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Monophasic synovial sarcoma

Posted by emily29 @emily29, May 3, 2023

I am trying to find out information on Monophasic Synovial Sarcoma and why it’s different than biphasic Synovial Sarcoma? If that’s even important?! Also, anyone else have this start in your kidney? I can literally find no information about this except that it is rare and aggressive.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 4, 2023

Hi @emily29, according to this article
"Monophasic synovial sarcomas are entirely composed of ovoid-spindle morphology. Biphasic subtypes are composed of both spindle and epithelial components."
- Management of Monophasic Synovial Sarcoma of the Small Intestine https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3041044/

I'm tagging fellow members like @winter23 @tynerlisa @rgotto41 and @ellengrubb who also have experience with synovial sarcoma. I'm not sure which type however, monophasic or biphasic subtype.

I would assume that knowing that you have monophasic would lead to more specific and effective treatments. Have you asked your cancer team this question? It's a good question and I'd like to know too 🙂

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emily29 | @emily29 | May 4, 2023

I haven’t asked many questions, it happened very fast. I’m in remission after 3 treatments of AIM and 2 of just doxorubicin as of Oct 29. I’m just now getting well enough to even attempt to look this up and find out more info about it, I did look it up in the beginning but the prognosis didn’t look well and I was given 8 weeks to live at the time. So I tried to just focus on being healthy as I could. Now I’m curious because I’ve started reading about reoccurrence rates. Just so much I don’t understand.

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