Need hope: Neuropathy from chemo

I’ve barely begun reading
all the comments/info about neuropathy and have to stop-. Why? Because it upsets me terribly to read about this! My husband was given a trial drug that totally cut him off at the knees. Neither onco’s ever questioned all his side effects! The most we were ever told is: We know neuropathy is a side effect. In the meantime my husband was left wondering what on earth was going on with him?! The SE’s were debilitating! He never complained… As I read, I can pin together the fact: the drugs gave him horrid neuropathy! To quote to husband, ‘‘Everything hurts.’ And yet NO help was offered. No suggestions were ever made!!! And now I learn there ARE things to help! There are some onco’s at Mayo Clinic who should be ashamed of their lack of care, questioning and help. Totally ashamed-. All I can say to this is: Thank you for those of you who share experiences and offer help. “Karma” will take care of the rest…

I am happy to mention three years post treatment that the neuropathy in my feet has improved so very much that I have been able to get off gabapentin. I hope that his helps someone feeling like things won’t get better, they actually can. I am glad that I did manage the pain so that I could continue walking throughout treatment. I do believe that walking, moving stretching are so important for recovery. Best to you all.

I take it only when having symptoms. Hope it works for you! I was blown away at how fast it worked for me. The power of plants!!!!

Kali Phosphoricum- Homeopathy remedy takes time for it to work and take it daily until symptoms improve.
Check out the link below
https://www.drhomeo.com/?s=neuropathy
My doctor asked me to wait until 6 months to see if my Neuropathy symptoms will go down before taking any Meds. I bought this homeopathic medicine two months ago and will start taking this tomorrow. I will share my results in a few months or earlier. Good news is Homeopathic medicines have no side effects.

I ordered from Amazon yesterday! Do you take it every day, or just when symptoms are present?

Neuropathy

What is this taken for? I have neuropathy in my feet and numbness.

Two words: Kali Phosphoricum (Boiron homeopathic remedy). Available on Amazon or at any health food store. It works in about 10 minutes. Not joking! I looked up drug interactions with all chrmo drugs I am on (5-FU, Oxaliplatin, Irinotecan & Leucovorin). No adverse effects on either of the adverse drug effects website.

Try it! It works wonders! Dissolve 2 of the tasteless pellets under your tongue. Thank me later!

You can request to have the Oxaliplatin reduced. My oncologist agreed to do that for me once I started experiencing neuropathy (bad tingling in my fingers). I am a caterer & need to have use of my hands without this sensation. I cannot cut or touch anything cold. They are reducing it to 80% this week. They have to find what works for you. There are no bad results from cutting the dose. It has still proven to be effective. It’s about your quality of life!

It depends a lot on what chemo drugs are in her regimen. With my first round of FolFox 5F/U, they were giving me Dexamethasone steroids as part of the regimen. My neuropathy got so bad in my hands and feet I was almost debilitated. Turns out, the steroid can cause permanent to semi-permanent neuropathy. Some of what I'm going through will be lifelong and will never recover...I've lost all feeling in my fingertips and the soles of my feet have been on fire for nearly two years now.
I have since demanded all steroids be removed from my regimen...to the chagrin of my oncologist, but it hasn't gotten worse, and, in fact, the treatments are actually easier without the steroids.
You'll have to talk to your Doctor and/or care team to find out for sure, but there are definitely side effects that can be permanent...oncologists seem to not want to discuss these possibilities, or they choose to minimize the potentially permanent impact some of these side effects can have on a person.
My first year I worked with an oncologist that didn't seem to want to explain anything. I, finally, on the advice of a friend, got a second opinion, and now have an oncologist and care team that listens and is willing to adjust my meds as needed to reduce some of the more serious side effects. Do not be afraid to keep pushing your mom's oncologist to make adjustments to make her more comfortable...