Mouth Sores from chemo: When do they go away?

Posted by walkingmom @walkingmom, Dec 24, 2022

Any suggestions for mouth sores? Mine started a few days after my first infusion of Taxotere and Cyclophosphamide. Am using Magic Mouthwash consisting of lidocaine, maalox and benadryl with baking soda, salt and water rinse in between. Day 4 and no relief. For those of you who've had them, do they not go away until all infusions are complete? If so, I don't think I can handle it 🙁

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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @blulady, you’re wondering if it’s possible for another virus to activate a dormant one in the body. Yes, that can happen.

Because of the compromised state of long haulers' bodies, previously dormant viruses can potentially reactivate and become chronic infections, such as Epstein Bar Virus. It can actually occur with any illness which weakens the immune system. Similar to patients who are on immunosuppressants. We run the risk of dormant viruses such as EBV, CMV, etc., re-emerging when our immune system isn’t powerful enough to stop it from resurfacing.
The frequency might be elevated now because of the global prevalence of Covid.

Here are a few articles which may help to explain how this happens. https://www.verywellhealth.com/long-covid-latent-viral-reactivations-5205269
https://fortune.com/well/2022/12/26/is-long-covid-chronic-fatigue-syndrome-myalgic-encephalomyelitis/
Whether or not this contributed to your husband’s cancer, that’s one of those unfortunate mysteries we deal with when we’re diagnosed with the disease. Having gone through a cancer odyssey myself, I can understand the need to find out ‘how and why’. It’s as though we need answers for what went wrong so we can place a blame or take the blame for bad lifestyle, work related illness, etc. As one of my oncologists said when I was wondering how I ended up with AML, he succinctly put it in these terms “Sometimes S*** Happens”. He wasn’t being snarky! Simply put, I would drive myself crazy trying to pinpoint a cause when there was no way to do that in my case. So after a while, it’s just time let the past go and look positively toward a healthy future.

I know you and your husband have been going through the wringer on this journey…it’s hard on both of you. How is your husband doing now? Is he making a good recovery?

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Thank you so much for the articles. We found them very informative. But the best advice and guidance was that Stuff happens!!!!!
My husband is about 9 weeks out from treatment. He is doing well. Eating bigger portions and more varieties of food. Gained 5lbs! Both of us are a little nervous about the upcoming scan in 4 weeks but staying positive. He previously had a throat scope that physically showed that the tumors were gone. Now for the cellular results.
Take good care and again thank you for your help and support.

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Profile picture for marcia @marciak9

I use mouthwash when they first start. The Dr gave me a prescription for Triamcinolone tooth paste (not tooth brushing toothpaste). It is very good for sticking to your mouth. I put it on the sores at night and they are gone the next day. I’m lost without it.

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Magic mouthwash

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I too had mouth sores during Chemo and used the Magic Mouthwash (which helped), but I changed my toothpaste. I tried several kinds of Sensodyne and gum sensitive brands and it seemed to help. Once Chemo was over, my gums healed and I have no problem now.

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Profile picture for blulady @blulady

Do you know if there is any evidence of links between catching COVID or getting vaccinated for COVID and then being diagnosed for HPV related Head and Neck Cancer. It seems that many people talk about the HPV related cancer becoming non dormant after some experience with COVID. Is it possible for another virus to activate a dormant one in the body?

Jump to this post

Hi @blulady, you’re wondering if it’s possible for another virus to activate a dormant one in the body. Yes, that can happen.

Because of the compromised state of long haulers' bodies, previously dormant viruses can potentially reactivate and become chronic infections, such as Epstein Bar Virus. It can actually occur with any illness which weakens the immune system. Similar to patients who are on immunosuppressants. We run the risk of dormant viruses such as EBV, CMV, etc., re-emerging when our immune system isn’t powerful enough to stop it from resurfacing.
The frequency might be elevated now because of the global prevalence of Covid.

Here are a few articles which may help to explain how this happens. https://www.verywellhealth.com/long-covid-latent-viral-reactivations-5205269
https://fortune.com/well/2022/12/26/is-long-covid-chronic-fatigue-syndrome-myalgic-encephalomyelitis/
Whether or not this contributed to your husband’s cancer, that’s one of those unfortunate mysteries we deal with when we’re diagnosed with the disease. Having gone through a cancer odyssey myself, I can understand the need to find out ‘how and why’. It’s as though we need answers for what went wrong so we can place a blame or take the blame for bad lifestyle, work related illness, etc. As one of my oncologists said when I was wondering how I ended up with AML, he succinctly put it in these terms “Sometimes S*** Happens”. He wasn’t being snarky! Simply put, I would drive myself crazy trying to pinpoint a cause when there was no way to do that in my case. So after a while, it’s just time let the past go and look positively toward a healthy future.

I know you and your husband have been going through the wringer on this journey…it’s hard on both of you. How is your husband doing now? Is he making a good recovery?

REPLY

Mouth sores were horrible and Miracle Mouthwash plus salt/soda rinses only helped a little. My doc lowered my dosage 20% (Eribulin chemo) and that has seemed to do it. He also prescribed Acyclovir 400 mg pills, an anti-viral, but I haven’t needed them yet. You can also try a children’s toothpaste with no mint- Tom’s makes it.

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I need help with sores around my nose and mouth. They are painful and I have not found anything to help them heal. They appear after my NET monthly shot. I will be grateful for all suggestions. Bette

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Profile picture for jersey3422 @jersey3422

I had heard that also. I am not an expert by any means, but I did dismiss that idea because it seemed like a real stretch to me by anti-vaccers.

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I meant anti-vaxxers.

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Profile picture for blulady @blulady

Do you know if there is any evidence of links between catching COVID or getting vaccinated for COVID and then being diagnosed for HPV related Head and Neck Cancer. It seems that many people talk about the HPV related cancer becoming non dormant after some experience with COVID. Is it possible for another virus to activate a dormant one in the body?

Jump to this post

I had heard that also. I am not an expert by any means, but I did dismiss that idea because it seemed like a real stretch to me by anti-vaccers.

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My Radiology Oncologist recommended a powder that is converted to liquid called Healios. It helped tremendously with my sore throat. I had quite a few sores down my throat as well. I got it from Amazon. Grape flavored is not bad.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@blulady, good question. It is really important to look for evidence-based, trusted sources when asking questions about causes of cancer.

There is not enough good evidence to prove that milk and dairy can cause cancer. Eating and drinking milk and dairy can reduce the risk of bowel cancer. But there is no proof it increases or decreases the risk of any other cancer type.

Here is further reading:
- Milk and Breast Cancer - Looking Beyond the Headlines https://connect.mayoclinic.org/blog/cancer-education-center/newsfeed-post/milk-and-breast-cancer-looking-beyond-the-headlines/
- Can milk and dairy products cause cancer? https://www.cancerresearchuk.org/about-cancer/causes-of-cancer/cancer-myths/can-milk-and-dairy-products-cause-cancer

Jump to this post

Do you know if there is any evidence of links between catching COVID or getting vaccinated for COVID and then being diagnosed for HPV related Head and Neck Cancer. It seems that many people talk about the HPV related cancer becoming non dormant after some experience with COVID. Is it possible for another virus to activate a dormant one in the body?

REPLY
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