Metastatic Prostate Cancer: Where do I go from here?

Thanks for getting back to me. Many prayers your way my friend, as you have a tough row to hoe. Hopefully the light at the end of the tunnel is near. Take care.

@dsingstock: Life certainly gets complicated. Caring for your other half is a full-time job. You certainly don't need the complications of Stage 4 metastatic prostate cancer. However. We play ghe cards we are dealt. We just keep pushing forward trust your medical team and try to stay positive. .

As an update on my case, I reacted badly to going back on enzalutimide. My legs and body are extremely weak with no stamina. My appetite has dropped to nil. Eating is hard work. My PSA has gone up to 1011. Now I am waiting for another round of scans next week: endoscopy, colonoscopy, MRI, bone scan, CT scan. Options for treatment look like either another round of chemo or a round of Lu177 (Pluvicto).

Good luck with your tests and treatment plan, I pray you get it under control.

Thank you for your reply. My prostate cancer has recurred and metastasized in my lower right rib cage. It is non curable stage 4. It is controllable but need to develop a treatment plan. We do that in November with Urologist and Medical Oncologist. Regarding sex haven't had any for over 12 years. Other half said no erections no sex. Like living with a sister. She now has vascular dementia and I am her 24/7 care giver. Thanks again for your comment. I keeping a positive attitude, healthy in other areas and trying to beat this situation.

Thank you for sharing this wealth of information. Sounds like you have been to hell and back and still maintain a positive attitude. That is wonderful and I compliment you for that. My last psa was 12.2 and rising about 1.5 per month. I am told it is non curable stage 4 and metastasized in lower right ribs. Also like with you it can be controlled with the right medication. This will happen in November when I have appointments with both Urologist and Medical Oncologist. You hit the nail on the head about staying positive. Prayers help too. I need to stay strong as I am the care giver for my other half with vascular dementia. Thank you so very much for your come back . That I really appreciate, especially the meds. Take care and God bless.

I can’t help you but I think I’m in the same situation as you. I’m 77 and a recent bone scan revealed widespread osseous metastatic disease. Briefly,
I have very little libido and my size is pretty minimal after being on testosterone deprivation therapy for about two years. Extremely frustrating not to be as intimate as I would like with the lady I dearly love. Though she is very understanding and accommodating I know it is very difficult for her, too.

First, you're at the right place. Mayo Connect is full of a bunch of supportive cancer friends walking the same path. Lots of learning from your Docs and Researchers ahead and your new friends here.

Thanks, Let me know.

4 Years ago PSA 100, then 40 sets of radiation , then bicalutamide for 30day then a yae of Zolodex injections every 3 months PSA was <.01 for years

Then 1 1/2 years ago PSA 25 after they took me off Zolodex in second year of 4

Medical Oncologist said stage 4 metastatic cancer in L2 of spine Offered my radiation and enzalutamide. My doctor son said whoa. Had them do more PET and MRI. Radiation oncologist did math and nuked a 1 block of cancer off my L2 and put me back on Zolodex injections. PSA started dropping to 1.2 where it remains for 1 1/2 years now MRI shows scaring and shrinking of other suspicious spots on T 2 and T 12 They now say its shrunk GET on ZOLODEX fast

What they now know is I am castrate SENSTIVE metastatic so ADT works Guess they thought I was resistant before they even tried Zolodex again

NOTE I asked St Rita the patron saint of impossible to ask JESUS to give better results for a longer life at 78 now

Also see survival at seer.gov com 5 year 10 year by age sex and race and where it is At 82 you have multiple years and multiple therapies

Thanks my Doc was talking Lupon before the last scan. Will let you know what happens on Wednesday.

Forgot to mention Lupron 6+ months
Jim