Metastatic Prostate Cancer: Where do I go from here?

Oncologist has now put me on Xandia pills with Lupron. Suppose to get my first belly shot 9 January. Has anybody been on Xandia? Doc will do more blood work end of January. Lupron shot is for 6 months.Doc said I would be on Xandia and Lupron for ever and ever . Another Doc said intermittent pending psa level and how well that I am taking the meds. Any info on Xandia? Thanks.

My RP was on November 3, 2022. They took the prostate/seminal vesicles and 6 lymph nodes.

Jim

One lymph involved When was ur rp

Itterac, curious if your post RP pathology showed cancer contained to prostate or whether cancer was found in Lymph Nodes. Also, was there any perineural invasion? I had Gleason 7 (4/3) and I am trying to assess my reoccurrence risk going forward. FYI - My post RP pathology did not find any cancer in the lymph nodes that were removed and no perineural invasion. I know this is only a point in time assessment, so want to continue assessing experiences of others like me.

Merry Christmas and hope you have an awesome new year,

Jim

looking at why not now. https://health.ucsd.edu/news/releases/Pages/2022-10-05-patient-first-in-region-to-receive-new-treatment-for-advanced-prostate-cancer.aspx

On Zolodex Soon Enzalutamide but looking at why not now. https://health.ucsd.edu/news/releases/Pages/2022-10-05-patient-first-in-region-to-receive-new-treatment-for-advanced-prostate-cancer.aspx

Had radiation 2018 then it metastases in 2021 so had L2 lumbar nuked and back on Zolodex 2 years later it increased but slow growing in L1 and hip so they want me on Enzalutamide Note it's the latest COPY Xtandi was granted an FDA fast track and later approved in metastatic castration-sensitive prostate cancer (mCSPC) by late 2019. In May, the oral treatment also scored a European nod for that indication, which carries a grim median survival of just three to four years, Astellas says. U.S. regulators already approved Xtandi in mCSPC and nonmetastatic CRPC (nmCRPC).
For its part, androgen receptor inhibitor Erleada, J&J's follow-up to aging Zytiga, was also approved in mCSPC in 2019 and in nmCRPC a year before that. (so Phizer Enzalutamide or Extandi seems superior outcomes

I was dx in 2021 stage 4
Im 57 and not going anywhere soon
I try to keep researching without it becoming overwhelming.
Gotta give it to god
Wish you all the best

I’m 88 and diagnosed July 2022. Big surprise! We’ve been in PCLO clinical trial for 20+ years. On ADT therapy at Mayo, Leuprolide inj (3month) and oral abiraterone 250 mg daily. Feeling fine, few hot flashes, definite weakness overall. Good luck.

What is you AGE and TIME since Stage IV metastasic prostate cancer was diagnosed?
Im 47 diagnosed on 8/2022.