Meningioma: Anyone else? I'm frightened
I just found out I have a Meningioma tumor from a MRI I had for something else. Doctor said they are almost always benign and am going to get an appointment with a neurologist. Anyone else have one of these. I’m getting very frightened now.
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Andrea, I am on watch-and-wait protocol for 2 meningiomas. I have been told that if they continue growing to the point that something needs to be done it will be radiation. So, I am wondering, what are the side effects from radiation that you received in October that you are still adjusting to?
Well I had Radiation in October. Still adjusting to side effects of that. But I must stay strong and think positive. Is your Meningioma due to the Depo Provern shot?
@andreadfaulk69, it's hard to accept a new diagnosis, especially a tumor in your brain, even if it is benign. Yikes. How are you doing now 3 months since diagnosis? Are you on active surveillance (watch and wait)?
The PA who works with neurosurgeon recommended MRI in a year to check my meningiomas but I insisted to do it in 6 months.
I am taking this information very seriously because each case is unique.
Thank you for sharing your experience and knowledge.
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4 ReactionsEight years ago I had a meningioma which bled ( they usually don’t) and I underwent emergency surgery. I just got the good results of my current followup MRI. The tumor is still gone in spite of being a stage 2 tumor according to the WHO. Thank God. So these things are survivable but must be taken seriously.
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3 ReactionsI had a golf ball sized benign one removed from my left front in 2021. Didn’t even really know I had it until I had a ‘silent stroke.’ Thank heavens the dog kept barking at me until my son found me. The day after surgery, I felt 1000 times better. Truly Miraculous, as you’ll see.
Taking Generic Keppra and Vimpat which cause some balance problems, but who really cares? Better than the alternative.
Everyone’s thoughts are with you. You’ll be okay.
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2 ReactionsI was diagnosed with Meninginoma in September 2024. I was also frightened. I didn’t know what to expect or how to except this.
I’m waiting for an appointment with the neurosurgeon.
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1 ReactionThere is a 0.9 x 0.6 x 0.4 cm elliptical enhancing extra-axial nodule over the left anterior frontal lobe compatible with small meningioma. Additionally there is a low T1/T2 likely sclerotic right frontal skull lesion with adjacent T1 hyperintense mineralization measuring 1.1 x 1.3 x 1.5 cm over the lateral right frontal lobe without underlying parenchymal signal abnormality. No hemorrhage, mass effect or edema.
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1 ReactionThank you, Colleen. I like "active surveillance." It was discovered about a years ago. One rescan after 6 months. Another one in 6 months. even though it is barely growing ..
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