The Avastin didn't stop the growth of the cancer. Just got an appointment at UCLA for a trial. I see them next Tuesday. Will update when I find out more and return home.
I hav eplied to Karen and Live Strong wants me to wait till the next session at the Y as I have fallen twice so omething is going on with sense of balance. Thanksforallthe time you spend monitoring all of this. I want to spend time Not on the computer. 🌞
I recently did a story on my friend Michelle who is living with stage four ovarian cancer for the past 5 years. She is a story of HOPE & inspiration and has received care from both Mayo Clinic and Mayo Clinic Health System. I wish you well. https://youtu.be/LTC05JDMpWM
Hi @pat417, sounds like a hormonal reaction. If I remember correctly you had a hysterectomy. Did the night sweats only start since going on the gemcitabine and bevacizumab (Gemzar/Avastin) combination treatment or did they just get worse with the treatment? It must be so disruptive to have to change 1-3 times a night.
No, they started with the Taxol/carboplaten treatments, but may have been caused by the hysterectomy just before the chemo. They have gotten worse on this treatment plan. I had been using hormones up until several years prior to the hysterectomy. My Oncologist doesn't want me to use hormones and suggested a tylenol each night. Maybe gives just very slight relief. I'm scheduled to begin an Avastin maintenance plan in 3 weeks.
I have stage 4 ovarian cancer. Was diagnosed 19 months ago and completed 16 Taxol/Carboplatin treatments in Jan. Scans were clear then numbers started climbing and new scans revealed new tumors. Started Gemzar/Avastin treatments in August. One of my biggest problems now is night sweats, have to get up and change night cloths from 1 to 3 times a night. Anyone have any ideas for relief?
Hi @pat417, sounds like a hormonal reaction. If I remember correctly you had a hysterectomy. Did the night sweats only start since going on the gemcitabine and bevacizumab (Gemzar/Avastin) combination treatment or did they just get worse with the treatment? It must be so disruptive to have to change 1-3 times a night.
I have stage 4 ovarian cancer. Was diagnosed 19 months ago and completed 16 Taxol/Carboplatin treatments in Jan. Scans were clear then numbers started climbing and new scans revealed new tumors. Started Gemzar/Avastin treatments in August. One of my biggest problems now is night sweats, have to get up and change night cloths from 1 to 3 times a night. Anyone have any ideas for relief?
Yes,I relate to your problems! But I am 77 live on the opposite coast to my children and grandkids and they (after 2 years) of hearing my fatigue and complaints of not being able to even walk without lack of balance,are settling in to the new grandma. My husband (retired) is doing a lot of caregiving. I am depressed,though,at age,condition and fatigue. Beginning,though,to assert my new reality so that others can see it. I am planning to enter a “Live Strong” program at the Y to assess my strength capabilities and meet other survivors. You have had a lot. Be sure to let your friends/family know how you feel.They have to accept what is. Be good to yourself!
Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
Hi Susu2, I was diagnosed with stage 1 ovarian cancer in March of 2015. I was so excited to hit my 2 years NED in July, but was diagnosed with stage 2 breast cancer in August. And, I am BRCA negative. I had lumpectomy, getting ready for radiology and have started an aromatase inhibitor. ER/PR pos, HER neg. Worried about effect of more drugs. I have severe neuropathy from the chemo for the Ovarian cancer and on way too many meds for that. The fatigue, memory loss, and anxiety are at times overwhelming. Trying to balance pain management with fatigue mgmt is a problm...it changes day to day. I am 61, I am frustrated that I can no longer do what I used to, and no one, especially not my family members understand my limitations. They expect me to do all the things I used to do. Until now my OC number have been very good, I have my next follow up in November.
Sept. 28 was my 77th birthday,and I was looking for some more replies to this thread but it stops at this video. I had a complete hysterectomy after Stage 3 C ,starting in the Fallopian tubes. So far numbers have been good: 24 at last reading. Also had a lumpectomy for two very small cancers in the right breast-dr.didn’t feel that surgery was necessary but I didn’t want to handle the stress. Lookin at some of these numbers I cannot believe some of you are living with them! Why? Why don’t you have surgery? I am depressed at short term memory loss and fatigue but trust my blood test results and feel grateful at the competence of my medical team. I have Medicare and Unid Health Care and a supportive family. Am staying away from Letrasol as some friends have had severe psychological reactions to that and besides my primary cancer dr. Says the odds aren’t worth it. Please, those who are dealing with worse numbers: Why are you not getting treatment? With 💕
@susu2, I'd like to introduce you to @chowmama2 who is an ovarian cancer survivor and just recently was also diagnosed with breast cancer. As an ovarian and breast cancer survivor yourself, I thought it would be good for you to meet.
Susu, you mention staying away from letrazole. Has your primary cancer doctor suggested using another aromatase inhibitor (AI) or is the risk of side effects higher than the treatment benefit of all AIs in your case?
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The Avastin didn't stop the growth of the cancer. Just got an appointment at UCLA for a trial. I see them next Tuesday. Will update when I find out more and return home.
I hav eplied to Karen and Live Strong wants me to wait till the next session at the Y as I have fallen twice so omething is going on with sense of balance. Thanksforallthe time you spend monitoring all of this. I want to spend time Not on the computer. 🌞
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1 ReactionHi all,
@pat417, how are you doing with the Avastin maintenance?
@susu2, did you end up checking out the LiveStrong program?
@chowmama2, has your neuropathy subsided at all or is it permanent? I bet Karen would appreciate hearing from you here: https://connect.mayoclinic.org/discussion/neuropathy-11/
@leannn how are you doing?
Thank you for the inspiration and hope!
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1 ReactionNo, they started with the Taxol/carboplaten treatments, but may have been caused by the hysterectomy just before the chemo. They have gotten worse on this treatment plan. I had been using hormones up until several years prior to the hysterectomy. My Oncologist doesn't want me to use hormones and suggested a tylenol each night. Maybe gives just very slight relief. I'm scheduled to begin an Avastin maintenance plan in 3 weeks.
Hi @pat417, sounds like a hormonal reaction. If I remember correctly you had a hysterectomy. Did the night sweats only start since going on the gemcitabine and bevacizumab (Gemzar/Avastin) combination treatment or did they just get worse with the treatment? It must be so disruptive to have to change 1-3 times a night.
I have stage 4 ovarian cancer. Was diagnosed 19 months ago and completed 16 Taxol/Carboplatin treatments in Jan. Scans were clear then numbers started climbing and new scans revealed new tumors. Started Gemzar/Avastin treatments in August. One of my biggest problems now is night sweats, have to get up and change night cloths from 1 to 3 times a night. Anyone have any ideas for relief?
Yes,I relate to your problems! But I am 77 live on the opposite coast to my children and grandkids and they (after 2 years) of hearing my fatigue and complaints of not being able to even walk without lack of balance,are settling in to the new grandma. My husband (retired) is doing a lot of caregiving. I am depressed,though,at age,condition and fatigue. Beginning,though,to assert my new reality so that others can see it. I am planning to enter a “Live Strong” program at the Y to assess my strength capabilities and meet other survivors. You have had a lot. Be sure to let your friends/family know how you feel.They have to accept what is. Be good to yourself!
-
Like -
Helpful -
Hug
1 ReactionHi Susu2, I was diagnosed with stage 1 ovarian cancer in March of 2015. I was so excited to hit my 2 years NED in July, but was diagnosed with stage 2 breast cancer in August. And, I am BRCA negative. I had lumpectomy, getting ready for radiology and have started an aromatase inhibitor. ER/PR pos, HER neg. Worried about effect of more drugs. I have severe neuropathy from the chemo for the Ovarian cancer and on way too many meds for that. The fatigue, memory loss, and anxiety are at times overwhelming. Trying to balance pain management with fatigue mgmt is a problm...it changes day to day. I am 61, I am frustrated that I can no longer do what I used to, and no one, especially not my family members understand my limitations. They expect me to do all the things I used to do. Until now my OC number have been very good, I have my next follow up in November.
ChowMama
@susu2, I'd like to introduce you to @chowmama2 who is an ovarian cancer survivor and just recently was also diagnosed with breast cancer. As an ovarian and breast cancer survivor yourself, I thought it would be good for you to meet.
Susu, you mention staying away from letrazole. Has your primary cancer doctor suggested using another aromatase inhibitor (AI) or is the risk of side effects higher than the treatment benefit of all AIs in your case?