My Diabetes 2 Backwards Numbers---Anyone else?

Posted by Carol, Volunteer Mentor @retiredteacher, May 10, 2017

I was diagnosed one year ago and as an educator I have researched and read everything I could find about diabetes. I have never been sickly or had a disease before this reared its ugly head. I have the Mayo book with explanation and information. My PCP doesn’t do anything with diabetes so I made an appointment with an endocrinologist. My A1c was 6.0 and all testing profiles were normal except triglycerides. I do not take any diabetes medicines. I was not an exercise person, but I started exercising, using a treadmill. My situation is pretty good. I changed my diet to conform as much as possible. I don’t eat fish, so chicken is my main meat. I eat beef once a week. Mostly I eat vegetables. Fruits seem to spike my blood numbers. I have experimented with some different food combinations; some have worked; some haven’t.
My main problem is that my morning number before breakfast is often high (in 140’s or 150’s). and then after lunch, it will be in range or lower (100 to 120).
Last night before I went to bed my blood was 103. This morning it was 154. I don’t understand why numbers would go up during the night. It always comes down during the day. This is backwards for what my Endo. told me. He said it should be under 120 in A.M. and below 180 three hours after lunch. I also have not lost weight even though I exercise daily. I think I am backwards, but I don’t know why. I don’t see Endo. for another month so don’t know what all this up and down is doing to my profile numbers and don’t know how to change it.

Thanks to anyone else who has had this situation and can help.

retiredteacher

@colleenyoung

Hi @retiredteacher, welcome to Connect.
Good for you for making healthy lifestyle changes to your diet and exercise. Not easy to do. And then it must be a bit frustrating to have perplexing numbers; high in the morning and getting lower throughout the day.

I’d like to introduce you to few other members who have type 2 diabetes. I’m hoping @ihatediabetes @nancywhite @minda77 @thawyzard @kennethn1971 @amy75 @alfredt and @marb might be able to shed some light on your situation or at least share their experiences with managing sugar levels and number readings.

What foods have been helping to control your numbers and which ones do you have to avoid?

Jump to this post

@retiredteacher Since you are leading a rather solitary life, I am glad that you have connected with us at Mayo Clinic Connect. I hope that you can build confidence in this online community that might help you to reach out personally to others in your own neighborhood. (By the way, you mention, “I have this deadly disease.” Are you referring to diabetes or something else?) While diabetes is a serious disorder, most doctors and patients with diabetes would consider it controllable with diet, exercise and medicine. Best wishes and keep in touch with us. I wish you peace, happiness and joy as you connect with others. Teresa

REPLY
@colleenyoung

Hi @retiredteacher, welcome to Connect.
Good for you for making healthy lifestyle changes to your diet and exercise. Not easy to do. And then it must be a bit frustrating to have perplexing numbers; high in the morning and getting lower throughout the day.

I’d like to introduce you to few other members who have type 2 diabetes. I’m hoping @ihatediabetes @nancywhite @minda77 @thawyzard @kennethn1971 @amy75 @alfredt and @marb might be able to shed some light on your situation or at least share their experiences with managing sugar levels and number readings.

What foods have been helping to control your numbers and which ones do you have to avoid?

Jump to this post

Hi Teresa,
Thanks for your note. I have never lacked confidence; in fact, I was a control freak and usually in charge! That was when I was teaching. I remained outgoing until I had to walk away from teaching. I will never get over that, and the part of me that died is a part I will mourn until I die. I do believe diabetes is a deadly disease because it affects every part of the body in a bad way. They may not list diabetes as cause of death on the certificate, but it’s the underlying reason for kidney failure, heart attacks, pancreas, liver, teeth, hearing, eye problems, and everything else. So, I think it is a really dangerous, deadly disease that kills. I see ads for different meds on TV and they often give numbers for those who have this disease and numbers who will die. That’s why I read and research constantly. I also occasionally experiment with different foods because I am so limited for what works that I really need some other choices. So far I have found nothing but chicken and mostly the few green vegetables I can get where we live. I have no idea who lives in my neighborhood. I really am not interested in knowing them. They go to work and have their own activities. My connection is through my computer and emails. I do not do any social media like Face Book. I am connected to this forum and to one other one. That’s enough for now.
I appreciate your comments and suggestions.
retiredteacher

REPLY

I hope all of you have had a good week. I have had better morning numbers. I have analyzed my evening eating patterns to try to see what is not allowing my number to be lower in the morning. Afternoon numbers have been 100 or lower all week. So if I had my afternoon numbers in the morning and my morning numbers in the afternoon, I would be well within the good range. Unfortunately, it just doesn’t work that way for backwards me. I have increased my exercise time but still am not able to do high power exercises. I am not losing weight. That puzzles me because with eating right and exercising, I should lose at least a pound or two a week. Not sure why that’s not happening. All in all I am pleased with this week. I hope others have had success in all/some areas this week too.

Have a good weekend, everybody..
retiredteacher

REPLY
@retiredteacher

Thanks for your positive response, but as I’ve been told over and over in the year since I was diagnosed, we are all different. I live in the middle of nowhere. I do not drive because of panic attacks, and I have no friends. So going to a gym or getting to a pool are not in the plan because of distance. I have a close spiritual bond with my Christianity, so that brings me peace when I get depressed. There isn’t a coffee shop for miles. My one goal was to teach; it’s all I ever wanted to do, and I did it for 42 years until I had to retire. That day was my first death. I cannot explain the passion I had for teaching. There is nothing else that could possibly replace it. I have read and researched diabetes for hours on end and resent the time I have to spend that way. I would never get out of the house to walk because it is rural and I consider it dangerous. I eat basically the same thing every day, and my husband does too since I never cooked until I got this disease. I know that I’ll never get well; diabetes will kill me. I never considered the Golden Age of Retirement and I despise being a senior citizen too. So, Just about every day is the same for me.
Again, I appreciate your response.

retiredteacher

Jump to this post

Hello Retired Teacher! I can tell you from experience that panic attacks will cause havoc with your sugar levels. I have risen and then dropped 150 points during panic attacks, on several occasions. I take medicine for them occasionally, but some of those med's can cause a lot of weight gain. I was not a teacher, but my story is like yours–my driving is limited because of the anxiety attacks, and I have to depend on my wife to drive me around. Because she works over 60 hours a week, I do not get to leave my house too often. This is how I cope with my situation: I walk on the treadmill 5 or 6 days a week, I eat the best I possibly can (in spite of loving chocolate) and I pray and read my bible daily. I also like like old time TV shows and movies–love comedies mostly, and mysteries. And then I try to leave all the rest of my worries and fears with the Lord! I don't always succeed, some days I am downright discouraged. Please know that you are not alone, I struggle daily too. May God Bless in your struggle!

REPLY
@hopeful33250

@retiredteacher Since you are leading a rather solitary life, I am glad that you have connected with us at Mayo Clinic Connect. I hope that you can build confidence in this online community that might help you to reach out personally to others in your own neighborhood. (By the way, you mention, “I have this deadly disease.” Are you referring to diabetes or something else?) While diabetes is a serious disorder, most doctors and patients with diabetes would consider it controllable with diet, exercise and medicine. Best wishes and keep in touch with us. I wish you peace, happiness and joy as you connect with others. Teresa

Jump to this post

@retiredteacher One of the problems we have with diabetes, especially type 2, is that we really do not know everything that can cause it. My numbers run all over the place like a bunch of toddlers playing jacks. Everything I can put a name to that can be gauged is impacted and and impacts my diabetes, and behind that to my Amyloidosis, Gelsolin. I can pinch myself down to eating nothing, and taking big doses of insulin and I still get readings well over 300 and under 60 in a few hours. My pancreomegaly is growing. Anyway, my point is that with a lot of this all we can do is keep trying, and taking meds, and exercising, and whatever, knowing that some place we are missing something which we probably do not know about it yet. I have a room full of experts telling me that I am doing it all wrong, but they disagree with each other on what I should change. I can not afford to change anything else except to quit taking meds.

REPLY
@chocolate5lover

Hello Retired Teacher! I can tell you from experience that panic attacks will cause havoc with your sugar levels. I have risen and then dropped 150 points during panic attacks, on several occasions. I take medicine for them occasionally, but some of those med's can cause a lot of weight gain. I was not a teacher, but my story is like yours–my driving is limited because of the anxiety attacks, and I have to depend on my wife to drive me around. Because she works over 60 hours a week, I do not get to leave my house too often. This is how I cope with my situation: I walk on the treadmill 5 or 6 days a week, I eat the best I possibly can (in spite of loving chocolate) and I pray and read my bible daily. I also like like old time TV shows and movies–love comedies mostly, and mysteries. And then I try to leave all the rest of my worries and fears with the Lord! I don't always succeed, some days I am downright discouraged. Please know that you are not alone, I struggle daily too. May God Bless in your struggle!

Jump to this post

Hi @chocolate5lover. I looked at the date I first posted (over a year ago). Now, in 2018, almost 2 1/2 years since my diagnosis, I can say that things have changed. Someone needs to explain as much as possible to new diabetics what to expect; that would definitely help. I wonder about people who are told they have this disease but have no idea what to do for themselves. I suppose they get worse and just take the doctors' word. I am stubborn and a control freak, so I don't take anybody's word as the be-all and end-all. I research and read and listen to the dr. but I decide for myself what works for me.
My husband and I are both retired, and he is not in excellent health. We were talking over the weekend that we don't have horrid health problems that keep us in and out of the hospital. There are things we cannot do, but we don't dwell on them. I eat what I know works for me; but may not work for anyone else. I check my blood twice a day because I have to know that it's staying in range. I try not to get discouraged but think how lucky I am. There are many diseases that are much more limiting than diabetes. I had such a wonderful life until this reared its ugly head, and now it has been a new challenge. I also give much over to the Good Lord. My husband does too. We are survivors together as we have been for the 52 years we have been married. One thing I do not do is exercise. It has been a long 2 1/2 years, and I just hope to continue to improve. By the way I do not have to take any meds. 🙂
Thanks for your response.
retiredteacher

REPLY
@oldkarl

@retiredteacher One of the problems we have with diabetes, especially type 2, is that we really do not know everything that can cause it. My numbers run all over the place like a bunch of toddlers playing jacks. Everything I can put a name to that can be gauged is impacted and and impacts my diabetes, and behind that to my Amyloidosis, Gelsolin. I can pinch myself down to eating nothing, and taking big doses of insulin and I still get readings well over 300 and under 60 in a few hours. My pancreomegaly is growing. Anyway, my point is that with a lot of this all we can do is keep trying, and taking meds, and exercising, and whatever, knowing that some place we are missing something which we probably do not know about it yet. I have a room full of experts telling me that I am doing it all wrong, but they disagree with each other on what I should change. I can not afford to change anything else except to quit taking meds.

Jump to this post

Hi @oldkarl. You are right to say that there are many things that happen that we can't explain. Even the doctors have no answers. I have my numbers under control for me. I have numbers in the morning anywhere from 120 to 130's. I've asked my endo; he says it's not a problem at my age. Then I have lunch and after, my numbers are under 100 or maybe 104ish. That's good. My A1c was 6.1 when I was diagnosed. It moved quickly to 6.0, then 5.9 and it's back to 6.0 now. So I hang around the same numbers that seem to work for me. My endo calls me a controlled diabetic; that is to say I am not severe but I have to be careful or I could fall into bad numbers easily. You are so right—just keep on keeping on and not abusing ourselves with what we know is wrong. I take no meds and I do not exercise beyond housework and grocery shopping. That's enough for me. I sleep well and feel good most of the time. I spend most of my time on the computer and reading and love to take naps. My husband is the same way. You are right, too, about the "experts" disagreeing, so I am my own dr. and do what I know works for me and my body dealing with this disease. When I go to the endo (2X a year) he looks at me like, "Why are you here?" I don't have problems or illnesses other than diabetes, have never been sickly, so I feel very fortunate.
Glad to hear from you and good luck with your numbers.
retirednumbers

REPLY
@chocolate5lover

Hello Retired Teacher! I can tell you from experience that panic attacks will cause havoc with your sugar levels. I have risen and then dropped 150 points during panic attacks, on several occasions. I take medicine for them occasionally, but some of those med's can cause a lot of weight gain. I was not a teacher, but my story is like yours–my driving is limited because of the anxiety attacks, and I have to depend on my wife to drive me around. Because she works over 60 hours a week, I do not get to leave my house too often. This is how I cope with my situation: I walk on the treadmill 5 or 6 days a week, I eat the best I possibly can (in spite of loving chocolate) and I pray and read my bible daily. I also like like old time TV shows and movies–love comedies mostly, and mysteries. And then I try to leave all the rest of my worries and fears with the Lord! I don't always succeed, some days I am downright discouraged. Please know that you are not alone, I struggle daily too. May God Bless in your struggle!

Jump to this post

@chocolate5lover If you like dark chocolate (at least 70 – 72%), that's not bad. It really does not have that much sugar and/or carbs. I generally have a piece every morning after breakfast.
JK

REPLY
@retiredteacher

Hi @chocolate5lover. I looked at the date I first posted (over a year ago). Now, in 2018, almost 2 1/2 years since my diagnosis, I can say that things have changed. Someone needs to explain as much as possible to new diabetics what to expect; that would definitely help. I wonder about people who are told they have this disease but have no idea what to do for themselves. I suppose they get worse and just take the doctors' word. I am stubborn and a control freak, so I don't take anybody's word as the be-all and end-all. I research and read and listen to the dr. but I decide for myself what works for me.
My husband and I are both retired, and he is not in excellent health. We were talking over the weekend that we don't have horrid health problems that keep us in and out of the hospital. There are things we cannot do, but we don't dwell on them. I eat what I know works for me; but may not work for anyone else. I check my blood twice a day because I have to know that it's staying in range. I try not to get discouraged but think how lucky I am. There are many diseases that are much more limiting than diabetes. I had such a wonderful life until this reared its ugly head, and now it has been a new challenge. I also give much over to the Good Lord. My husband does too. We are survivors together as we have been for the 52 years we have been married. One thing I do not do is exercise. It has been a long 2 1/2 years, and I just hope to continue to improve. By the way I do not have to take any meds. 🙂
Thanks for your response.
retiredteacher

Jump to this post

Wow! I am so happy for you! You "sound" like you are doing much better now. Keep up the good work!

REPLY

@chocolate5lover. The tone of what I write is the way I am. I am often too frank. My mother used to remind me to be soft and sweet, like a good Southern girl should be, but my daddy always said to tell the truth—good or bad, and I would not have to remember any lies. So I always have said exactly what I feel and know, even when it is not so pleasant. There's no point in kidding myself or anyone else. My husband is as honest as the day is long also, so we have never lied to each other or to anyone else. I am doing better because I researched and read and found out for myself all the things the doctors didn't tell me. My husband helped in the search and together (as always) we have a handle on this disease. I would wish everyone the success I have had. Maybe it's understanding and accepting, but I have not been sick with anything, not even a cold, since I was told I have diabetes 2. But, as I said, I was never a sickly person BD (before diabetes), so being sick is not part of who I am. Some people have everything wrong with them. I am fortunate to be a healthy Senior citizen. As a teacher (retired after 42 years) I still adhere to a routine and find that it keeps me well.
Good health to you.

retiredteacher

REPLY
@retiredteacher

I eat chicken breast (oven baked) three or four days a week or eat vegetarian. One day a week I may have lean beef. All legal green vegetables work magic. I do not eat legumes. I do not eat fruits, except a few blueberries; others shoot blood up off the chart. I eat one piece of diet dry wheat toast for breakfast. Avoid all other breads. Cannot eat cereals, oatmeal and the like. No pasta of any kind. I cannot eat fish. I’ve tried other things, but always see the numbers rise. I eat nothing fried. I drink water. I do not have dairy unless it is fat free cheese. My diet is very limited, so I try to add something that should be diet and then again it doesn’t work.
Three hours after lunch (all veggies) my blood was 90. In the morning, it will be higher, as is the norm for me. No desserts, no delicious anything. I have also exercised twenty minutes today. That’s painful for me. I am 73 years old and have arthritis.
Today my A.M reading was 145 and 90 after lunch. That is good, but in the morning, it will probably be back in the high range again. Last night after supper it was 102. That makes no sense to me. I have been reading and researching all year, but I still cannot find this type of behavior. I had no idea I had diabetes when informed a year ago, and as always healthy, it really has hit me like a ton of bricks. I am not taking any medicine. I am determined to control this monster with diet and exercise.
Thanks for your response.

retiredteacher

Jump to this post

Your sugars are higher in the morning even when you do not eat because your liver is releasing glycogen stores because it thinks you need more energy. Some people recommend a small snack at bedtime (like a couple crackers with a little bit of cheese). It is not clear what controls or triggers this. It seems to me that when I eat more healthy my morning blood sugars are better… but not always. It seems you are doing very well though!

Liked by toranut97

REPLY
Please login or register to post a reply.