Meningioma: Anyone else? I'm frightened

Posted by pixie49247 @pixie49247, May 12, 2023

I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Colleen Young, Connect Director | @colleenyoung | Dec 28, 2024

In reply to @dbicher "I had a golf ball sized benign one removed from my left front in 2021. Didn’t..." + (show)

@dbicher, sounds like your story might be a good one for this discussion:
- What Pets Can Do: Health and Healing https://connect.mayoclinic.org/discussion/what-pets-can-do-health-and-healing/

What helps you with the balance issues?

andreadiofaulks1969 | @andreadiofaulks1969 | Dec 28, 2024

In reply to @kob "I’m waiting for an appointment with the neurosurgeon." + (show)

Hopefully you’ll get one soon.

andreadiofaulks1969 | @andreadiofaulks1969 | Dec 28, 2024

Yes most if not all are benign. Stay connected with your neurosurgeon and your M.D

andreadiofaulks1969 | @andreadiofaulks1969 | Dec 28, 2024

In reply to @mkoch "OK, thank you for your reply. I'm always trying to collect as much information as I..." + (show)

Right

Maryann | @mkoch | Dec 28, 2024

In reply to @andreadiofaulks1969 "Very tired, I still be a little confused at times, my balance get a little off,..." + (show)

OK, thank you for your reply. I'm always trying to collect as much information as I can and I especially value first hand accounts from people who have experienced a particular medical procedure.

andreadiofaulks1969 | @andreadiofaulks1969 | Dec 28, 2024

Was diagnosed earlier this year. Went through radiation for it.

andreadiofaulks1969 | @andreadiofaulks1969 | Dec 28, 2024

In reply to @mary963 "Hello, my name is Mary. I am 51y female. I was diagnosed with a meningioma this..." + (show)

I went to two doctors to make sure this was what i was dealing with, and both doctors (in totally different cities) told and showed me exactly where this was. Ask your doctor who did the MRI or your neurosurgeon.

andreadiofaulks1969 | @andreadiofaulks1969 | Dec 28, 2024

In reply to @mkoch "Andrea, I am on watch-and-wait protocol for 2 meningiomas. I have been told that if they..." + (show)

Very tired, I still be a little confused at times, my balance get a little off, headaches and I be sleepy throughout the day. But I was told those can be done side effects. But I do have my good day as to where I don’t have any side effects and I take full advantage of those.

mary963 | @mary963 | Dec 28, 2024

Hello, my name is Mary. I am 51y female. I was diagnosed with a meningioma this past year. I am about to have my second mri in January. Do you know where I can find more information on symptoms and treatment. The doctor I have gone to hasn't even shown me EXACTLY where I have this in my head. I tried looking for information myself but it is not very clear. Any information would be really helpful.
Thanks

Maryann | @mkoch | Dec 28, 2024

In reply to @andreadiofaulks1969 "Well I had Radiation in October. Still adjusting to side effects of that. But I must..." + (show)

Andrea, I am on watch-and-wait protocol for 2 meningiomas. I have been told that if they continue growing to the point that something needs to be done it will be radiation. So, I am wondering, what are the side effects from radiation that you received in October that you are still adjusting to?