Multiple deficiencies: stomach pain, neuropathy, atrial tachycardia
I first started trying to figure out my stomach pain over 3 years ago I am now 21 years old female and sense then it just get more painful when it flares up and it always hurts in my left side. This pain has left me stuff in a parked car for over an hour, on the floor many times and led to some very awkward table grabs at work. I was only able to get the first two doctors I saw for on and off 1 1/2 years to do regular blood work and an X-ray that showed a lot of gas and told me to take mirilax and that it was probably stress. By this point I hadn’t noticed but I had started loosing weight and my one doctor had brought it up at the time and I medically suggested I had an eating disorder even tho I had been seeing them for over a year because I hadn’t been feeling good. I stoped seeing them and gave up and thought whatever this was would maybe go away. 2-3 months pass all the sudden I started losing complete feeling in one of my big toes so I started seeing my now primary doctor who hit me in for nerve tested and a pelvic MRI and lower spinal MRI the pelvic MRI showed both of the main nerves in my leg were inflamed and by this point I had waited months done testing over and over again they checked me for B12 and a couple other supplements which were all foods some were borderline low. During this time I also started developing heart issues and was put on a 7 day holter monitor and diagnosed with atrial tachycardia and then did a pots test which was negative but showed my pulse as low as 44 and it showed I had some sort of bradycardia. After all this I was finally able to see a neurologist also yes at no point did any doctor during any of this want to or suggest or help me see a GI specialist because ever single one of them was convinced I was doing this to myself….. anyways the neologism re did nerve testing himself it was all good didn’t want todo an MRI and tested me for a cursory of auto immune diseases my ERS I think is what it’s call and all them came back normal. The only three things that came back abnormal were my copper so I had Lowe copper they then had me collect me pee and that also showed low dipper so I have true copper deficiency which weeks after being diagnosed with it realized it was rare and not topical. They also showed I was really lower on vitamin D and B6 but only like a certain aspect of the B6. These were things that were never even checked before so this add to the deficiencies that were already tested at borderline low. I was then put in supplants and two weeks into it git violently sick from the supplements making me throw up an able to eat super meadows more meadows than usually because during this whole thing most days I feel like I could throw up. Any ways I didn’t realize it was the supplants at first sense I had already been on them for awhile so I took a day off from pills and felt a little better started them again but I was almost scared because at that point I had no idea why I had thrown up to gotten sick so I took half of what I’m prescribed and with in 20 mins everything I had ate that day was in some grass. I told my neurologist about it and they were almost no help and really weren’t concerned even tho after getting sick for the second time I couldn’t eat for 4 days, like my body just couldn’t I was nauseous bloated in pain. I also told my primary doctor about this and they told me it wasn’t there problem. I am no trying for a secound time to get into Mayo because I now only weigh 93 pounds and feel like I’m going crazy and I just keep feeling worst and worst and now that I know it’s not all in my head I’m just more upset that I can’t find any one doctor not even the specialist I was referred to see that I need help and if they can’t help me or figure out how too that maybe they need to help me find better options. The numbness / loss of feeling has now taken over all of my toes list of my fingers and parts of my leg and lower back. I suspect with my history and everything I ahve going on thag I have some sort of malabsorption issues that could have been caught a long time ago but wasn’t and led to deficiencies like copper that can in rare causes cause a type of neruopathy but can also disrupt your body as a whole. If your reading this and you have never looked up what copper deficiency is what it can do what it can all effect and how it can leave people with lasting damage o highly recommend it, to me it’s scary but it’s also really interesting, Mayo did there own study on how it causes neuropathy as well, thank you for reading, any/ all advice is welcome.
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Sorry for all the grammar and misspelling, I can’t feel my thumbs so typing has gotten frustrating for me.
1. Had the neurologist done a punch biopsy on your leg? Small fiber neuropathy affects
2. If positive have a cardiologist do a one month holter monitor test and a tilt table test.
3. Checking for cardiac autonomic neuropathy. I go between bradycardia/ tachycardia and my blood pressure normal 120/70, two weeks 160/110 and the droops 96/60. I get really dizzy and sometimes pass out. I got it from the Moderna Covid shot the second shot. It started within two hours after taking it. Really freaked me out. It is a known problem with the Covid shots. It was in the journal of cardiology. Being a RN he printed it out and let me read it. The federal government knew about this when they started demanding we take the shot. The electrophsiologist diagnosed me with it after all the testing.
Neuropathy causes gastroparesis slow digestion. I sometimes get pain in my colon but I have diverticulitis also.
I don’t think I have ever checked my copper levels. I don’t eat red meat or half the items on the list.
It’s not common at all to have low copper levels, sorry this might be long from what I have read and from what my neurologist suggested I have something called myeloneuropathy which is when the copper deficiency presents it’s self as a type of neuropathy. It’s uncommon/ rare to have true copper deficiency which means there’s a low amount in your blood( circulating through/ what your body is currently able to use.) and a low amount tested in pee ( meaning there no extra and your body probably has low/ none stored up.). It takes zinc over dose/ or underlying condition like malabsorption or having a reaction to a certain type of surgeries. Copper added into a lot of cereals and stuff like dark chocolate, one bar or dark chocolate is like 300% of the recommend copper intake for a day. Copper causes neuropathy because it’s a main component of spine health from whagni was able to understand from the study Mayo did. I also did read about punch biopsy’s but I’m unsure if that would be helpful or not, I’m sure it would show up abnormal but my doctor would just say it’s because of the copper and of B6 deficiency and tell me to keep taking supplements that make me throw up. Also please don’t over worry or stress about copper levels only about 10% of people have a true deficiency every year and it’s usually caught because people become anemic and have no clear reason to be.
I don’t eat cereals or dark chocolate.
Since, I have autoimmune disorders I am not allowed anything that comes in a box, sugar, no broccoli (effects Hashimotos- (hypothyroidism) it’s considered toxic to my thyroid. I have tumors and cyst on thyroid. I don’t eat red meat or pork. There are so many nos for autoimmune disorders it’s not funny no garlic and no pasta. My hands get really hot and swell up. No breads.