anyone in a similar situation who can give advise me on expectations with Aromatase inhibitors?
I am 2 years out from ovarian cancer Stage 3c-had a big surgery and chemo therapy. Still feel exhausted, partly because of so many checkups and Blood Tests! But my cancer dr. Just mentioned at my last visit that it could come back ( some of the contamination could have been missed) and since I had some very small breast lumps (lumpectomy) and a recent colonoscopy taking out 4 precancerous polyps I am bracing but don’t know either how common recurrence is.I am about to be 77. Would like to hear some others’ experience with this.
Brca neg. two year NED ovarian cancer survivor just diagnosed with stage two breast cancer. I have severe neuropathy following chemo which may be worse due to my autoimmune diseases. Is there anyone in a similar situation who can give advise me on expectations with Aromatase inhibitors?
While we wait for others to return to the discussion, we look forward to getting to know more about you. Are you looking for information about ovarian cancer for yourself or for someone you care for?
I am 2 years out from ovarian cancer Stage 3c-had a big surgery and chemo therapy. Still feel exhausted, partly because of so many checkups and Blood Tests! But my cancer dr. Just mentioned at my last visit that it could come back ( some of the contamination could have been missed) and since I had some very small breast lumps (lumpectomy) and a recent colonoscopy taking out 4 precancerous polyps I am bracing but don’t know either how common recurrence is.I am about to be 77. Would like to hear some others’ experience with this.
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Hi @pat417, sounds like a hormonal reaction. If I remember correctly you had a hysterectomy. Did the night sweats only start since going on the gemcitabine and bevacizumab (Gemzar/Avastin) combination treatment or did they just get worse with the treatment? It must be so disruptive to have to change 1-3 times a night.
I have stage 4 ovarian cancer. Was diagnosed 19 months ago and completed 16 Taxol/Carboplatin treatments in Jan. Scans were clear then numbers started climbing and new scans revealed new tumors. Started Gemzar/Avastin treatments in August. One of my biggest problems now is night sweats, have to get up and change night cloths from 1 to 3 times a night. Anyone have any ideas for relief?
Yes,I relate to your problems! But I am 77 live on the opposite coast to my children and grandkids and they (after 2 years) of hearing my fatigue and complaints of not being able to even walk without lack of balance,are settling in to the new grandma. My husband (retired) is doing a lot of caregiving. I am depressed,though,at age,condition and fatigue. Beginning,though,to assert my new reality so that others can see it. I am planning to enter a “Live Strong” program at the Y to assess my strength capabilities and meet other survivors. You have had a lot. Be sure to let your friends/family know how you feel.They have to accept what is. Be good to yourself!
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1 ReactionHi Susu2, I was diagnosed with stage 1 ovarian cancer in March of 2015. I was so excited to hit my 2 years NED in July, but was diagnosed with stage 2 breast cancer in August. And, I am BRCA negative. I had lumpectomy, getting ready for radiology and have started an aromatase inhibitor. ER/PR pos, HER neg. Worried about effect of more drugs. I have severe neuropathy from the chemo for the Ovarian cancer and on way too many meds for that. The fatigue, memory loss, and anxiety are at times overwhelming. Trying to balance pain management with fatigue mgmt is a problm...it changes day to day. I am 61, I am frustrated that I can no longer do what I used to, and no one, especially not my family members understand my limitations. They expect me to do all the things I used to do. Until now my OC number have been very good, I have my next follow up in November.
ChowMama
@susu2, I'd like to introduce you to @chowmama2 who is an ovarian cancer survivor and just recently was also diagnosed with breast cancer. As an ovarian and breast cancer survivor yourself, I thought it would be good for you to meet.
Susu, you mention staying away from letrazole. Has your primary cancer doctor suggested using another aromatase inhibitor (AI) or is the risk of side effects higher than the treatment benefit of all AIs in your case?
Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
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1 ReactionI recently did a story on my friend Michelle who is living with stage four ovarian cancer for the past 5 years. She is a story of HOPE & inspiration and has received care from both Mayo Clinic and Mayo Clinic Health System. I wish you well. https://youtu.be/LTC05JDMpWM
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3 ReactionsHi @chowmama2 and welcome to Connect.
What a blow to be diagnosed with a second type of cancer after being 2 years without evidence of disease (NED) of ovarian cancer. I'd like to direct you to a couple of discussions in the Breast Cancer group (https://connect.mayoclinic.org/group/breast-cancer/)
- Breast Cancer and Neuropathy https://connect.mayoclinic.org/discussion/just-to-say-hello/
- Concerned about the side effects of anastrozole https://connect.mayoclinic.org/discussion/i-completed-all-treatments-for-breast-cancer-but-now-i-am-supposed/
Have you had surgery and chemo for both cancers?
Brca neg. two year NED ovarian cancer survivor just diagnosed with stage two breast cancer. I have severe neuropathy following chemo which may be worse due to my autoimmune diseases. Is there anyone in a similar situation who can give advise me on expectations with Aromatase inhibitors?
I am 2 years out from ovarian cancer Stage 3c-had a big surgery and chemo therapy. Still feel exhausted, partly because of so many checkups and Blood Tests! But my cancer dr. Just mentioned at my last visit that it could come back ( some of the contamination could have been missed) and since I had some very small breast lumps (lumpectomy) and a recent colonoscopy taking out 4 precancerous polyps I am bracing but don’t know either how common recurrence is.I am about to be 77. Would like to hear some others’ experience with this.
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