Neuropathy with FOLFOX chemotherapy - Stage Three colon cancer

Posted by sueb4bs @sueb4bs, Oct 31, 2023

Brief question: NEUROPATHY : Large tumour removed in emergency surgery last of May 2023. Abig surgery. I am doing muy alto muy bajo as it was obstructing the bowel -- Live in Ecuador so everything related to CANCER IS OBSCURE, to put it as succinctly as I can!

Neuropathy conditions can be changeable and also highly individual. Do you experience neuropathy , how long, when and what might I expect? Muchas gracias desde Ecuador..

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

sueb4bs | @sueb4bs | Nov 10 6:51pm

In reply to @gbm "@sueb4bs As a supplement to this forum, submit your colorectal questions to an Artificial Intelligence (AI)..." + (show)

Thanks.

gbm | @gbm | Nov 10 8:30am

In reply to @sueb4bs "Thank you..." + (show)

@sueb4bs
As a supplement to this forum, submit your colorectal questions to an Artificial Intelligence (AI) site like:
https://copilot.microsoft.com/ or https://gemini.google.com/app.

Just a suggestion, as this has helped me immensely.

sueb4bs | @sueb4bs | Nov 9 3:42am

Thank you...

dnfjc | @dnfjc | Nov 8 4:20pm

In reply to @sueb4bs "@dnfjc Please tell us what is the rh 0.. name for "pregain"?" + (show)

@sueb4bs I made a typo. It’s pregablin.

sueb4bs | @sueb4bs | Nov 8 3:44pm

In reply to @dnfjc "@sundancerdb78 I take 150 pregain too. Have had 10chemos now of folfox. Neuropathy seems to be..." + (show)

@dnfjc Please tell us what is the rh 0.. name for "pregain"?

sundancerdb78 | @sundancerdb78 | Nov 8 12:16pm

In reply to @dnfjc "@sundancerdb78 I take 150 pregain too. Have had 10chemos now of folfox. Neuropathy seems to be..." + (show)

@dnfjc WILL KEEP YOU POSTED! JUST STARTED IT THE BEGINING OF THIS WEEK!
RB

dnfjc | @dnfjc | Nov 4 3:04pm

In reply to @sundancerdb78 "I have just increased my pregabalin to 150mg. Was at 100mg and felt little relief of..." + (show)

@sundancerdb78 I take 150 pregain too. Have had 10chemos now of folfox. Neuropathy seems to be getting more with each chemo but not painful just really annoying. Hope the increase helps you.

sundancerdb78 | @sundancerdb78 | Nov 3 11:38am

I have just increased my pregabalin to 150mg. Was at 100mg and felt little relief of my neuropathy pain IN MY FEET!
Gets very frustrating living with the pain 24/71
BLESS YOU ALL
RB

sueb4bs | @sueb4bs | Nov 2 5:50am

In reply to @dnfjc "@sueb4bs I take 150 mg of pregabalin a day. I started taking it about 10 years..." + (show)

@dnfjc I send you many thanks for your helpful remarks that I read just now.. I am going to try pregabalin again . What lessens the dizziness and chronic imbalance issues... I have.. anyone have ideas on that?
I wish you improving health and thanks again.

dnfjc | @dnfjc | Nov 1 1:44pm

In reply to @sueb4bs "Can we share our recent symptoms these days here @dalc ? Your comments were helpful to..." + (show)

@sueb4bs I take 150 mg of pregabalin a day. I started taking it about 10 years ago with my back and hip pain. I think that it helps for your nerve pain. I am on my 20th folfox treatment for appendix cancer now called colorectal. I have metastasis in the peritoneal omentum now. I too have neuropathy but not bad. Cold sensitivity and mucositis tongue and throat the worst symptoms. I wish you well. And hope you continue to be healthy overall.