Meningioma: Anyone else? I'm frightened

@piperleah I also have a meningioma. After my first visit with a neurosurgeon he recommended I get a second opinion. I did just that, actually got 2 more. And I am happy I did. The additional consults helped me to fully understand my particular tumor. And the differing perspectives helped to find a path forward that felt right for me. I wish you the best!

I have a small meningioma left frontal lobe. Diagnosed almost 3 years ago. Just had appt about my recent mri. Said grew minimally in the last year. Felt good about that. I wrote down a page full of things that I’m feeling. She said mine is too small to cause ANY of the issues. I’m 69. The white matter increased also, she said: just aging. I feel good knowing it hadn’t grown, BUT googling for so long, my symptoms are listed as symptoms of a meningioma. She said she’s a neurosurgeon and I should see a neurologist. I’ve had many symptoms for years, with no help of why. Aging? She also said there was no blood test to diagnose Alzheimer’s and the only way you can prove is an autopsy. I give up.

@krinlynn welcome to the group and best wishes and sending prayers your way.

My meningioma is odd shaped 1.5x1.8cm. Having issues lately and now there is fluid around it where there wasn't before. Have neurosurgeon appointment tomorrow at Vanderbilt to determine next steps

I have one which caused hydracephelus which was operated on to let brain fluid return to cleanse the brain. My ventricles were enlargened as a result. I sill have that tumor and now indications of another. I have been seeing an ongologist and have MRI's about every 3 to 6 months for them to stay on top of it. Fingers crossed and good luck to all!

@hiktyd
How are you doing post surgery? Or did you have radiation? How was the experience?

@terid
My partner has had a meningioma that the neurologist has been watching for 10 years. It’s has recently started to grow.
At 2.7 cm he said it was time to do something about it. The neurosurgeon recommended surgery and the radiation oncologist suggested radiation. My partner, who is 81, opted for radiation which is happening tomorrow - one big, strong blast. A second neurosurgeon recommended radiation because of my partner’s age. We hopeful. Would love to hear anyone else’s experience with this particular radiation (Gamma Knife Surgery). Meningioma’s are usually benign and tend to grow very slowly, if at all. Wait and see is often recommended.

I, too, would like to hear more comments about radiation. Looks like that’s what I will be going through soon…

@geegeebabe I’m interested to hear more around your radiation experience. My partner is having gamma knife surgery next week for meningioma that’s 2.7 cm. They say she’ll be up and about with maybe some fatigue for a few days after but nothing more than that. Was that your experience?
I’m sorry about your recurrence but it sounds like your surgery was hugely successful.

@tennesseeanne how are you doing