Unfortunately my ovarian cancer was discovered at Stage 3C and now it has metasticized to a small spot in my abdomen (not attached to an organ) and I am having chemo again. I had no symptoms for the first occurrence,just a suspicious doctor. BE GLAD IT HAS BEEN FOUND THIS EARLY IN YOU. Get treatment. 🌹
Hi @susu2susu2 , I'm glad it's not attached to organs and you're able to try chemo. It was Stage 3C at original diagnosis for me, however, since 2014 its it's been Stage 4. I ended up in ER over painful stomach issues and that's when they found it reoccured. I'm constantly in treatment since then. I certainly wish you well.
Unfortunately my ovarian cancer was discovered at Stage 3C and now it has metasticized to a small spot in my abdomen (not attached to an organ) and I am having chemo again. I had no symptoms for the first occurrence,just a suspicious doctor. BE GLAD IT HAS BEEN FOUND THIS EARLY IN YOU. Get treatment. 🌹
I am a little discouraged that it is so difficult to find others with low grade ovarian cancer, but I've read through some of the other posts and keep going. Today I woke up in the middle of ther night with pain radiating from my left hip area and pray it goes away soon! I don't know about anyone else, but when the cancer reoccured in 2014, I went through a normal day of work and then developed pain in my abdomen and ended up in ER. Therefore, I must admit to having a little bit of a panic internally (I never worry anyone else unless I really need help). Every little ache and pain triggers a bit of, "is this it, are we progressing to the next level". I'm just hoping and praying it's all going to go away like most little aches and pains. I have a trip coming up and I just want to relax and have fun!
Otherwise, my treatment of fulvestrant and Kisqali continue to stabilize the cancer. This makes 6 months which is celebrated! Fatigue, joint pain, swelling from lymphodema, low immune system, and hip/pelvic pain is what I cope with daily.
Are symptoms of pain, fatigue, and abdominal stomach issues the symptoms for the typical decline? I would imagine so.
I stay very upbeat with my family and my friends. I can relate to some others who comment about others feeling they are so strong or asking them to talk with someone else that needs support. I have no problems doing that and feel useful (I just retired as a school counselor for 25 years so I have a bit of experience talking about tough things.) But, sharing my struggles and having others understand is especially hard because of my attitude and faith. I get the, "you look so good" comment often. No one would realize the symptoms I deal with or the heart felt weighty prayers spoken through the day. I guess to some extent, I wouldn't want it any other way. It allows me to live, go places with my husband, visit my kids, laugh with friends, without getting "stuck" on the hard part of this cancer. Plus, this cancer for me comes after a long line of trials- stroke @ 18 that paralyzed my right side, learned to walk, talk, and speak all over again, 4 open heart surgeries, ablations, pacemaker, and ovarian cancer in 02, reoccuring in 2014 to the fight now. I can't complain, I've been blessed, but it's a heavy load at times. That's why I was just trying to find someone with Low Grade Stage 4. 🙂
Hi, @leann - Unfortunate that it's been challenging finding many others with low-grade ovarian cancer, but glad it's been useful to read through some of the other posts. Hoping that @chowmama2 @pat417 @susu2@falconfly@travelgirl will return and offer some perspective on your question of "Are symptoms of pain, fatigue, and abdominal stomach issues the symptoms for the typical decline?"
I am a little discouraged that it is so difficult to find others with low grade ovarian cancer, but I've read through some of the other posts and keep going. Today I woke up in the middle of ther night with pain radiating from my left hip area and pray it goes away soon! I don't know about anyone else, but when the cancer reoccured in 2014, I went through a normal day of work and then developed pain in my abdomen and ended up in ER. Therefore, I must admit to having a little bit of a panic internally (I never worry anyone else unless I really need help). Every little ache and pain triggers a bit of, "is this it, are we progressing to the next level". I'm just hoping and praying it's all going to go away like most little aches and pains. I have a trip coming up and I just want to relax and have fun!
Otherwise, my treatment of fulvestrant and Kisqali continue to stabilize the cancer. This makes 6 months which is celebrated! Fatigue, joint pain, swelling from lymphodema, low immune system, and hip/pelvic pain is what I cope with daily.
Are symptoms of pain, fatigue, and abdominal stomach issues the symptoms for the typical decline? I would imagine so.
I stay very upbeat with my family and my friends. I can relate to some others who comment about others feeling they are so strong or asking them to talk with someone else that needs support. I have no problems doing that and feel useful (I just retired as a school counselor for 25 years so I have a bit of experience talking about tough things.) But, sharing my struggles and having others understand is especially hard because of my attitude and faith. I get the, "you look so good" comment often. No one would realize the symptoms I deal with or the heart felt weighty prayers spoken through the day. I guess to some extent, I wouldn't want it any other way. It allows me to live, go places with my husband, visit my kids, laugh with friends, without getting "stuck" on the hard part of this cancer. Plus, this cancer for me comes after a long line of trials- stroke @ 18 that paralyzed my right side, learned to walk, talk, and speak all over again, 4 open heart surgeries, ablations, pacemaker, and ovarian cancer in 02, reoccuring in 2014 to the fight now. I can't complain, I've been blessed, but it's a heavy load at times. That's why I was just trying to find someone with Low Grade Stage 4. 🙂
The Avastin didn't stop the growth of the cancer. Just got an appointment at UCLA for a trial. I see them next Tuesday. Will update when I find out more and return home.
I hav eplied to Karen and Live Strong wants me to wait till the next session at the Y as I have fallen twice so omething is going on with sense of balance. Thanksforallthe time you spend monitoring all of this. I want to spend time Not on the computer. 🌞
I recently did a story on my friend Michelle who is living with stage four ovarian cancer for the past 5 years. She is a story of HOPE & inspiration and has received care from both Mayo Clinic and Mayo Clinic Health System. I wish you well. https://youtu.be/LTC05JDMpWM
Hi @pat417, sounds like a hormonal reaction. If I remember correctly you had a hysterectomy. Did the night sweats only start since going on the gemcitabine and bevacizumab (Gemzar/Avastin) combination treatment or did they just get worse with the treatment? It must be so disruptive to have to change 1-3 times a night.
No, they started with the Taxol/carboplaten treatments, but may have been caused by the hysterectomy just before the chemo. They have gotten worse on this treatment plan. I had been using hormones up until several years prior to the hysterectomy. My Oncologist doesn't want me to use hormones and suggested a tylenol each night. Maybe gives just very slight relief. I'm scheduled to begin an Avastin maintenance plan in 3 weeks.
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Let’s stay in touch..How did it happen that you didn’t have surgery at first diagnosis?
Hi @susu2susu2 , I'm glad it's not attached to organs and you're able to try chemo. It was Stage 3C at original diagnosis for me, however, since 2014 its it's been Stage 4. I ended up in ER over painful stomach issues and that's when they found it reoccured. I'm constantly in treatment since then. I certainly wish you well.
Unfortunately my ovarian cancer was discovered at Stage 3C and now it has metasticized to a small spot in my abdomen (not attached to an organ) and I am having chemo again. I had no symptoms for the first occurrence,just a suspicious doctor. BE GLAD IT HAS BEEN FOUND THIS EARLY IN YOU. Get treatment. 🌹
Hi, @leann - Unfortunate that it's been challenging finding many others with low-grade ovarian cancer, but glad it's been useful to read through some of the other posts. Hoping that @chowmama2 @pat417 @susu2 @falconfly @travelgirl will return and offer some perspective on your question of "Are symptoms of pain, fatigue, and abdominal stomach issues the symptoms for the typical decline?"
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1 ReactionI am a little discouraged that it is so difficult to find others with low grade ovarian cancer, but I've read through some of the other posts and keep going. Today I woke up in the middle of ther night with pain radiating from my left hip area and pray it goes away soon! I don't know about anyone else, but when the cancer reoccured in 2014, I went through a normal day of work and then developed pain in my abdomen and ended up in ER. Therefore, I must admit to having a little bit of a panic internally (I never worry anyone else unless I really need help). Every little ache and pain triggers a bit of, "is this it, are we progressing to the next level". I'm just hoping and praying it's all going to go away like most little aches and pains. I have a trip coming up and I just want to relax and have fun!
Otherwise, my treatment of fulvestrant and Kisqali continue to stabilize the cancer. This makes 6 months which is celebrated! Fatigue, joint pain, swelling from lymphodema, low immune system, and hip/pelvic pain is what I cope with daily.
Are symptoms of pain, fatigue, and abdominal stomach issues the symptoms for the typical decline? I would imagine so.
I stay very upbeat with my family and my friends. I can relate to some others who comment about others feeling they are so strong or asking them to talk with someone else that needs support. I have no problems doing that and feel useful (I just retired as a school counselor for 25 years so I have a bit of experience talking about tough things.) But, sharing my struggles and having others understand is especially hard because of my attitude and faith. I get the, "you look so good" comment often. No one would realize the symptoms I deal with or the heart felt weighty prayers spoken through the day. I guess to some extent, I wouldn't want it any other way. It allows me to live, go places with my husband, visit my kids, laugh with friends, without getting "stuck" on the hard part of this cancer. Plus, this cancer for me comes after a long line of trials- stroke @ 18 that paralyzed my right side, learned to walk, talk, and speak all over again, 4 open heart surgeries, ablations, pacemaker, and ovarian cancer in 02, reoccuring in 2014 to the fight now. I can't complain, I've been blessed, but it's a heavy load at times. That's why I was just trying to find someone with Low Grade Stage 4. 🙂
Thanks for listening.
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1 ReactionThe Avastin didn't stop the growth of the cancer. Just got an appointment at UCLA for a trial. I see them next Tuesday. Will update when I find out more and return home.
I hav eplied to Karen and Live Strong wants me to wait till the next session at the Y as I have fallen twice so omething is going on with sense of balance. Thanksforallthe time you spend monitoring all of this. I want to spend time Not on the computer. 🌞
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1 ReactionHi all,
@pat417, how are you doing with the Avastin maintenance?
@susu2, did you end up checking out the LiveStrong program?
@chowmama2, has your neuropathy subsided at all or is it permanent? I bet Karen would appreciate hearing from you here: https://connect.mayoclinic.org/discussion/neuropathy-11/
@leannn how are you doing?
Thank you for the inspiration and hope!
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1 ReactionNo, they started with the Taxol/carboplaten treatments, but may have been caused by the hysterectomy just before the chemo. They have gotten worse on this treatment plan. I had been using hormones up until several years prior to the hysterectomy. My Oncologist doesn't want me to use hormones and suggested a tylenol each night. Maybe gives just very slight relief. I'm scheduled to begin an Avastin maintenance plan in 3 weeks.