Has anyone implanted electro stimulation to alleviate neuropathy pain?

Posted by blowerk1216 @blowerk1216, 2 days ago

Has anyone had electro stimulation implanted to alleviate neuropathy pain?

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@blowerk1216 Not sure what you mean by implanted electro stimulation. Sounds like a spinal cord stimulator. I had one implanted back in 2018. I worked quite well for about two and a half years when it suddenly stopped working. Have a blessed day.

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Yes that’s what I meant, did you not get any follow up after it stopped working?

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I had an scs implant in 2017, and had a wonderful year. The second year wasn't as good, but it was helpful. Year 3, I had to have the stimulator calibrated every few months. Since then, I can't really tell if it's doing anything, but I have left it in. Having it removed would be problematic. It would mean no more MRIs.

Jim

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Profile picture for blowerk1216 @blowerk1216

Yes that’s what I meant, did you not get any follow up after it stopped working?

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@blowerk1216 Yes, I had another company's battery connected to the Medtronic paddle lead. It did not help. That's what led them to think that the problem was with the lead.

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Profile picture for Jim, Volunteer Mentor @jimhd

I had an scs implant in 2017, and had a wonderful year. The second year wasn't as good, but it was helpful. Year 3, I had to have the stimulator calibrated every few months. Since then, I can't really tell if it's doing anything, but I have left it in. Having it removed would be problematic. It would mean no more MRIs.

Jim

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@jimhd That's not good, Jim. I had the Medtronic scs implanted in 2018. It worked well for two and a half years. It just stopped working one day. I had the battery replaced with another company's battery. No good. That's what led them to believe that the paddle lead had shorted out. I had the whole thing removed back in 2024. Currently, I have a pain pump which has not ever given me any relief. Ah, the wonder of modern medicine... I wonder if and when I will ever get some help. LOL.

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Profile picture for heisenberg34 @heisenberg34

@jimhd That's not good, Jim. I had the Medtronic scs implanted in 2018. It worked well for two and a half years. It just stopped working one day. I had the battery replaced with another company's battery. No good. That's what led them to believe that the paddle lead had shorted out. I had the whole thing removed back in 2024. Currently, I have a pain pump which has not ever given me any relief. Ah, the wonder of modern medicine... I wonder if and when I will ever get some help. LOL.

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@heisenberg34 that’s a sad tale!

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Profile picture for blowerk1216 @blowerk1216

@heisenberg34 that’s a sad tale!

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@blowerk1216 Indeed! If it weren't so sad, it would be hilarious.

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Profile picture for heisenberg34 @heisenberg34

@blowerk1216 Indeed! If it weren't so sad, it would be hilarious.

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@heisenberg34 I am being tested for the applicability of an SCS unit in a few days. What do you suggest that I look out for?

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Sounds like you are getting the trial. The top rated SCS is Boston Scientific’s Wave writer (rider?). They will carefully insert the lead(s) into the intrathecal space. Then the lead will get connected to an external battery pack. The goal is to get at least 50% pain reduction. I guess you’ll wear it for a couple of days. Just be careful to not bend very much. No reaching up over your head. You don’t want to move that lead in your back. Make sure you are getting the pain relief you want. Not likely to get 100% relit. I went from about a 7 to about a 2/3.
Wish you well.

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