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Neurology dept. in MN - Conveying complexity of case on questionnaire
Hello, I have a young adult daughter with an extremely complex neuropsychiatric/neurological/developmental/medical history that would be incredibly challenging to sum up in the medical questionnaire where it asks "what is the main medical symptom"? This is a complex constellation of "symptoms" not just a "main symptom."
My daughter's neurologist has submitted a referral and they subsequently emailed the questionnaire.
I was told by Mayo they will not review any documentation or photos/videos until they have looked at the questionnaire to determine if my daughter would be a candidate as a patient and only at that point will they ask for documentation, etc.
Every doctor who has seen my daughter has concurred that without reviewing her documentation, especially a short video, that it is extremely difficult to sum up her complex history, which has led us to this juncture of being referred to Mayo.
She will be 27 in a few months. Time is just not on her side any more with getting to the bottom of what's going on and to get appropriate recommendations for diagnostics, treatments, etc.
If anyone can suggest how to best approach this I would greatly appreciate the guidance. Thanks!
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They are difficult , I called for a second opinion and they told me there was nothing available. I wonder why is advertise in the website.
@ellie2902
Understand your frustration with forms when your just trying to get your daughter help.
Would your daughter 's provider who did referral her be able to help with questionnaire? Or, at least give you the current medical diagnosis to put on form.
The questionnaire is trying to determine what dept should review her medical records. Even though you know it should be neurology, sometimes the form is generic. Is there a way to put into words what the video shows?
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8 ReactionsThanks, Laurie! The doctor is a neurologist and she did put the "possible" diagnosis on the referral she sent in so they would already know this is for Neurology, that wouldn't be a question given her referral. And no it is virtually impossible to describe the video in words. Yes I could write a description but again every single doctor/professional who has seen the video whether it is before or after looking at documentation has strongly concurred that there is no way one could possibly describe in words. It's a really short video (like 7 minutes) so it's not like I am requesting something that would take up time.
@ellie2902
Hopefully the referral will be most important info. Seeing you have to put something in form, do you have access to providers notes online? Maybe there are words in notes that you can copy.
If not, use your best judgement, most important is to put something and submit. If I was in your situation, I might enter something like:
Neurology - "enter diagnose" Complex history / diagnosis, can provide a 7 min video if requested to best show symptoms. Not possible to describe in words. "
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1 ReactionThanks! I was thinking of doing something like that. I know that the neurologist also emphasized on her referral the importance of watching the video but I'll just do my best on the questionnaire and hope for the best
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