Median Arcuate Ligament Syndrome (MALS)

Posted by Kari Ulrich, Alumna Mentor @kariulrich, Dec 26, 2016

I am looking for other patients that have been diagnosed with Median Arcuate Ligament Syndrome. Although it is caused by compression of the celiac artery many people experience abdominal pain after eating, diarrhea, food avoidance. Usually the first doctors they see are GI doctors. It is a diagnosis that is made after everything else is ruled out. I am curious if anyone else has had surgery?

Interested in more discussions like this? Go to the Digestive Health Support Group.

Kari Ulrich, Alumna Mentor | @kariulrich | Apr 1, 2018

For those of you who do not have access to facebook this is the update peer recommended physician list. This list is a peer list from MAL PALS and compiled by Robin one of the moderators. MALS PALS is another awesome resource. Here is the link if you would like to join: https://www.facebook.com/groups/105633382202/?ref=br_rs It is awesome to have both groups! Facebook has different privacy settings and updates them frequently. Always know what the terms of use are for all websites you share your personal information on.

jmmb | @jmmb | Apr 1, 2018

In reply to @susanf "Thank you got in to one of the Facebook support groups." + (show)

@pfpurple the listing is on the MALS PALS page only. Here are most of the LA doctors. UCLA : Deugarte, Jimenez, Quinoes-Baldrich,
Paul Lawrence, Dutson
At Cedar Sinai LA, : Tulloch, Gewertz
Hopefully this gives you a few options. of course it is Dr. in front of the names....
Let me know if you need anything else. These are just names from people that have recommended MALS friendly dr and from where....Good luck to you.
Jill

susanf | @susanf | Apr 1, 2018

In reply to @susanf "Thank you got in to one of the Facebook support groups." + (show)

I got a reply from the Facebook site of MALS Awareness site. Instead of MALS PALS I think the same people are on it. Not positive. But was given the ok to join the group.
Good luck and hope it helps.

pfpurple | @pfpurple | Apr 1, 2018

In reply to @pfpurple "Does anyone know of a source list of surgeons with MALS experience? I am in San..." + (show)

Thank you @jmmb !! I am fading quickly so that would mean the world to me!!

pfpurple | @pfpurple | Apr 1, 2018

In reply to @susanf "Thank you got in to one of the Facebook support groups." + (show)

@susanf , what did you do? I have been waiting for a couple of days. Would you be open to finding the list of surgeons and posting that list here? I am pretty bad off and need to make a decision if I can stay here in San Diego or if I need to make my way up to Los Angeles. I would be so forever grateful!!

pfpurple | @pfpurple | Apr 1, 2018

Susan, what did you do? I have been waiting for a couple of days. Would you be open to finding the list of surgeons and posting that list here? I am pretty bad off and need to make a decision if I can stay here in San Diego or if I need to make my way up to Los Angeles. I would be so forever grateful!!

susanf | @susanf | Apr 1, 2018

Thank you got in to one of the Facebook support groups.

jmmb | @jmmb | Apr 1, 2018

In reply to @pfpurple "Does anyone know of a source list of surgeons with MALS experience? I am in San..." + (show)

@pfpurple I can give you some of the names. I know there are quite a few. I will try to get them to you today.

jmmb | @jmmb | Apr 1, 2018

In reply to @susanf "How long does it take to get approved on the Facebook site? I asked to join..." + (show)

@susanf I am not sure. I never had a facebook account until I joined. there are two groups, Mals Awareness and Mals Pals, I tried both. I heard from Mals awareness first the same day. Mals Pals not for awhile and then I tried again. I guess I did it wrong some how on the first try. All I know is to post you need to be on their home page, so I guess you hit the join button and then make the request. I am sorry, I am still not good at it. I will look into it some more in the next few days.

pfpurple | @pfpurple | Apr 1, 2018

In reply to @pfpurple "Does anyone know of a source list of surgeons with MALS experience? I am in San..." + (show)

Thank you @jmmb . I haven’t heard back from the MALS Pals Facebook page yet. Is there any chance you (or someone here) could look at the list of surgeons there and tell me who, if anyone, is in San Diego? I have called Dr Bilchik in LA but he is out of town for a few weeks. If there isn’t anyone super experienced in San Diego, I would be interested in others in the Los Angeles area. Thank you!!