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Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

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heni110 | @heni110 | Nov 7, 2025

Don’t stress
It doesn’t help Easier said than done
It’s going to be a long road
I’ve had three
Surgery on the first one in 2015
Radiation Therapy on the next two in 2021

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1 reply
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jasonl1012 | @jasonl1012 | Nov 7, 2025
In reply to @crowley53 "@jasonl1012 , I'm very tired. I have great days. Yesterday I packed up almost the entire..." + (show)
Profile picture for crowley53 @crowley53

@jasonl1012 , I'm very tired. I have great days. Yesterday I packed up almost the entire yard for winter. Today I needed fun. So, I went shopping and checked out Christmas deco. I don't need any more but I did get a few things. Remember to be good to your self. Go do something you enjoy. All this other stuff will still be there.

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@crowley53
Thanks! You’ve been very helpful!

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jasonl1012 | @jasonl1012 | Nov 7, 2025
In reply to @crowley53 "@jasonl1012 , Ask away. I don't mind. I had 5 treatments and from start to end..." + (show)
Profile picture for crowley53 @crowley53

@jasonl1012 , Ask away. I don't mind. I had 5 treatments and from start to end about 45 mins. I requested a mild sedation. Between the MRI'S and Radiation I can't stand being locked down any more. Sedation for the Radiation was a big help. I 'll find out in March if it helps for the MRI'S.

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@crowley53
Yeah, I’m getting pretty sick of them too

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jasonl1012 | @jasonl1012 | Nov 7, 2025
In reply to @crowley53 "@jasonl1012, I have my MRI in March and I find out then." + (show)
Profile picture for crowley53 @crowley53

@jasonl1012, I have my MRI in March and I find out then.

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@crowley53
I’d love to know in March if you don’t mind sharing

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Maryann | @mkoch | Nov 6, 2025
In reply to @jasonl1012 "@crowley53 Did they have to bolt a halo on your head? I don’t want that done..." + (show)
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@crowley53

Did they have to bolt a halo on your head? I don’t want that done ever again

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@jasonl1012: Down the road I may have to have radiation on one, or both, of 2 remaining meningiomas. I found this article regarding cyber knife versus gamma knife a few years back when I was trying to decide between surgery or radiation for the optic nerve meningioma I did have removed. I thought I'd post in case you, or anyone else, may be interested.
https://www.summitcancercenters.com/cyberknife-vs-gamma-knife/

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crowley53 | @crowley53 | Nov 6, 2025
In reply to @jasonl1012 "@crowley53 Thank you for the info. Did it stop the growth? How many sessions, and how..." + (show)
Profile picture for jasonl1012 @jasonl1012

@crowley53
Thank you for the info. Did it stop the growth? How many sessions, and how did you feel? If you don’t mind me asking. Sorry for all the questions, I’m a bit nervous

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@jasonl1012 , I'm very tired. I have great days. Yesterday I packed up almost the entire yard for winter. Today I needed fun. So, I went shopping and checked out Christmas deco. I don't need any more but I did get a few things. Remember to be good to your self. Go do something you enjoy. All this other stuff will still be there.

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2 replies
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crowley53 | @crowley53 | Nov 6, 2025
In reply to @jasonl1012 "@crowley53 Thank you for the info. Did it stop the growth? How many sessions, and how..." + (show)
Profile picture for jasonl1012 @jasonl1012

@crowley53
Thank you for the info. Did it stop the growth? How many sessions, and how did you feel? If you don’t mind me asking. Sorry for all the questions, I’m a bit nervous

Jump to this post

@jasonl1012 , Ask away. I don't mind. I had 5 treatments and from start to end about 45 mins. I requested a mild sedation. Between the MRI'S and Radiation I can't stand being locked down any more. Sedation for the Radiation was a big help. I 'll find out in March if it helps for the MRI'S.

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1 reply
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crowley53 | @crowley53 | Nov 6, 2025
In reply to @jasonl1012 "@crowley53 Thank you for the info. Did it stop the growth? How many sessions, and how..." + (show)
Profile picture for jasonl1012 @jasonl1012

@crowley53
Thank you for the info. Did it stop the growth? How many sessions, and how did you feel? If you don’t mind me asking. Sorry for all the questions, I’m a bit nervous

Jump to this post

@jasonl1012, I have my MRI in March and I find out then.

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1 reply
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lisaj63 | @lisaj63 | Nov 6, 2025
In reply to @randallshields56 "@randallshields56 wasn't trying to scare you or anything about the prayer groups thing, i believe in..." + (show)
Profile picture for Randy Shields @randallshields56

@randallshields56 wasn't trying to scare you or anything about the prayer groups thing, i believe in angels and miracles and that enough warriors fighting for the same cause helps. that's a good ting. tis all that i was trying to get across to you. i had a tumor right frontal lobe that caused a lot of the same symptoms you described. then they ended up going after a bleeder. imp doing great right now. i was to some of my family , don't know if you've watched the movie 50 first dates but that was me. have a awesome day today and prayers your way and blessings.

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@randallshields56 Amen, Amen & Amen! I too believe in prayer so the first thing I did upon getting the dx is pray and call on
my. prayer warriors! I truly believe God is in control!

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pippa999 | @pippa999 | Nov 6, 2025

Just symptoms of imbalance giddyness ...feeling drained ...dry mouth...weak limbs...no headaches..vision perfect.

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