1. < Prostate Cancer

Metastatic Prostate Cancer: Where do I go from here?

Posted by dsingstock @dsingstock, Sep 26, 2022

PSMA PET scan revealed radiotraser uptake in the right 7th and 9th ribs consistent with osseous metastasis. . Where do I go from here. I am 82.

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spryguy | @spryguy | Dec 17, 2022

Despit all you have been through it seems you have a positive attitude.
That's valuable. I'm 75 and suspect a similar path is coming my way.
We enjoy cruising as well and hope there are a few more in our future.
Merry Christmas to you and your wife.

REPLY
melcanada | @melcanada | Dec 17, 2022
In reply to @spryguy "Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were..." + (show)
@spryguy

Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were rough with tired, weak, many trips to bathroom for both #1 and #2. Now 5 months after it's just some irregularity with #2. #1 is improved w Tamsulosin (flomax). The PLUS is a drop in PSA from 80 to 1.2 in 3 × mos, Lupron was also in play. Currently on Zytiga and Lupron, PSA is 0.1. Good Luck Merry Christmas

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Yes same path at 74 had radiation then on Zolodex for 2 years In 2021 had to have L2 radiated to take out 1 inch metastatic cancer Then 1 1/2 years bone scan shoed some areas in my T11 T12 and left hip So my stage 4 castrate sensitive is going castrate resistive In Jan after our Aruba cruise medical oncologist putting me on Enzalutamide 4 daily chemo pills Prognoses if hopefully 5 years or more I am 78 now

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melcanada | @melcanada | Dec 17, 2022
In reply to @itterac "I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one..." + (show)
@itterac

I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one undetectable. Yesterday psa .26 after last undetectable 5 months ago. Any thoughts on what to know other than following up w my docs?

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Yes same path as you When I was 74 had radiation then on Zolodex for 2 years In 2021 had to have L2 radiated to take out 1 inch metastatic cancer Then 1 1/2 years bone scan shoed some areas in my T11 T12 and left hip So my stage 4 castrate sensitive is going castrate resistive In Jan after our Aruba cruise medical oncologist putting me on Enzalutamide 4 daily chemo pills Prognoses if hopefully 5 years or more I am 78 now

REPLY
spryguy | @spryguy | Dec 16, 2022
In reply to @itterac "I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one..." + (show)
@itterac

I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one undetectable. Yesterday psa .26 after last undetectable 5 months ago. Any thoughts on what to know other than following up w my docs?

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You will probably need a few more psa tests (at 30 days??) to confirm the uptick and then explore the options.
I am pretty sure you have enough PSA in your system to have an accurate PSMA PET/CTscan. That's what I would push for. It will pinpoint any P cancer hot spots. Treatment can then be designed specifically for those spots. Don't go by my say-so I read a lot but I am no pro. Merry Christmas

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rxharleydude | @rxharleydude | Dec 16, 2022
In reply to @digger "I have it also ribs,sternum,scapula,did hormone therapy was working great psa .04 week after blood work,had..." + (show)
@digger

I have it also ribs,sternum,scapula,did hormone therapy was working great psa .04 week after blood work,had a pain in my back turned out to be a new spot of cancer on my lumbar 9th rib put me on chemo had 5 cycles just started Xofigo radiation treatment today don’t know what to expect will see digger

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How did the chemo go and how long were you on it?

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itterac | @itterac | Dec 16, 2022
In reply to @spryguy "Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were..." + (show)
@spryguy

Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were rough with tired, weak, many trips to bathroom for both #1 and #2. Now 5 months after it's just some irregularity with #2. #1 is improved w Tamsulosin (flomax). The PLUS is a drop in PSA from 80 to 1.2 in 3 × mos, Lupron was also in play. Currently on Zytiga and Lupron, PSA is 0.1. Good Luck Merry Christmas

Jump to this post

I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one undetectable. Yesterday psa .26 after last undetectable 5 months ago. Any thoughts on what to know other than following up w my docs?

REPLY
3 replies
bettwils16 | @bettwils16 | Dec 15, 2022
In reply to @spryguy "Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were..." + (show)
@spryguy

Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were rough with tired, weak, many trips to bathroom for both #1 and #2. Now 5 months after it's just some irregularity with #2. #1 is improved w Tamsulosin (flomax). The PLUS is a drop in PSA from 80 to 1.2 in 3 × mos, Lupron was also in play. Currently on Zytiga and Lupron, PSA is 0.1. Good Luck Merry Christmas

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Thank you! Have a nice Christmas and a healthy New Year.

REPLY
spryguy | @spryguy | Dec 15, 2022
In reply to @bettwils16 "Hi, any temporary or permanent side effects from radiation?" + (show)
@bettwils16

Hi, any temporary or permanent side effects from radiation?

Jump to this post

Finished 39 sessions of IMRT on July 8, 2022. The first month or two after were rough with tired, weak, many trips to bathroom for both #1 and #2. Now 5 months after it's just some irregularity with #2. #1 is improved w Tamsulosin (flomax). The PLUS is a drop in PSA from 80 to 1.2 in 3 × mos, Lupron was also in play. Currently on Zytiga and Lupron, PSA is 0.1. Good Luck Merry Christmas

REPLY
3 replies
bettwils16 | @bettwils16 | Dec 15, 2022
In reply to @spryguy "Good luck on Wed. Two treatments. The after effects of external beam radiation (39 days of..." + (show)
@spryguy

Good luck on Wed.
Two treatments. The after effects of external beam radiation (39 days of zaps) ( completed July 8) and Zytiga (abiraterone) after 10 days ( now at 30 days) of a 2 year regime. PSA is predicted to be undetectable at next blood test (Dec).. I don't know why the two years I suspect some CYA.
It is not without side effects.
Jim

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Hi, any temporary or permanent side effects from radiation?

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1 reply
digger | @digger | Dec 12, 2022
In reply to @norske46 "@dsingstock : I am sorry to hear of your diagnosis. My first advice is to stay..." + (show)
@norske46

@dsingstock : I am sorry to hear of your diagnosis. My first advice is to stay positive and be patient (I know how hard that is). Here is my story as an example. In February 2019 I was diagnosed with metastatic prostate cancer. PSA was 541. I had cancer in my spine, some on the sternum and ribs. I started on hormone therapy using bicalutimide and added Eligard a month later (I get a shot every six months). I had 44 radiation treatments that summer. PSA dropped but started to rise again so we went to Enzalutimide. We added radium223 treatments before going to docetaxel. My PSA dropped again but now has started to rise again so I just started back on Enzalutimide to see if we can bring the PSA down again.

The take away from this is there are many treatment options available to you. Talk to your care team (primary care provider, urologist and oncologist) to develop a treatment plan. Be patient and continue to do those things that give you enjoyment. I find prayer to be helpful. As scary as the initial diagnosis is, there is time for successful treatment to bring the cancer under control. I have been at it for 3.5 + years. Stay positive.

Good luck on this difficult journey.

Jump to this post

I have it also ribs,sternum,scapula,did hormone therapy was working great psa .04 week after blood work,had a pain in my back turned out to be a new spot of cancer on my lumbar 9th rib put me on chemo had 5 cycles just started Xofigo radiation treatment today don’t know what to expect will see digger

REPLY
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