Meningioma: Anyone else? I'm frightened

Did having the strokes have anything to do with the presence of the meningioma, or was that a totally, separate issue.

I was diagnosed in the early 1990’s with a small meningioma. The decision was to watch and wait. I haven’t noticed any problems with it. It was discovered when I had a CT scan for a sinus problem. As you can see, I’ve had it a long time. Of course, see a neurologist if you’re having symptoms. Prayer helps, too.

I understand how frightening it was to receive this diagnosis.
I was diagnosed with my menginoma in 2005 after an mri for my Menierer's diagnosis.
I was told it was almost always benign and to just have it checked every year which I did for a while. Then I got lazy and stopped following up. My family doctor insisted I follow up in 2018 with a mri. My tumor was there but I was diagnosed with amyloid angioplasty a very rare untreatable
uncurable issue. I went to the Mayo Clinic in Rochester for a 2nd opinion. They said the only way to diagnose it 100% would be with a brain biopsy after death. They also told me my menginoma was growing and recommended having a radiation treatment to try to slow or stop the growth. Unfortunately it didn't work and I had 2 major strokes in 2019. After the 2nd stroke I had to have emergency surgery to remove my tumor which was a grade 1. I have had frequent mris since then to follow the tumor. Thankfully it is stable.
The surgery affected my left side balance but I am functioning.
I wish you the best.

Correction: February 2024

I had no symptoms until a severe tonic/clonic seizure lasting 6 minutes sent me to ER. It was my first seizure ever and they discovered the meningioma. Four days later , craniotomy. Successful removal of benign mass. Imbalance, some cognitive/verbal difficulties (seen as mild by family, driving me nuts), neuropathy and encephalomalacia are all topics I’ll be discussing with neurologist this February 2024.

I had one in April 2022. I understand every person’s results are different. Benign meningioma was successfully removed. I woke up with drop foot and possibly neuropathy. My sister, an RN, suggested possibly that restraints on arms/legs surgery were not routinely loosened and retightened. For blood flow. I guess I would make that a point to doctor. Be your best advocate.

Hi, sorry to hear about your vision. My doctors keep telling me that my meningioma is tiny and is taking the wait and see approach. I'm a little nervous about knowing it's there and it could cause problems. I know my vision has changed and have to wear stronger glasses all the time. I guess I'll just wait and keep an eye on it. I also have a pituitary adenoma that I am watching. Glad to hear it is not growing!

Yes, I was diagnosed with one in 2019. Unfortunately, the discovery came too late to spare the damage to my optic nerve and vision. It had grown wrapped around my optic nerve sheath, so the doctors wouldn’t even biopsy it, much less perform surgery to remove it. I ended up undergoing 28 daily radiation treatments to kill the tumor. It did not restore my vision, but it is not currently growing. For reference, I was 55 when diagnosed.

Hopefully your headaches are better.

I finally heard from my neurosurgeon. Appointment in 3 weeks. Have you heard from yours?