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Neuroendocrine Tumor
I have been diagnosed with a neuroendocrine tumor 6 months ago. It started in my upper small bowl and had spread into lymph nodes. The tumor was surgically removed. However, I have so many questions about the fact that it had already spread to my lymph system. Does that mean that it could spread using my lymph system?
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Good morning, my primary is also my small intestine, and it spread to my liver. Diagnosed about 3 years ago, started monthly injection.. There are so many different stories and strategies on this web site I have read.. All unique to the persons overall medical condition.. I haven’t had any surgeries and the tumors have not spread.. The most important thing is that you are seeing a Neuroendocrine specialist.. There are different types of procedure and treatments for this type of cancer.. Hope you get the answers you are seeking..
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2 Reactions@flowerpower: Hi there! My diagnosis is like @vinnie694 at about the same time, so won’t repeat it. I concur with his advice to you.
Our type of NET cancer is different from other cancers in many ways: we usually have very slow growing tumors, we can have “spread” to any endocrine cell at microscopic level (imagine little bitty seeds released into bloodstream), we are lucky to have many treatments that shrink and control growth of tumors, and we have NET specialists who understand how our cancer cells react differently to be able to treat them with the best possible treatment; plus research is working on more options to give us in the future!
We also have Mayo Connect peers who have personal experience with what you are having! Thinking about the positives really helps, but we NET patients understand the shock and gut renching fear that this diagnosis delivers too! The more you research and learn about Neuroendocrine Tumor Carcinoid cancer (NET/NEC) the better you will adjust and make decisions. This HUG’s for YOU!
Best health… dbamos1945