Mouth Sores from chemo: When do they go away?

Posted by walkingmom @walkingmom, Dec 24, 2022

Any suggestions for mouth sores? Mine started a few days after my first infusion of Taxotere and Cyclophosphamide. Am using Magic Mouthwash consisting of lidocaine, maalox and benadryl with baking soda, salt and water rinse in between. Day 4 and no relief. For those of you who've had them, do they not go away until all infusions are complete? If so, I don't think I can handle it 🙁

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@woodstock12

Hi my dad is very uncomfortable with his mouth as well.. what do you think helps? I didn't quite understand your response. Would love to know, he's so miserable. Thank you.

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I am sorry I wasn’t very clear.
I mix salt and a tiny bit of baking soda in warm water and rinse daily. This is a prevention and I get less sores because of this.
When I get sores especially the ones in my throat or behind my upper lip, I use the magic mouthwash from my compounding pharmacy. This an amazing pain reliever for the sores. You have to use it several times a day but it works well. You can ask his doctor for a prescription.
Does this answer your questions?

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@auntieoakley

I am not sure what HU is, but I get mouth sores from cancer treatments and I use it. It is the only thing that makes the ulcers feel better allowing me to eat and in some cases, even talk.
I use salt and baking soda for prevention, and it does mean I get less of them and mostly smaller, but when I get them I use the mouthwash, it has lidocaine, an antacid and a few other things.
I do get it from my compounding pharmacy but it cost 32.00, regular price.
What is HU?

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Hi my dad is very uncomfortable with his mouth as well.. what do you think helps? I didn't quite understand your response. Would love to know, he's so miserable. Thank you.

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@walkingmom In my case, magic mouthwash was the only thing available at the time (2007). I always felt pretty good before the infusions but the side effects always came back. Personally, I always had chipped ice and small pieces of watermelon to get rid of the blood in my mouth. The bonus was that they helped with constipation which stool softeners could not completely help with. It took me years before I would eat anything spicy! You're almost there. Hang tough and fight the fight we're all praying for you. P.S. I had a recurrence this year but decided to do the bilateral mastectomy. No node issues = no chemo. But the mastectomy has been pretty darn difficult, yet here I am able to ninny about it ; )

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@chetalbin

What is the magic mouth wash? Is it for people who get mouth soars from HU?

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I am not sure what HU is, but I get mouth sores from cancer treatments and I use it. It is the only thing that makes the ulcers feel better allowing me to eat and in some cases, even talk.
I use salt and baking soda for prevention, and it does mean I get less of them and mostly smaller, but when I get them I use the mouthwash, it has lidocaine, an antacid and a few other things.
I do get it from my compounding pharmacy but it cost 32.00, regular price.
What is HU?

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It’s for mouth sores from cause I think. It numbs (lidocaine) and for some people heals the sores. Others say baking soda & salt & Ive heard but not tried with honey heals. Magic Mouthwash needs to be mixed at a compounding pharmacy and my insurance (Medicare) won’t cover it. About $60.

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What is the magic mouth wash? Is it for people who get mouth soars from HU?

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My integrative medicine doctor recommended honey in addition to the baking soda/salt rinse. I feel it helped and it’s pleasant. Manuka honey is beneficial but expensive.

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Yes, 3 to go. I felt the baking soda and salt rinse gave me the most healing. The magic mouthwash just numbed. I’m thankful my side effects have been minimal. The mouth sores were the worst of it. I’ve had blurry vision and neuropathy but even that’s improved the past couple days.

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@walkingmom I had a ton of mouth sores with chemo. I used the magic mouthwash when I got them, as often as I needed it to remain comfortable. Like you they typically resolved in about 5 days until the next infusion. The other rinses used for prevention tended to make them more painful. I would use the prevention which did make me get less of them and smaller. Then when I got a sore, I switched to the magic mouthwash for comfort and healing.
If I read your post right, you only have 3 more infusions, is this correct? How are you doing with this otherwise, any other side effects?

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I take chemo pills, vs infusions, and for that found that wrapping the pills in pieces of marshmallow ended the mouth sores. Sorry this won’t work for
you 🙁

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