Metastatic Prostate Cancer: Where do I go from here?

Discussed radiation with Oncologist and they said no. Reason it would not kill the cancer as it was recurred stage 4. Maybe it was not applicable to my situation. My son is an MD and he asked about radiation treatment and the response was that radiation is used to relieve pain. And since I had no pain in the lower right ribs where the cancer had metastasized it wasn't needed. Oncologist Drs settled on Eligard 6 month injection and Xtandia. Urologist wants another PSMA PET scan. Last psa taken 13 Dec 2.7. Down from 18.5 on 16 Nov. Currently on Casodex started 17 Nov. Eligard injection scheduled for 9 January and scans on the 10th.

On Zolodex yet as PSA up from 1.2 to 6 even after L2 lumbar radiated 2 years ago they want me on enzalutamide 4 pills a day chemo I had 40 x radiation in 2018 but last year it came back to spine Castrate sensitive now turning resistive

Any experience with Enza please I'm 78

Can you get radiation on those spots? After my PSMA scan, I had four pelvic lymph nodes radiated. I’m also taking Nubeqa, but a year later my PSA is undetectable. Time will tell but I’m optimistic. I’m 76 years old.

Thank you hope ypu had a wonderful Christmas. Took a holiday from a sugar fast and had a few cookies and pie and ice-cream. . Back on the fast again. Read that sugar is just as dangerous as testosterone. Still feel great, but exhausted taking care of my other half and animals. Did a honey Ham, green bean casserole, potato augraten and cherry cobbler with ice-cream. Today back on fast. Have been experiencing some daily diarrhea and can't figure if that is from my fast routine or Casodex. Taking pediolite to keep up electrolytes. 17 degrees this morning but should warm up by week's end. Hope all is going well with you.

I must apologize to dsingstock for my meaningless post above as I was reading his posts old to new and hadn't read the more recent updated posts.
I wish you all the best with your continued treatment.

Hi dsingstock,
I also had uptake on the Ga68 psma/pet scan , my radiotherapist didn't suspect that it was cancerous,it is apparently quite common for there to be uptake in the ribs in scan but a lot are false positives.
In this attachment you can read about it,there are also many other articles on the web on the subject.

Thanks for the advice. I am on my feet from 7 am to 11 pm. Cooking, cleaning, taking care of animals, walking dog, running errands, etc. Not much time for me. But will try and get back into an exercise routine and hopefully silver sneakers for her. Still feel great, but expect that will change after the shot.

Hi, keep up the exercises and if you can walk 30 minutes a day. I bless you for taking care of your spouse! There are and half dozen different medicines like casodex. So options there, lupron options are tougher for your body to tolerate, so try to stay with Lupron if you can. I do want to stress this is treatment and not cure. Stay the course and stay strong. I have run into many doctors who focus very little on me and quite a bit on what treatment regime I will be on. Often they don’t know my name or my chart. This is the sadness in Drs today.

Thanks for the response it is appreciated . I have had mo reactions to Casodex. Issue is the Oncologist I started with in Richmond only prescribed 30 days of Casodex and midway start a 6 month injection of Lupron. I was moved to Tappahannock to shorten my drive for treatment. The new Oncologist wants me on both Xtandia and Lupron. Will see how the old bod tolerates the meds. I plan to ho bavk to the Y for more weight bearing exercises. Since other half has dementia most of my time is taking care of her. Thanks again for responding. Will let you know how things turnout. By the way used to ride a Honda until it was stolen.

I was on Xandia and I’m now on Ebearla. I tolerate Ebearla better.
I do have been told I will be on Lupron and one of these chemo pills forever. I see this as treatment and not cure. Unfortunately, all these doctors want their revenue streams to stay in place. The. Xandia gave me lethargy , a light, mental fog, mild nausea. I lived life normally. No one could tell I was undergoing treatments. I still played golf and rode the motorcycle and played pickle ball. Each body tolerates this differently, just pay attention to your day to day.