Connect
Mostly in my legs, but does anyone else’s body vibrate?
I had a Boston Medical spinal cord stimulator (SCS) installed and I started feeling vibrations in my legs shortly thereafter. At first I thought it was all in my head and that my legs and body were not REALLY & literally vibrating. However recently, during a particularly intense feeling of vibrations, I felt my legs and could literally feel that my legs were indeed VIBRATING!
The vibrating has expanded to cover almost my entire body, but normally occurs from my waist down. The REALLY weird thing is that the battery in my device and in the controller were dead and the device was OFF for at least 6 MONTHS and I STILL feel the vibrations!
Please, does anyone else have experience in body vibrating? Right now, as I’m righting this, my legs feel like they are being massaged by a thousand fingers!
Like
Helpful
HugInterested in more discussions like this? Go to the Neuropathy Support Group.
Connect
Yes, from the waist down I am numb and almost always vibrating. I can't stand for long because of pain and even my butt falls asleep when sitting. There is no comfortable position anymore.
-
Like -
Helpful -
Hug
1 Reaction@bones53 and @wolfride29073 There are quite a few discussions members have started that are about feeling vibrations in the body. You might want to scan the list to read what others have shared - https://connect.mayoclinic.org/search/discussions/?search=body%20vibrations.
Here's an article on possible causes and treatments that might be helpful for learning more about what it might be -- Causes and treatment for internal vibrations: https://www.medicalnewstoday.com/articles/322217.
Have you discussed the symptoms with your doctor or care team?
-
Like -
Helpful -
Hug
1 ReactionI have Boston Scientific scs and it is off but I feel vibrations in feet and legs sonetimes up into my stomach! My fingers are numb and I started to become unable to walk I guess due to peripheral neuropathy. Let me know what you find out
-
Like -
Helpful -
Hug
1 ReactionDo u have a spinal cord stimulator?
I do not have spinal cord stimulator. Here is my question for you have you been diagnosed with motor neuropathy? Dr Anne Oaklander a research neurologist told me I have tremors in my legs , arms and hands. It causes my legs and hands to shake. She is at Boston General Brigham.
-
Like -
Helpful -
Hug
1 ReactionYes! As I write this I am feeling the floor and furniture when I sit down vibrating. My spouse feels nothing of the sort. This has occurred several times in my life, lasting for several hours. THIS time the sensation is stronger than ever before! My body does not feel internal source for this sensation. I am a survivor of a subarachnoid cerebral hemorrhage ( brain aneurysm) 33 years ago, which has caused all manner of physical and mental dysfunction in it's wake.
This vibration thing is so real - yet not evident to others- that I am beginning to think I must be experiencing some kind of mental delusion.
-
Like -
Helpful -
Hug
3 ReactionsI feel it sometimes too, but, only inside or in a car. I've never felt it outside.
Do you feel worried about it? I do!
Sounds like the 'vibrations' could be essential tremor disorder. I have 'vibrations' throughout body at times from E T. But full body (head to toe) shaking all the time.
-
Like -
Helpful -
Hug
1 ReactionYou get tremors from motor neuropathy. When the nerves start dying and affecting other areas.
-
Like -
Helpful -
Hug
1 Reaction