Meningioma: Anyone else? I'm frightened

Hi all. I recently had a CT scan on Friday and it showed a calcified meningioma with the measurements. I’m still waiting for the doctor to read the results and call me back, it is now Monday and I’m scared. I don’t know what to do at this point. I’ve been having symptoms for years now and I thought it could be my medication or just me getting older but I’m 49. I just don’t know what to do?

I agree with kdog-that sounds like a lot of Keppra. I was only on Keppra for a short time,
( 4 weeks) after my craniotomy to remove a meningioma. I would get a second opinion from the neurosurgeon who performed the surgery, or any neurosurgeon, as per your last sentence it seems you are consulting with a neurologist on this.

Hi,
Kepra 4x daily for 3 1/2 years seems like a lot. I was on it until the 6 week post surgery checkup. The dosage was 2x daily, don’t remember the per pill dose. I would simply ask the neurologist if I could reduce or eliminate the kepra especially since it may be causing undesirable side effects. Remember you’re the boss.

Background: Had meningeal tumor removed 3 1/2 years ago after silent stroke. My son took me to my primary care doctor well before that point. Doctor gave me three of those tests (that Trump passes easily) and told my son that I was “just getting older.” After my son consulted with my siblings, there was discussion of putting me into a senior facility. Luckily (!?) I had the seizure at that point, had the surgery, and within two days I was back to normal. BUT, I’m still taking generic Keppra XR (750mg 4 times daily) and Vimpat (50mg 2 times daily.) Is this a normal amount? Even after 3 1/2 years, I am still too dizzy to do much walking at all. Dizziness is a byproduct of Keppra. Anyone have a suggestion on how to approach my Neurologist on this?

Mine was diagnosed benign.
( thank God not Cancer)
However; I’m still scared. I get a lot of headaches..

I also just found out.
However from prior studies; no one told me. Yes. I was angry. I’m told it’s small and need to be monitored.
It’s been there almost 4 years..I have suffered from migraine all my life. ( the reason for the scans)

thank you
very much

Perfect response.

Stay strong. Was in shock from last April 2024-Aug 2024… was diagnosed with meningioma last Spring after experiencing severe headaches. It was big and swollen and I had tumor resection and craniotomy to remove most of it.
Surgery went fine and in Summer after a few more scans I had a small bout of radiation to simmer what was left. It was benign, but a “grade 2”. Radiation went fine. And will probably have scans every 3 to six months going forward. Hoping for no more surgeries.

doctors go off what they have seen or gone through with other patients. keep this in the back of your head. each person is different, no two alike, some close but nope not the same . fight for what you want, find a friend to go through this with you and enjoy whatever you can.. ok going to go grab a sandwich. chat again later. just message me.