How did small fiber neuropathy present itself for you? My story

Posted by justin1982 @justin1982, 2 days ago

hello all. i was officially diagnosed last week with sfn. it all started nov. 2023. it started with leg pain and heart palpitations. then progressed to an electrical feeling running through my body. then the twitching started. once i twitched, the electrical feeling would go away for a few minutes then it would happen all over again. i had a 9 month period where i just had horrible heart palpitations and leg pain that was worse when walking. the cardiologist did all the tests. everything came back good except for trace valvular regurgitation. just very recently i started having the classic burning tingle in my feet. mostly its pain in my legs and toes as well as my arms and fingers. so thats my story.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Justin McClanahan, Moderator | @JustinMcClanahan | 1 day ago

Hello @justin1982, welcome to Mayo Clinic Connect!

You may notice I updated your title to help reflect your story a bit more. You may also be interested in checking out a discussion similar to yours titled:

"Member Neuropathy Journey Stories: What's Yours?"
- https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/

@johnbishop started the discussion and many members have shared their journey with neuropathy in that discussion. @webdx2, @me1229, @stacy4man, and @marietter have all discussed small fiber neuropathy as well and may share their experience with getting diagnosed and how it manifested for them as well.

@justin1982, now that you have been officially diagnosed, have you and provider discussed steps to move forward?

Mariette R. | @marietter | 1 day ago

My small fiber neuropathy was caused by my lumbar spine stenosis . I have agreed with recommendation from my doctor, be treated with my implanted NEVRO spinal cord stimulator and if need be in the future a M.I.L.D. (Minimally invasive lumbar decompression) for the paresthesia (nerve pain ) if it worsens . Treating the other resulting symptoms on an as needed basis. I’m grateful to avoid spine surgery and hardware .