Meningioma: Anyone else? I'm frightened

Correction: February 2024

I had no symptoms until a severe tonic/clonic seizure lasting 6 minutes sent me to ER. It was my first seizure ever and they discovered the meningioma. Four days later , craniotomy. Successful removal of benign mass. Imbalance, some cognitive/verbal difficulties (seen as mild by family, driving me nuts), neuropathy and encephalomalacia are all topics I’ll be discussing with neurologist this February 2024.

I had one in April 2022. I understand every person’s results are different. Benign meningioma was successfully removed. I woke up with drop foot and possibly neuropathy. My sister, an RN, suggested possibly that restraints on arms/legs surgery were not routinely loosened and retightened. For blood flow. I guess I would make that a point to doctor. Be your best advocate.

Hi, sorry to hear about your vision. My doctors keep telling me that my meningioma is tiny and is taking the wait and see approach. I'm a little nervous about knowing it's there and it could cause problems. I know my vision has changed and have to wear stronger glasses all the time. I guess I'll just wait and keep an eye on it. I also have a pituitary adenoma that I am watching. Glad to hear it is not growing!

Yes, I was diagnosed with one in 2019. Unfortunately, the discovery came too late to spare the damage to my optic nerve and vision. It had grown wrapped around my optic nerve sheath, so the doctors wouldn’t even biopsy it, much less perform surgery to remove it. I ended up undergoing 28 daily radiation treatments to kill the tumor. It did not restore my vision, but it is not currently growing. For reference, I was 55 when diagnosed.

Hopefully your headaches are better.

I finally heard from my neurosurgeon. Appointment in 3 weeks. Have you heard from yours?

I'm feeling good, but I feel like I'm getting more frequent headaches. I am also have some anxiety but knowing that it's probably not cancer makes me feel more relaxed. Let me know what your neurosurgeon says. Have a good evening!

Waiting for my neurosurgeon appointment to see what’s next. I have some anxiety but feel lucky this is almost always not cancer. How are you feeling?

Hi, sound great! Let me know how you're doing?