My biopsy is scheduled soon on my upper right thigh (sarcoma)
Since cancers have been in my family and the look on the doctors face , says it all .. I am already assuming a sarcoma in my upper thigh . Of course I do not like what I read and have been emotional since my evaluation yesterday .. Has anyone had a sarcoma removed in upper thigh ? I like to know what I am in for moving forward . Please respond .. I can deal with a lot being a NYC kid at heart , my 10 year old boy is my biggest concern . This part of life is difficult . My father passed away when I was 27 of prostrate . I am now , Same age group as him and now it’s my turn .. A different event yet in the same ball park .. . Can people survive a long time getting these sarcomas removed ? I never thought I would be reaching out …. I just know something is not right …. I know my body . God Bless everyone here .. I get it …
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So sorry to hear this! Can't they just remove it with surgery? You need to do what you're most comfortable with of course. You just got to take each day one step at a time. I'm shocked that that's what it was!! I'm thinking of you and your family!
Jen , thank you … I just left a phone call with my main doctors nurse … If this was January or February I be ok with chemo or end of august … .. these are my very busy months . So I am concerned with providing financially for my family , plus I have a 10 year old soon to be 11 , a party coming up ,, baseball season full blown , and it’s summer .. So the consideration of radiation should not be tossed under the table … that will not be easy either … yet 30 minutes a day 5 days a week I can deal with … for 5 weeks …. I mean , why can’t we just see if that works , Years ago they probably would have just cut this out already .. hit or miss … .. We still might need chemo also …. Yet this gives me more time to plan … leaves me some where in July … And what if radiation works right now and can be removed afterwards .. … idk … yet Seems to me no one really knows for sure 100 percent ….. I understand doctors are not gods … I get all that … I am in a good position right now …. We all know anything can change over night … maybe cells have spread already … there are No guarantees.. .. yet I do like controlling my treatment right at this moment … You are the best …
@rond306 Of course you need to do what you feel is best for you. Wishing you the best outcome, that this will all be behind you soon!
Of course have the best onocologist ortho .. thanks for concerns … I will have to reach into their portal … Cancer is a strange cell animal .. we did heart and lung ultrasound yesterday ,, listen we have done everything … The first plan was radiation , To change to chemo right now , A) I am not ready to undergo such a treatment with many side effects and many pills for heart , kidney , nausea and urination, total hair loss and nails …. On my way back from
NYC It sunk in .. Aggressive treatment right now for a thigh tumor is a bit much … organs seem fine …. If in fact cells leaked out already , this is not a savior treatment .. hard on me and my family …. From the get go radiation 5 times a week for 5 weeks made sense … chemo is 50/50 also … Let’s see if radiation can shrink it , which was our first plan … chemo can cause more cancer also … And see after a few weeks if in fact this reduces size …. I think we said 11 inches … but so what … it’s on my upper thigh …very accessible . Through the years I have read 10 -20 lb tumors removed … I have to go by my gut and not destroy my life at the moment . I need to work and at least with radiation gives me time to sort out the future .. don’t get me wrong, initially I was all for it .. maybe still an important option … To kill all cells in my body is a huge undertaking for my family also … just spoke to nurse .. we will speak again on Friday
@rond306 I am sorry to hear it is a sarcoma instead of a lipoma. One of my sons fought a very rare soft tissue sarcoma. Are you seeing a sarcoma specialist? If you are in NYC, MSK has sarcoma specialists. I am not a doctor, but shrinking the tumor with chemo before surgery does make sense just in case there has been microscopic spread to anywhere else in your body. Radiation is targeted to a specific area, as is surgery. Even if they took your leg right now it would not prevent or treat the possibility of spread that happened prior to the surgery. If they can shrink it first, surgery may be smaller and easier to remove. What type of sarcoma is it? Did they give you a stage? It is important to have a team that you trust and are working together on the best plan of action. If they find chemo is not working to shrink it, they can always jump to surgery or radiation. If they say aggressive treatment is necessary I would believe them, as that is typically for Sarcoma’s. You can do this! I know you will fight this with all you have to be there for your son and family!
Sarcoma tumor . As I figured from the get go .. I was emotional for almost a week . It was nice the positive feedback here ., Then decided to get aggressive and get on the doctors . So now we are on which treatment first . So doc did tell me radiation . Yet I seen the chemo doctor today and he felt very aggressive to treat with chemo , Easy for him to say and he thought I could handle it and I probably could . … Now I am freakin confused …. Chemo from what explained is much more hard on the body overall . If radiation can shrink this tumor and contain it , Why would I elect for the more difficult treatment first .. after doing more chest ultrasound and heart . When I walked out I said they both shrink they both contain , You still have a chance with chemo of it spreading …as you do with radiation … if they want to cut the leg instead of going through all of this uncertainty, I would not be happy , yet will it stop the spread, I am fine with that … I am realistic … This chemo treatment sounds a bit much to my liking , Heart issues ? Stomach ,urinating … …. I am awaiting doctors call , hopefully today .. I understand they have to tell you all side effects … Seemed like a lot to be concerned with … I wish was my left leg … .. easier decision for me to dispose of it ….. regardless with all treatments still the risk of spread … Doctor felt good we can get this done ….. I guesss 3 days of intravenous 8 hours a day every few weeks , just made me think more of myself owning my treatment process …. I just want to know from doctor if the limb is taken does that take away spread which could have already happened …. Decisions decisions
Bellsina Your the best , I should know today or tomw the latest . 4-6 days should be enough time .Monday 9:45 am here … I will probably give a call to them shortly . The only thing I feel as far as pain . Sometimes pins and needles . Rare . Maybe hitting a nerve ,again idk. Sometimes throbbing . Yet I can walk and do everything I need to do . I know you been through a lot and you are extremely understanding . You have no idea , how much I appreciate this . I am still nervous with the results . We will know soon enough !!!!! Ty all for any support . God BLess all the Mothers yesterday .. We did need a nice day out with wife , daughter 34 and son 10 gonna be 11 soon … I had 2 margaritas which I have not had in over 3 years … I guess I needed it !!! I am not a big liquor guy , trying to teach son to stay away from this in future ..He does and says everything like me .. !!! Grrrr Yikes ! Lol It’s all fun … Be Well all
Did you hear any news yet on your biopsy? I believe that you'll be walking right away. You'd be surprised what they can do to you on your legs and in a fatty area like that. It might be a little sore but if they're not going into the bone or the muscles, you're going to be just fine. Trust me on that! I don't think it's going to be anything concerning when you do get the results back. But if you want it removed I'm sure they'll remove it, it's probably going to be something harmless though. I hope I'm right about that because I have those on my legs too right underneath the skin. And they're big hard lumps, but like I said my cancer doctor has felt these and he said they're nothing to be concerned about. As long as it's not on an organ in your body it's probably not going to be anything horrible...
You're going to be just fine! I would have responded to your other messages sooner but I didn't even see them until right now. I just happened to find them in my notifications. Let me know how things go or if you got the results?!!)
This waiting for results is making me emotional , biopsy was completed Monday … they say end of week or early next week … I am not trying to look ahead . Yet I am a thinker , this makes me restless and a bit anxious, yes I am worried , it’s only normal . I am not sure I am actually scared , just the assumption I may not walk for a week or more , does not sit well with me.This is my busy season . This type of suspense can make anyone a bit crazy .. regardless I want this alien out of my upper thigh ASAP.. once I find out , I don’t want anymore consultations , just give me a date and do the surgery … . I hope everyone is well . God Bless ..
Hey Bellsina … Biopsy tomw …bad or good I am ready to battle .. I usually like to expect the worst , so I know what I am looking at ahead … not pessimistic , just reality .. I need this out of my thigh … some pain , on and off this weekend was a bit much … Regardless , all blood work done , MRIs Now the needle tomw ….. God Bless everyone on this wonderful May morning , at least here in the northeast !