Meningioma: Anyone else? I'm frightened
I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.
Interested in more discussions like this? Go to the Brain Tumor Support Group.
Connect

I was just diagnosed on the 9th of Jan . Waiting in hospital until all aspirin is out of my system! Surgery Wednesday am!? Scared to death! went in because my arm was numb and came out with the tumor. It’s supposedly on the outside of my brain, but it’s causing problems. Hope it all goes well with you. I’ll be thinking about you.
-
Like -
Helpful -
Hug
2 ReactionsMy symptoms can be managed with meds for now so we are waiting to see what my tumor's rate of growth is before surgery, since I have a good quality of life. Surgery may change a few things, especially related to my right-side hearing. I think that double vision and balance are much harder to live with. Good luck with your appointment!
I have googled and searched webs and everywhere I could to find as much research as possible. Continue to ask your doctor all the questions you have about your situation. The results of your MRI is the will show you exactly where it’s located.
-
Like -
Helpful -
Hug
2 ReactionsI found out I had one over a year ago after a ct scan in ER- I rolled my ankle leaving my mom’s house and slammed my forehead on sidewalk…. They said to follow-up with neurosurgeon. He had me do a MRI three months after er visit. It measured tumor, very small and slow growing and do another one in a year which I’m due for one now. I actually forget I have one…
-
Like -
Helpful -
Hug
2 Reactionsthanks for replying. I have visual disturbances. Presented with double vision. Also tinnitis, headaches and some balance issues. Sorry about the neuralgia, that must be difficult to deal with. I have a sugical consult in 2 weeks. Hopefully I wont have to watch and wait. Why are you doing that? What is the surgeon waiting for?
ageiswinning: Sorry, I just saw your question after 2 days. The MRI did not indicate it was near the optic nerve. I was told that after consulting with the neurosurgeon to discuss the fact that I had an almost 3 centimeter meningioma. I had vision issues which my optometrist called "ghosting." It was like the letters were stacked on top of each other. I also had sinus issues. And, for a few years prior to being diagnosed, I would point out to my husband that one of my eyes drooped, was not symmetrical with the other. Of course, after being told the location of my main meningioma (meaning the largest of the 3) the eye drooping made sense. I hope you are able to get into seeing a neuro doctor soon to find out more information.
I do. Mine is close to the same size. I’m on watch and wait. I have trigeminal neuralgia now. Icy-hot right side of face, ear pain, and occasional stabbing pain in the right side of my nose. And headaches. I’m taking gabapentin. You?
-
Like -
Helpful -
Hug
1 ReactionAnybody have one in the right cerebellopontine 0r posterior fossa? I'd like to swap symptoms. It also looks like a difficult location for removal. Anyone had their's removed? Mine is about 2cm round
My meningioma, based on MRI is 'right frontal pole, with mass effect upon the right-sided Gyrus and olfactory cortex'. I have no idea whether it's near the optic nerve, but vision issues and nausea or my biggest symptoms. Did your MRI indicate that it was near the optic nerve or the doctor after you saw them? I am worried that they will say the vision issue isn't from the meningioma or that it is to small to cause the symptoms (see that on some other posts) -- My biggest worry is that someone will tell me that I am fine which will be a relief, but also will result in me dealing with the vision issues indefinitely. What were your symptoms?
To ageiswinning: My mistake. It was 2.7 centimeters.