Mesenteric Panniculitis, Stress, and Diet

Posted by mikerob @mikerob, Nov 8 2:51pm

I was diagnosed with Mesentery Panniculitis in early 2023 after a surgery done by Oncology due to thinking I had recurred with Non Hodgkin Lymphoma - but I had not. The amount of stress I was going through in 2022, I believe, led to this happening, coupled with a diet loaded with saturated and other harmful fats. After 2 years, I'm just now leaving Oncology but they want to do another (7th) PET - it seems like all the tests and doctors appointments stress me out, and that causes swelling. I also find that the more I get stressed, the more depressed this all makes me, and it's easy to fall off the 'eat right' wagon and get into snacks or things not meant for me. Even when I stay on my diet I find that I have to change it a lot. There are a few staples that don't cause problems, but it's straightforward to go from something simple that works to adding one or two ingredients and away we go - have any of you had long-term experience with this? Are you able to find a safe zone in your diet and move forward?

Sometimes it seems like eating nothing and drinking water would be the only safe bet, but I know there's no longevity to that. I'm in pain today; it's both from physical activity after lack of it, and also from foods - I discovered soup at night to soothe my stomach and then started getting a lot of different types of 'healthy' ones from a well-known chain health type food store. Wow, 15 grams of saturated fat per bowl - that's like 2 quarter pounders, hold the cheese!

Interested in more discussions like this? Go to the Digestive Health Support Group.

MJ Wethington | @mjwethin | 6 days ago

I was diagnosed with Mesentary from scans 2021 and every year have a follow up scan as it causes my lymph nodes to swell. The scans also show that I have necrosis of the fat tissue in that area of the Mentary from my studies about mesentery is difficult to determine, but it normally can develop from rheumatoid arthritis or trauma to the body there’s no real treatment for it, other than good self-care, rest, light exercise and eating a low inflammatory diet. People can live with it and I’ve researched all what might can be available in terms of medication probably Cleveland clinic has more information on that but I think natural care is the best care for this type of , degenerative illness. Do take care. MJ

MJ Wethington | @mjwethin | 5 days ago

Execuse the mispells - painful arthritis makes tapping somewhat painful. Regarding eating choices and consuming fat I eat about the same amount of macros for both my protein and quality fat daily. Having fat in my diet daily, actually keeps me from overeating, which creates excessive bloating. I generally only eat twice a day and I’m never hungry. I take quality supplements and find Creatine and magnesium glycinate extremely helpful. It is categorized as a rare disease, which makes it difficult to find doctors to treat it. I’ve read several peoples profiles on Facebook that have the disease and one woman was extremely sad because she opted for surgery and died several months later. I had just read on NORDS that surgery is not recommended. wish Nords would give us a list of doctors who treat this rare disease.
FYI