Post-concussion syndrome (PCS) & Healing

@whiteseld
I’m sorry to hear you are dealing with this condition. My young son (who is now a teen), had 2 concussions, one at 7 and the other at 8. The first was mild and the 2nd was moderate. He does have some residual effects from them (migraines, etc.) on top of his ADHD/anxiety.

Welcome to this group. This site is for others with similar experiences and conditions to share and support each other. There are not set meetings that are moderated.

Here is what AI suggests for your condition:

“Post-concussion syndrome (PCS) can be a challenging condition to manage, and finding the right support and treatment options is essential. Here are some treatment approaches and resources for support groups that may help:

### Treatment Options for Post-Concussion Syndrome

1. **Medical Management**:
- **Neurologists**: Specialists who can assess and manage symptoms related to concussions and PCS.
- **Physical Therapy**: Targeted exercises can help with balance, coordination, and vestibular issues.
- **Occupational Therapy**: Focuses on helping individuals return to daily activities and work.
- **Cognitive Behavioral Therapy (CBT)**: Can help address anxiety, depression, and cognitive difficulties associated with PCS.

2. **Symptom Management**:
- **Medications**: Depending on symptoms, doctors may prescribe medications for headaches, sleep disturbances, or mood issues.
- **Lifestyle Modifications**: Recommendations may include rest, gradual return to activities, and avoiding triggers that exacerbate symptoms.

3. **Rehabilitation Programs**: Some clinics offer specialized concussion rehabilitation programs that provide a multidisciplinary approach to treatment.

### Support Groups and Resources

1. **Brain Injury Association of America (BIAA)**: This organization provides resources, support groups, and information on brain injuries, including concussions and PCS. They have local chapters that may offer support groups.

2. **Local Support Groups**: Many communities have support groups for individuals with brain injuries. Check with local hospitals, rehabilitation centers, or community health organizations for information on available groups.

3. **Online Support Groups**:
- **Facebook Groups**: There are several private groups where individuals with PCS share experiences, coping strategies, and support.
- **Reddit**: Subreddits like r/concussion can provide a platform for sharing experiences and advice.

4. **Concussion Clinics**: Some specialized clinics focus on concussion management and may offer support groups or resources for individuals dealing with PCS.

5. **Mental Health Support**: Consider seeking support from mental health professionals who specialize in trauma or chronic illness, as they can provide coping strategies and emotional support.

### Conclusion

Managing post-concussion syndrome can be complex, but there are treatment options and support resources available. Connecting with healthcare professionals and support groups can provide valuable assistance and help you navigate the challenges associated with PCS. If you're looking for specific local resources, consider reaching out to healthcare providers or organizations dedicated to brain injury support.”

I'm wondering if anyone has experience with, or has learned about, a recurrence of PCS symptoms well after the initial injury and concussion and after what felt like a "full recovery."

I’m wondering about those with multiple concussions over a lifetime with a diagnosis of PCS whose effects are permanent.

PCS science and research are continuing, and more is being learned all the time.
Are you concerned about whether you may have it? Have you been evaluated by a neurologist?

I'm wondering about PCS myself. I had a retro sigmoid craniotomy 7 years ago- to remove an AN tumor. It left me with some balance issues, partial deafness, brain fog and fatigue. In April I fell and was diagnosed with a concussion. Now dealing with constant headaches- dull, usually top of head, intensified fatigue and very low moods etc... all, and more of which I understand is normal for brain concussion. I see an OT

As of late- I've notice an occasional stabbing pain in the left side of my head- which is the side of the brain surgery.
No one has suggested a neurologist. Am I over reacting to think seeing one would be a good idea? I'm not sure if I should go back to Mayo (where I had the surgery) or push for one in Mpls- where I live.
Feedback welcome and appreciated.