1. < Digestive Health

Methane SIBO

Posted by kimmer26 @kimmer26, Mar 15 6:36pm

I am waiting to become a patient of the Mayo Clinic however I was diagnosed with gastroparesis and methane SIBO and was wondering if any others are out there like me and they have GAINED A lot of weight, Constipated bloated, nausea and etc.? Any information or insight would be great about it, Including doctors to see? HOPEFULLY, I’ll be accepted soon as a patient!
Thanks In Advance,
Kim

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celia16 | @celia16 | Mar 15 8:19pm

Were you prescribed any medication or special diet?

REPLY
jac59 | @jac59 | Mar 16 12:45pm

Fodmap diet for 4 to 6 weeks along with some supplements is what my nutritionist recommends. It does need to be tweeked from time to time - the tincture of bitters, herbs. It really helps me poop, along with slippery elm capsules. Of course the doctor gave me Xifaxan 550 mg 3x day for 14 days. It works for a bit, but pain and bloating always comes back for most people.
I had all the tests/scans HIDA, EGD, colonoscopy, abdominal x-rays.
My digestive system seems to be pretty sensitive. Basically it just hurts to eat. I lost 20 lbs in about a year. I have a mixture of IBS, diverticulitis, dyspepsia and SIBO. The doctors don't always trust the SIBO breath test. They say it's not really too reliable. I also have a gluten sensitivity, which is actually more common these days due to the additives in everything. It is genetic too. My Mom and sisters all have some kind of digestive issues.
I've heard of a doctor who said his wife couldn't eat any gluten here in the U.S., but when she went to visit her family in Italy, she had no problem with eating any breads or pastas there. There is a good book with a lot of info called "Dirty Genes" by Ben Lynch.
Still working on it, but doctors basically say there is no cure. L-glutamine powder helps to heal the gut membrane when taken daily. Probiotics and enzymes help too. It's really tricky to treat, since everyone is different. There may be combinations of vitamins, meds, foods, that make it worse day to day. It helps to keep a food diary. I write down the time and what I ate, and when there are symptoms, I write the time and where the symptom was. I highlight the symptoms with a highlighter. It helps doctors and/or nutritionist, herbalist, functional doctors. Primary doctors generally don't seem to care to see it, in my experience. They just want the very basic summary of what triggers it. Functional doctors spend more time and do more involved lab work. Insurance usually pays for the lab work for funtional doctors, but not always for the office visits. Hope that helps! Good luck!

REPLY
1 reply
celia16 | @celia16 | Mar 16 3:05pm
In reply to @jac59 "Fodmap diet for 4 to 6 weeks along with some supplements is what my nutritionist recommends...." + (show)
@jac59

Fodmap diet for 4 to 6 weeks along with some supplements is what my nutritionist recommends. It does need to be tweeked from time to time - the tincture of bitters, herbs. It really helps me poop, along with slippery elm capsules. Of course the doctor gave me Xifaxan 550 mg 3x day for 14 days. It works for a bit, but pain and bloating always comes back for most people.
I had all the tests/scans HIDA, EGD, colonoscopy, abdominal x-rays.
My digestive system seems to be pretty sensitive. Basically it just hurts to eat. I lost 20 lbs in about a year. I have a mixture of IBS, diverticulitis, dyspepsia and SIBO. The doctors don't always trust the SIBO breath test. They say it's not really too reliable. I also have a gluten sensitivity, which is actually more common these days due to the additives in everything. It is genetic too. My Mom and sisters all have some kind of digestive issues.
I've heard of a doctor who said his wife couldn't eat any gluten here in the U.S., but when she went to visit her family in Italy, she had no problem with eating any breads or pastas there. There is a good book with a lot of info called "Dirty Genes" by Ben Lynch.
Still working on it, but doctors basically say there is no cure. L-glutamine powder helps to heal the gut membrane when taken daily. Probiotics and enzymes help too. It's really tricky to treat, since everyone is different. There may be combinations of vitamins, meds, foods, that make it worse day to day. It helps to keep a food diary. I write down the time and what I ate, and when there are symptoms, I write the time and where the symptom was. I highlight the symptoms with a highlighter. It helps doctors and/or nutritionist, herbalist, functional doctors. Primary doctors generally don't seem to care to see it, in my experience. They just want the very basic summary of what triggers it. Functional doctors spend more time and do more involved lab work. Insurance usually pays for the lab work for funtional doctors, but not always for the office visits. Hope that helps! Good luck!

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That sounds pretty intense. Based on my symptoms, which have mainly dissipated, I hesitate to change my diet, which I worked with 2 nutritionists. I no longer have constipation. No recent diarrhea episodes and I’m back eating salads and lots of vegetables .I never had pain. I just still have the bitter taste that I’m not sure is connected to my stomach.

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