Median Arcuate Ligament Syndrome (MALS)

Glad to find this! After a couple of months of stomach issues and all the usual test on your stomach and colon, the doctors did a ct scan with contrast. That revealed the compression of my Celiac artery. Also revealed pulmonary emboli in my lower lung. They estimate my artery is only 30% compressed but the blood clot was adding to my problem and causing the typical weight loss, stomach pain, etc. Since I have been on blood thinners I can eat again. I am 70% better so no surgery at this point but I can tell this will most likely be an on going issue the rest of my life. Good to know this resource is available.

Very interesting article, @jjren; here's a link for members who'd like to read it:
– https://www.nytimes.com/2018/06/13/magazine/he-had-no-symptoms-except-he-felt-nauseated-all-the-time.html

My doctor informed me about a MALS article in the June 13th New York Times. Title What Was Causing a Healthy Older Man to Be Nauseated by Food?

I am going to try this again! This is from MALS PALS on Facebook

I am so sorry to hear about your diagnosis! Do you mind me asking where you live?

Hello @dpresbit sorry you are one of us, but it is good to finally get a diagnosis. Where do you live? There is a Facebook group called Mals Pals and they have an updated list of surgeons/drs. by state. It is made from word of mouth from members on the site that have recommended them. If you don't want to join, I can look for you and let you know.

Seven years and dozens of CT scans later I've now been diagnosed with MALS. 90% stenosis of the celiac axis. I'm now in search of a doctor that specializes in this type of ailment since it seems to be a rare condition. Any suggestions?

That makes sense, this gives a good explanation also: https://www.healthline.com/health/mottled-skin

I think the stress of severe pain causes pallor- less blood flow to skin.

When I have an exceptional amount of pain my kids comment how pale I look, they know I don't feel well. I think that is a common symptom with pain, however I am not sure. Also I have Iron deficiency anemia, which I am sure many of us have possibly from malnutrition? That can cause you to look a bit pale I believe.