New approved drug for pNETs

Posted by pavlina60 @pavlina60, 5 days ago

Good morning!
Yesterday I had a meeting with my oncologist to discuss the data from my last CT scan. I have been moved from scans every 3 mo the first year to every 4 mo the second and now am on 6 mo! Yay me :). Seems like Lanreotide/Somatouline is still working for me, scans showing stable disease, no new growth. Amd during the visit my very enthusiastic doctor shared a wonderfull news - FDA has approved a new ORAL drug for pNET patients who have previously been treated.
CABOMETYX® (cabozantinib) Patient Website https://share.google/k6P4TbdkKVD0O0u9Q
Thanks to science and some very smart chemists (colleagues
🙂 ) we have another tool in the toolbox!
Good luck to everyone on this journey!

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

zacharycat | @zacharycat | 4 days ago

Cabometyx (or cabozantinib) has been around since about 2010, recently approved for well-differentiated pNET and epNETs. Not sure that you would need it, as long as you are doing so well on lanreotide. There are many possible side-effects listed, in my case dizziness and dryness in the mouth along with a metallic taste.