Metastatic Prostate Cancer: Where do I go from here?

Posted by dsingstock @dsingstock, Sep 26, 2022

PSMA PET scan revealed radiotraser uptake in the right 7th and 9th ribs consistent with osseous metastasis. . Where do I go from here. I am 82.

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hammer101 | @hammer101 | Dec 20, 2022

In reply to @itterac "One lymph involved When was ur rp" + (show)

My RP was on November 3, 2022. They took the prostate/seminal vesicles and 6 lymph nodes.

Jim

itterac | @itterac | Dec 19, 2022

One lymph involved When was ur rp

hammer101 | @hammer101 | Dec 19, 2022

In reply to @itterac "I was Gleason 7 4/3 and had rp 4/18. Bcr 2021. 36 salvage rt then one..." + (show)

Itterac, curious if your post RP pathology showed cancer contained to prostate or whether cancer was found in Lymph Nodes. Also, was there any perineural invasion? I had Gleason 7 (4/3) and I am trying to assess my reoccurrence risk going forward. FYI - My post RP pathology did not find any cancer in the lymph nodes that were removed and no perineural invasion. I know this is only a point in time assessment, so want to continue assessing experiences of others like me.

Merry Christmas and hope you have an awesome new year,

Jim

melcanada | @melcanada | Dec 18, 2022

In reply to @haft2hunt "I was dx in 2021 stage 4 Im 57 and not going anywhere soon I try..." + (show)

looking at why not now. https://health.ucsd.edu/news/releases/Pages/2022-10-05-patient-first-in-region-to-receive-new-treatment-for-advanced-prostate-cancer.aspx

melcanada | @melcanada | Dec 18, 2022

In reply to @markinch "I’m 88 and diagnosed July 2022. Big surprise! We’ve been in PCLO clinical trial for 20+..." + (show)

On Zolodex Soon Enzalutamide but looking at why not now. https://health.ucsd.edu/news/releases/Pages/2022-10-05-patient-first-in-region-to-receive-new-treatment-for-advanced-prostate-cancer.aspx

melcanada | @melcanada | Dec 18, 2022

In reply to @haft2hunt "I was dx in 2021 stage 4 Im 57 and not going anywhere soon I try..." + (show)

Had radiation 2018 then it metastases in 2021 so had L2 lumbar nuked and back on Zolodex 2 years later it increased but slow growing in L1 and hip so they want me on Enzalutamide Note it's the latest COPY Xtandi was granted an FDA fast track and later approved in metastatic castration-sensitive prostate cancer (mCSPC) by late 2019. In May, the oral treatment also scored a European nod for that indication, which carries a grim median survival of just three to four years, Astellas says. U.S. regulators already approved Xtandi in mCSPC and nonmetastatic CRPC (nmCRPC).
For its part, androgen receptor inhibitor Erleada, J&J's follow-up to aging Zytiga, was also approved in mCSPC in 2019 and in nmCRPC a year before that. (so Phizer Enzalutamide or Extandi seems superior outcomes

haft2hunt | @haft2hunt | Dec 18, 2022

In reply to @agustinferrari "What is you AGE and TIME since Stage IV metastasic prostate cancer was diagnosed? Im 47..." + (show)

I was dx in 2021 stage 4
Im 57 and not going anywhere soon
I try to keep researching without it becoming overwhelming.
Gotta give it to god
Wish you all the best

markinch | @markinch | Dec 18, 2022

I’m 88 and diagnosed July 2022. Big surprise! We’ve been in PCLO clinical trial for 20+ years. On ADT therapy at Mayo, Leuprolide inj (3month) and oral abiraterone 250 mg daily. Feeling fine, few hot flashes, definite weakness overall. Good luck.

agustinferrari | @agustinferrari | Dec 17, 2022

What is you AGE and TIME since Stage IV metastasic prostate cancer was diagnosed?
Im 47 diagnosed on 8/2022.

spryguy | @spryguy | Dec 17, 2022

Despit all you have been through it seems you have a positive attitude.
That's valuable. I'm 75 and suspect a similar path is coming my way.
We enjoy cruising as well and hope there are a few more in our future.
Merry Christmas to you and your wife.