New Here: Dad has Stage 4 - What's next after 2 years?
My Dad was diagnosed in January of 2021 when he couldn't eat without food getting stuck in esophagus. Has spread to Lymph nodes, hip bone. Lost about 80 pounds fairly quickly. Doctor initially said that without Chemo life expectancy would be about 6-12 months…with Chemo 12-18 months. Here we are 26.5 months later !!
Side note: I am his caregiver and he lives with me and my family.
Surgery not an option, but started Chemo right away. Chemo has changed twice since progression and next week will be the 3rd cycle of new regimen.
Early last month he presented with ascites with a weight gain of 15 lbs. He was admitted and had fluid removed, which helped greatly.
His tumor marker had been consistent for months and then in February it jumped and then a change in chemo and it went down slightly in March. We will find out next week what the tumor marker is for April. I had asked the doctor what to expect in months to come and he said that it really depends on the tumor marker. If it goes down again, said he will most likely still be around in 6 months but if it goes up, then he will mostly likely not be around in 3 months.
I know there is no crystal ball for all this and every patient is different but I really want to know what to expect.
His voice has gotten worse, he has to clear his throat alot and he sounds like he has a frog in his throat all the time. That is fairly new in the last few months.
In the last 2 weeks he doesn't want to really leave the house and is not hungry, but does eat (very little). He started writing stuff down so that we know what to do when the time comes…
I am not sure what to make of all this and was wondering if any of of you may know what to expect at this point?
Any input is greatly appreciated.