neuro endocrine tumors in small bowel, omentum, on ovaries, appendix
caregiver for my 79 year old godmother who was diagnosed with neuro endocrine tumors today. She went in for bowel stricture to have a bowel resection 2 weeks ago and was closed up with a bowel loop instead. they told us she has 4 tumors in her small bowel which were causing her eating related pain symptoms. in the last month before surgery, the food related pain increased and has now progressed to the point where she has baseline pain all the time that is not related to surgical pain, of which she has had very little. We are told we will get followup with an oncologist in 3 weeks but I am concerned about her existing 3 weeks with her lack of food intake. we have tried protein drinks, yogurts, pureed meat, nothing we have found so far is tolerable without considerable pain medication, which surgery is unwilling to prescribe more than a few days worth. main concern: if this pain is tumor progression, and is progressing quickly, how long was it from first oncology visit, until scans/ start of treatment/ tumor shrinkage? We were told surgery will not be an option for her tumors. With her symptoms, we are considering possible hospice. Any insights? Currently working with VA/Shands in Gainesville FL
Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.
Connect
