Median Arcuate Ligament Syndrome (MALS)
I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?
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Hi @jmmb I do not believe that MALS contributes to body aches and hip pain, however what I have found interesting is that many MALS patients also have FMD, EDS, POTS. I have noticed that on several online support groups. I know this was brought up to the vascular department at Cleveland Clinic but they did not believe there was a correlation. I do hope we see more research in the area of MALS in the future.
Hi @jmmb, I have MALS and body aches and horrible hip pain. I also have chronic fatigue syndrome so I figure it's probably that. The pain is getting worse, and at times the hip pain is so bad it is difficult to walk or stand.
How do I ask a question on this site?
Hi. I don't have a diagnosis let along surgery. I am just beginning my search. There is something seriously wrong with my stomach this past year and doctors have been unhelpful so far. I have to be extremely careful eating or else i suffer severe pain, feeling overfull, nausea and vomiting. As long as i don't eat "too much" or the wrong thing (pasta liquids are my enemies) i manage to get by without symptoms. Instead of an everyday thing now they come on as attacks when i make a mistake. I have had a lot of abdominal surgeries and a lot of other pain not related to eating. Once i even had a doctor tell me i'd had an omental infarction. But so far none of them have brought up MALS. I want to ask, but its tough sometimes, i don't want to get that look...you know the patronizing one that says they think you should not be looking up your symptoms on google. I would like to see a single one of them suffer even half of what i have suffered and not open up google.
Anyway, if there is a good place for me to find a supportive group of people who may share simlar symptoms, even if not a diagnosis, i would love to hear.
I would really like to look at a plate of food without feeling afraid, but in the mean time it would be nice to know some people who understand.
Hi, roisemaire -- at the bottom of any email you receive notifying you of a post in this discussion, you will see "Unsubscribe from this group." If you click there, you can unsubscribe and stop any further notifications.
Thank you for your symptom list. I have many that are on your list. It is a wonder why more doctors don't consider MALS during your first visit.
I do have forearm and abdominal swelling, but not as noticeable as my ankle/foot swelling. My doctors also have said heart/circulation issues. I have never had ankle/foot swelling prior to 2015. I have trying to get diagnosed since January 2015 for my abdominal pain. I have an appt with my 4th GI doctor this week and am requesting testing for MALS.
Hi, I am wondering if anyone that has MALS also has body aches, and bad hip pain? Thanks
I have ankle/foot swelling sometimes, also forearms and abdominal swelling. I'm post-menopausal and have low blood pressure. Do you have more than ankle/foot swelling, are other areas affected as well? We think it is related to MALS and/or ME/CFS circulatory and vascular problems rolled into one. I am just starting to have more assessments.
Hi could you please stop sending me continues emails