Metastatic Prostate Cancer: Where do I go from here?

Finally met with Urologist and Oncologist. Plan is to do 30 days of Casodex, get CT scan with contrast of my chest area to enlarge metastasized area of tye ribs and get a 6 month Lupron injection. Started Casodex but CT and Lupron injection to follow a shortly. Psa taken on 9 Nov 20.8. The one in September 12.0. Heard that I should be drinking 64 ounces of water daily with Casodex. Is this true? Also to be reevaluated every 3 months and psa taken. Any other suggestions or recommendations. Thanks and God bless for what you all are going through. Dave

Mate my feeling goes out to you. I have suffered from prostate cancer for going on 6 years and it has metastasized in the left ribs and sacrum. I had the prostate removed in 2017. I am also fighting balder cancer and an aggressive form of Leukaemia but remain positive and lead an active life. I am fortunate that I have a very understanding and loving wife, we have been together for over 60 years. I have been on ADT (Zoladex) for a few years and my PSA quickly went down to 0.008 and has been there ever since. I have a PSA every 3 months to coincide with bladder cancer treatment. I know that when we are confronted with difficult hurdles we remain positive and handle what is dealt to us as best we can and I am sure that God looks after us whenever hard times come around as we know they will but he will always be by our side.

Mate my feeling goes out to you. I have suffered from prostate cancer for going on 6 years and it has metastasized in the left ribs and sacrum. I had the prostate removed in 2017. I am also fighting balder cancer and an aggressive form of Leukaemia but remain positive and lead an active life. I am fortunate that I have a very understanding and loving wife, we have been together for over 60 years. I have been on ADT (Zoladex) for a few years and my PSA quickly went down to 0.008 and has been there ever since. I have a PSA every 3 months to coincide with bladder cancer treatment. I know that when we are confronted with difficult hurdles we remain positive and handle what is dealt to us as best we can and I am sure that God looks after us whenever hard times come around as we know they will but he will always be by our side.

Thank you for sharing this wealth of information. Sounds like you have been to hell and back and still maintain a positive attitude. That is wonderful and I compliment you for that. My last psa was 12.2 and rising about 1.5 per month. I am told it is non curable stage 4 and metastasized in lower right ribs. Also like with you it can be controlled with the right medication. This will happen in November when I have appointments with both Urologist and Medical Oncologist. You hit the nail on the head about staying positive. Prayers help too. I need to stay strong as I am the care giver for my other half with vascular dementia. Thank you so very much for your come back . That I really appreciate, especially the meds. Take care and God bless.

I can’t help you but I think I’m in the same situation as you. I’m 77 and a recent bone scan revealed widespread osseous metastatic disease. Briefly,
I have very little libido and my size is pretty minimal after being on testosterone deprivation therapy for about two years. Extremely frustrating not to be as intimate as I would like with the lady I dearly love. Though she is very understanding and accommodating I know it is very difficult for her, too.

@dsingstock : I am sorry to hear of your diagnosis. My first advice is to stay positive and be patient (I know how hard that is). Here is my story as an example. In February 2019 I was diagnosed with metastatic prostate cancer. PSA was 541. I had cancer in my spine, some on the sternum and ribs. I started on hormone therapy using bicalutimide and added Eligard a month later (I get a shot every six months). I had 44 radiation treatments that summer. PSA dropped but started to rise again so we went to Enzalutimide. We added radium223 treatments before going to docetaxel. My PSA dropped again but now has started to rise again so I just started back on Enzalutimide to see if we can bring the PSA down again.

The take away from this is there are many treatment options available to you. Talk to your care team (primary care provider, urologist and oncologist) to develop a treatment plan. Be patient and continue to do those things that give you enjoyment. I find prayer to be helpful. As scary as the initial diagnosis is, there is time for successful treatment to bring the cancer under control. I have been at it for 3.5 + years. Stay positive.

Good luck on this difficult journey.

I can’t help you but I think I’m in the same situation as you. I’m 77 and a recent bone scan revealed widespread osseous metastatic disease. Briefly,
I have very little libido and my size is pretty minimal after being on testosterone deprivation therapy for about two years. Extremely frustrating not to be as intimate as I would like with the lady I dearly love. Though she is very understanding and accommodating I know it is very difficult for her, too.

Thank you for your reply. My prostate cancer has recurred and metastasized in my lower right rib cage. It is non curable stage 4. It is controllable but need to develop a treatment plan. We do that in November with Urologist and Medical Oncologist. Regarding sex haven't had any for over 12 years. Other half said no erections no sex. Like living with a sister. She now has vascular dementia and I am her 24/7 care giver. Thanks again for your comment. I keeping a positive attitude, healthy in other areas and trying to beat this situation.